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Survival Guide For Newbies


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14 replies to this topic

#1 celiac3270

 
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Posted 12 February 2005 - 04:30 PM

http://forums.delphi...E&webtag=celiac

This is a two week gluten-free survival guide....I thought this would be extremely helpful for newbies. I found it while poking around on the Delphi board. I don't post there, but occasionally poke around for interesting tidbits. It's an adobe file, so you need adobe reader, which if you don't already have, can be downloaded here: http://www.adobe.com...readermain.html. To access this, I think you might also need to be a member of Delphi Forums. Go to http://www.delphiforums.com to register, and the celiac board there is at http://forums.delphiforums.com/celiac.

It's pretty neat, so I wanted to share this :D
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#2 Canadian Karen

 
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Posted 12 February 2005 - 11:04 PM

That's a really useful tool, celiac3270. It will help newbies alot....

Did you ever try the chat section at Delphi? I'm not really into chat rooms, so I haven't tried it, just wondered if it works.....

Again, I am so happy for you that you have found the source of your problems and now see a light at the end of the tunnel.... Life to about to change for the better for you....
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
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#3 celiac3270

 
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Posted 13 February 2005 - 05:55 AM

Yes--that's what I thought.

I haven't tried the chat. Actually, I did once, but it didn't work. Then I realized that there are specific times. A moderated chat on Monday sometimes in the evening and another unmoderated chat on Wednesday, about the same time. I have yet to try it during a correct time, but would like to. I think a message board is best, since the information is....archived for everyone to read, but a chat in addition to a message board sounds neat.

Thank you :) . I'm going to get packing--unfortunately this is my last day to post before I leave :(
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#4 BamBam

 
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Posted 18 February 2005 - 02:11 PM

celiac3270 - thanks for the survival guide - very useful! Looking at that, there is all kinds of stuff available to us - my girlfriend looked at it and says "Hey, he even lists the brand name, so I know what to do when I make something for you!!"

Thanks again
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Montana
Self-diagnosed after many tests and no results to feel better
Gluten Free since 8-6-2005
Lactose free for many years
Casein Free since 02/14/06

#5 sher311

 
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Posted 21 February 2005 - 04:56 AM

Hello,
So glad I found this site. I'm BRAND new. (2 months) My test results showed that that I was suspicious for celiac. I have no symptoms except unexplained bone fractures, osteopenia with bone loss, I also have a vitamin D def.-malabsorption. Thats it. I've started the gluten-free diet and can't tell a difference- I guess because I didn't feel bad to begin with. After reading some of your symptoms and problems with the weight and felling so bad, I beginning to think that I don't have it. I feel so confused.
I also have barrett's esphougus and Chron's disease, I've never had heartburn in my life, how did I get that? Are their any other symptoms? Thanks for any info!

Sherry
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#6 KaitiUSA

 
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Posted 21 February 2005 - 05:15 AM

There are many symptoms that can come with celiac but you may also have none at all. There does not have to be symptoms for you to have celiac. If you are a celiac, symptoms or not, your intestines are being damaged. It took me about 3 months to finally see a significant difference.I had no symptoms growing up until I had mono which triggered it. Otherwise I never would have known. Malabsorption can be a big things with celiacs because your body damages the villi which take nutrients of food into your blood stream. So then no matter how much food you eat you don't get the nourishment you need. Make sure that no gluten is sneaking in. Check shampoos, lotions, cosmetics etc. I had a accident with some lip balm which ended up having vitamin e derived from wheat and was giving me a reaction. If you have any questions I would be happy to help :D
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Kaiti
Positive bloodwork
Gluten-free since January 2004
Arkansas

Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"

"One Nation, Under God"

Feel free to email me anytime....jkbrodbent@yahoo.com

#7 flagbabyds

 
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Posted 21 February 2005 - 09:03 AM

I love this 2 wk guide it is very useful! I use it all the time and I found it like 4 months ago
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Molly

#8 KLTerry

 
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Posted 21 February 2005 - 01:04 PM

Thanks SO much for the survival guide. I'm having such a difficult time sticking to the gluten-free diet. Our funds are so very limited that sometimes, when we run out of gluten-free items, I have no choice but to eat some mac&cheese or romain noodles. This is definitely a rich man's disease.
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Diagnosed 6/04
Diagnosis retracted 7/04
Diagnosed again 8/04
Trying to be gluten free since 1/05. It's hard!

Pittsburgh, PA

#9 judy05

 
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Posted 21 February 2005 - 01:46 PM

I have to disagree about this being a rich man's disease
if you can keep it simple and not buy a lot of the gluten free
stuff you can manage. the only thing I find expensive
are the gluten-free spaghetti and cereal but the rest is mostly
meat, vegetables, and fruit. Once in a while a treat.
I use mostly rice cakes instead of bread and lots of
salads. We just made a Salmon salad today, enough
for a few days and tonight we are having grilled steak
and veggies. Please try not to eat gluten you are just
damaging yourself.
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The one resolution, which was in my mind long before it took the form of a resolution, is the key-note of my life. It is this,always to regard as mere impertinences of fate the handicaps which were placed on my life almost at the beginning. I resolved that they should not crush or dwarf my soul, but rather be made to blossom, like Aaron's rod, with flowers-Helen Keller



Judy- Gluten Intolerant

#10 ianm

 
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Posted 27 February 2005 - 10:07 AM

I am so glad I found this site. I found out about celiac and gluten intolerance about a year ago. I spent 36 years struggling with this problem. I went to more doctors than I can count and none of them ever suggested a food allergy. They sure wanted to write me lots of prescriptions though. I finally began to realize what I had when I read the Atkins Diet book. There was a chapter on food intolerances and it described exactly how I felt. After a lot of research and watching what I eat I finally feel alive for the first time in my life. I had gained a lot of weight and was on the verge of becoming a diabetic. Since eliminating gluten I have lost the weight and in perfect health. This disease nearly caused me to lose everything I had but it is good to see I am not alone.

Ian
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If all the world is indeed a stage and we are merely players then will someone give me the script because I have no f!@#$%^ clue as to what is going on!

What does not kill you makes you stronger.
Nobody cares about losers and quitters never win. If you fail with the cowards then what's the message you send?
Can't get it right, no matter what I do. Might as well be me and keep fu@$ing up for you. - Brian Thomas (Halloween, the greatest metal band ever!)

Ian Moore. Self diagnosed at 36 because the doctors were clueless.
Started low-carb diet early 2004, felt better but not totally gluten-free. Went 100% gluten-free early 2005 and life has never been better.

#11 lovegrov

 
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Posted 27 February 2005 - 01:02 PM

My food bill is actually lower than when I wasn't gluten-free.

I know that gluten-free noodles aren't cheap but home-made spaghetti sauce is VERY cheap. Watch for sales on meat. Fresh, canned or frozen veggies are cheap. Fresh fruit. Buy a bag of uncooked beans for about $1.29 and cook. If you want to get fancy add a can of tomatoes, a little ham, and some spices. Add a salad to it and you have several meals for $1 each or less. One pound of hamburger, two cans of beans (or cook your own), a can of tomatoes and some spices and you have chili. Might cost $1 per serving depending on your serving size. All the Vienna sausage I've ever checked has been gluten-free and I think it's less than $1 per can. Canned tuna is cheap. Add mayo, celery, an egg, and salt and pepper and you have cheap and delicious tuna salad. Eggs where I live are maybe $1.29-$1.49 for 18 of them. Scramble three egs and throw in a smattering of cheese, ham, onions, whatever you like and you can make an omelette for a LOT less than $1.

If you need sweet treats, lots and lots of candies are gluten-free.

Just some ideas. Staying away from gluten is a lot cheaper than what it will cost if you destroy your health.

richard
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#12 Guest_barbara3675_*

 
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Posted 27 February 2005 - 01:03 PM

What a thoughtful thing to do, celiac3270......this thread will help so many new people. I know you are so very young yet, but you should think about becoming a doctor some day specializing in this very subject you are so learned in already. This country needs another good doctor in this subject.

Barbara
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#13 ianm

 
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Posted 27 February 2005 - 03:26 PM

My food bill is drastically lower too now that I am gluten-free. By eating protien, mostly green vegetables and certain fruits I can eat a small amount and not feel hungry for several hours. With the high carb, gluten grain diet I would stuff myself and still feel hungry.

Ian
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If all the world is indeed a stage and we are merely players then will someone give me the script because I have no f!@#$%^ clue as to what is going on!

What does not kill you makes you stronger.
Nobody cares about losers and quitters never win. If you fail with the cowards then what's the message you send?
Can't get it right, no matter what I do. Might as well be me and keep fu@$ing up for you. - Brian Thomas (Halloween, the greatest metal band ever!)

Ian Moore. Self diagnosed at 36 because the doctors were clueless.
Started low-carb diet early 2004, felt better but not totally gluten-free. Went 100% gluten-free early 2005 and life has never been better.

#14 sher311

 
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Posted 27 February 2005 - 06:40 PM

I found that rice krispies, korn pops & ragu speghetti sauce are gluten-free. the noodles are the only thing-so far- that I'm paying extra for.
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#15 KaitiUSA

 
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Posted 27 February 2005 - 06:49 PM

Which rice krispies? They all contain barley in their malt flavoring and so do the rice krispy bars.
Here is a link to the kellogg's dietary special needs list it states at the bottom that they contain barley in them... barley is off limits for us.

http://www.kelloggs....ietaryNeeds.pdf
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Kaiti
Positive bloodwork
Gluten-free since January 2004
Arkansas

Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"

"One Nation, Under God"

Feel free to email me anytime....jkbrodbent@yahoo.com




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