Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Survival Guide For Newbies
0

15 posts in this topic

http://forums.delphiforums.com/n/docs/docD...E&webtag=celiac

This is a two week gluten-free survival guide....I thought this would be extremely helpful for newbies. I found it while poking around on the Delphi board. I don't post there, but occasionally poke around for interesting tidbits. It's an adobe file, so you need adobe reader, which if you don't already have, can be downloaded here: http://www.adobe.com/products/acrobat/readermain.html. To access this, I think you might also need to be a member of Delphi Forums. Go to http://www.delphiforums.com to register, and the celiac board there is at http://forums.delphiforums.com/celiac.

It's pretty neat, so I wanted to share this :D

0

Share this post


Link to post
Share on other sites


Ads by Google:

That's a really useful tool, celiac3270. It will help newbies alot....

Did you ever try the chat section at Delphi? I'm not really into chat rooms, so I haven't tried it, just wondered if it works.....

Again, I am so happy for you that you have found the source of your problems and now see a light at the end of the tunnel.... Life to about to change for the better for you....

0

Share this post


Link to post
Share on other sites

Yes--that's what I thought.

I haven't tried the chat. Actually, I did once, but it didn't work. Then I realized that there are specific times. A moderated chat on Monday sometimes in the evening and another unmoderated chat on Wednesday, about the same time. I have yet to try it during a correct time, but would like to. I think a message board is best, since the information is....archived for everyone to read, but a chat in addition to a message board sounds neat.

Thank you :) . I'm going to get packing--unfortunately this is my last day to post before I leave :(

0

Share this post


Link to post
Share on other sites

celiac3270 - thanks for the survival guide - very useful! Looking at that, there is all kinds of stuff available to us - my girlfriend looked at it and says "Hey, he even lists the brand name, so I know what to do when I make something for you!!"

Thanks again

0

Share this post


Link to post
Share on other sites

Hello,

So glad I found this site. I'm BRAND new. (2 months) My test results showed that that I was suspicious for celiac. I have no symptoms except unexplained bone fractures, osteopenia with bone loss, I also have a vitamin D def.-malabsorption. Thats it. I've started the gluten-free diet and can't tell a difference- I guess because I didn't feel bad to begin with. After reading some of your symptoms and problems with the weight and felling so bad, I beginning to think that I don't have it. I feel so confused.

I also have barrett's esphougus and Chron's disease, I've never had heartburn in my life, how did I get that? Are their any other symptoms? Thanks for any info!

Sherry

0

Share this post


Link to post
Share on other sites




There are many symptoms that can come with celiac but you may also have none at all. There does not have to be symptoms for you to have celiac. If you are a celiac, symptoms or not, your intestines are being damaged. It took me about 3 months to finally see a significant difference.I had no symptoms growing up until I had mono which triggered it. Otherwise I never would have known. Malabsorption can be a big things with celiacs because your body damages the villi which take nutrients of food into your blood stream. So then no matter how much food you eat you don't get the nourishment you need. Make sure that no gluten is sneaking in. Check shampoos, lotions, cosmetics etc. I had a accident with some lip balm which ended up having vitamin e derived from wheat and was giving me a reaction. If you have any questions I would be happy to help :D

0

Share this post


Link to post
Share on other sites

I love this 2 wk guide it is very useful! I use it all the time and I found it like 4 months ago

0

Share this post


Link to post
Share on other sites

Thanks SO much for the survival guide. I'm having such a difficult time sticking to the gluten-free diet. Our funds are so very limited that sometimes, when we run out of gluten-free items, I have no choice but to eat some mac&cheese or romain noodles. This is definitely a rich man's disease.

0

Share this post


Link to post
Share on other sites

I have to disagree about this being a rich man's disease

if you can keep it simple and not buy a lot of the gluten free

stuff you can manage. the only thing I find expensive

are the gluten-free spaghetti and cereal but the rest is mostly

meat, vegetables, and fruit. Once in a while a treat.

I use mostly rice cakes instead of bread and lots of

salads. We just made a Salmon salad today, enough

for a few days and tonight we are having grilled steak

and veggies. Please try not to eat gluten you are just

damaging yourself.

0

Share this post


Link to post
Share on other sites

I am so glad I found this site. I found out about celiac and gluten intolerance about a year ago. I spent 36 years struggling with this problem. I went to more doctors than I can count and none of them ever suggested a food allergy. They sure wanted to write me lots of prescriptions though. I finally began to realize what I had when I read the Atkins Diet book. There was a chapter on food intolerances and it described exactly how I felt. After a lot of research and watching what I eat I finally feel alive for the first time in my life. I had gained a lot of weight and was on the verge of becoming a diabetic. Since eliminating gluten I have lost the weight and in perfect health. This disease nearly caused me to lose everything I had but it is good to see I am not alone.

Ian

0

Share this post


Link to post
Share on other sites

My food bill is actually lower than when I wasn't gluten-free.

I know that gluten-free noodles aren't cheap but home-made spaghetti sauce is VERY cheap. Watch for sales on meat. Fresh, canned or frozen veggies are cheap. Fresh fruit. Buy a bag of uncooked beans for about $1.29 and cook. If you want to get fancy add a can of tomatoes, a little ham, and some spices. Add a salad to it and you have several meals for $1 each or less. One pound of hamburger, two cans of beans (or cook your own), a can of tomatoes and some spices and you have chili. Might cost $1 per serving depending on your serving size. All the Vienna sausage I've ever checked has been gluten-free and I think it's less than $1 per can. Canned tuna is cheap. Add mayo, celery, an egg, and salt and pepper and you have cheap and delicious tuna salad. Eggs where I live are maybe $1.29-$1.49 for 18 of them. Scramble three egs and throw in a smattering of cheese, ham, onions, whatever you like and you can make an omelette for a LOT less than $1.

If you need sweet treats, lots and lots of candies are gluten-free.

Just some ideas. Staying away from gluten is a lot cheaper than what it will cost if you destroy your health.

richard

0

Share this post


Link to post
Share on other sites

What a thoughtful thing to do, celiac3270......this thread will help so many new people. I know you are so very young yet, but you should think about becoming a doctor some day specializing in this very subject you are so learned in already. This country needs another good doctor in this subject.

Barbara

0

Share this post


Link to post
Share on other sites

My food bill is drastically lower too now that I am gluten-free. By eating protien, mostly green vegetables and certain fruits I can eat a small amount and not feel hungry for several hours. With the high carb, gluten grain diet I would stuff myself and still feel hungry.

Ian

0

Share this post


Link to post
Share on other sites

I found that rice krispies, korn pops & ragu speghetti sauce are gluten-free. the noodles are the only thing-so far- that I'm paying extra for.

0

Share this post


Link to post
Share on other sites

Which rice krispies? They all contain barley in their malt flavoring and so do the rice krispy bars.

Here is a link to the kellogg's dietary special needs list it states at the bottom that they contain barley in them... barley is off limits for us.

http://www.kelloggs.co.uk/products/DietaryNeeds.pdf

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,885
    • Total Posts
      919,480
  • Topics

  • Posts

    • Eeek confused! Positive biopsy, negative blood test???
      Thank you! My PA said that she still thinks it's celiac....but I don't feel like she's fully explained why. Some people are hard to get a solid answer out of! I think I'm gonna get a second opinion somewhere else.....appreciate the feedback. Makes me feel a little less crazy
    • Potato Crusted Quiche Breakfast Casserole (Gluten-Free)
      Here is the Potato Crusted Quiche Breakfast Casserole that my Significant Other came up with. View the full article
    • I'm actually scared to go to the doctor and could use some advice
      Hello Elle Among this online community you are not alone in either your symptoms or how you feel about visiting the doctor.  I for one understand the anxiety that you are going through, my own weird nerve stuff and other puzzling symptoms have had me really scared at times.   So much you are going through could very well be gluten related, it really could.   But if it isn't, in the end it is worth trying to find out what it is going on so you can get the treatment you deserve. After all, it could have a really simple, treatable explanation, once the doctors know what it is. I remember reading on another website something that has helped me with my own health anxiety - if one can summon up the courage to go and see the doctor, one should pat oneself on the back and be proud of oneself for doing the right thing.  I'm not terribly keen on the idea of being a proud person - but I think it was meant in the best sense, and it is always good to do the right thing, even if one does it afraid!  It always makes me feel that bit stronger when I'm in the waiting room at the doctors! There is lots of great advice above.  Do take it and make sure you come back if you need further support. There are some fantastic people here to help.        
    • I'm actually scared to go to the doctor and could use some advice
      Hi Elle......do you think you would have better luck obtaining a full Celiac panel from your GP or a gastro doc?  You really need to be tested for Celiac because of all your symptoms.  Many other people probably thought they were dying of some horrible disease because they had so many symptoms that docs ignored.  Very common problem for us.  Plus, your Mom has had "IBS" all her life.  I should add that IBS is not a diagnosis.  No one needs to be told their bowel is irritated......they already know that.  This is where the medical establishment, no matter where you live in this world, fail us.  They need to find the root cause and there always is one.  You also do not need to have any gastro issues to be a Celiac but you do have some, along with all your symptoms mentioned.  Anxiety is a huge problem with Celiac Disease and for many, it goes away just fine on the gluten-free diet, without need of meds...which should always be a last resort measure.  I have never had an anxiety problem in my entire life until after I was diagnosed with Celiac.  I may have had it but with all the other numerous symptoms I had, the anxiety may have gotten buried somewhere.  But guess what? On the extremely rare occasion when I am glutened or cc'd, I get major anxiety for about 4 days and then its gone. B12 is a water soluble vitamin so whatever you don't use, it exits the body in your urine.  It is pretty damn hard to overdose on the stuff.  I take a B vitamin everyday, very high quality ones and my B12 is usually in the high 600 range.  Optimally, it should be between 650-800 so yours was abysmal pre-supplementation.  Absorption can also be affected by PPI's.  You did notice improvement with the tingling sensation and fatigue once your levels were way up so take notice of that. My biggest advice is to get your mother and you tested for celiac, with a FULL PANEL. Then you'll have to wait and see what that shows. You could always trial a gluten-free diet if all testing is complete and the results were either negative or inconclusive. That sometimes happens with people, especially if they have Celiac's other cousin......non-celiac gluten intolerance.  This would be the best route to go with regards to your anxiety, unless it becomes disabling and you need meds, short term. Make sure you tell them that anxiety is a HUGE symptom of Celiac and it is not normal for younger people to have extreme anxiety like that, for no reason. Good luck to you and please call and make the appointment. I understand your fear....I hate doctors and it's pure mistrust. But sometimes you have to address a problem head on.    
    • newbie diagnosed mom - testing 8 yr old now
      good to know. I am not going for a biopsy. I do not have health insurance, i know i know please no political comments. My children do. My husband and I don't right now. If we lived in another state, we would have coverage. I just made an appt to do a full blood panel for my daughter this week. I would rather find some confirmation for her through a blood test, i feel a scope is too invasive for a child. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,929
    • Most Online
      1,763

    Newest Member
    Robyn08
    Joined