Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Survival Guide For Newbies
0

15 posts in this topic

http://forums.delphiforums.com/n/docs/docD...E&webtag=celiac

This is a two week gluten-free survival guide....I thought this would be extremely helpful for newbies. I found it while poking around on the Delphi board. I don't post there, but occasionally poke around for interesting tidbits. It's an adobe file, so you need adobe reader, which if you don't already have, can be downloaded here: http://www.adobe.com/products/acrobat/readermain.html. To access this, I think you might also need to be a member of Delphi Forums. Go to http://www.delphiforums.com to register, and the celiac board there is at http://forums.delphiforums.com/celiac.

It's pretty neat, so I wanted to share this :D

0

Share this post


Link to post
Share on other sites


Ads by Google:

That's a really useful tool, celiac3270. It will help newbies alot....

Did you ever try the chat section at Delphi? I'm not really into chat rooms, so I haven't tried it, just wondered if it works.....

Again, I am so happy for you that you have found the source of your problems and now see a light at the end of the tunnel.... Life to about to change for the better for you....

0

Share this post


Link to post
Share on other sites

Yes--that's what I thought.

I haven't tried the chat. Actually, I did once, but it didn't work. Then I realized that there are specific times. A moderated chat on Monday sometimes in the evening and another unmoderated chat on Wednesday, about the same time. I have yet to try it during a correct time, but would like to. I think a message board is best, since the information is....archived for everyone to read, but a chat in addition to a message board sounds neat.

Thank you :) . I'm going to get packing--unfortunately this is my last day to post before I leave :(

0

Share this post


Link to post
Share on other sites

celiac3270 - thanks for the survival guide - very useful! Looking at that, there is all kinds of stuff available to us - my girlfriend looked at it and says "Hey, he even lists the brand name, so I know what to do when I make something for you!!"

Thanks again

0

Share this post


Link to post
Share on other sites

Hello,

So glad I found this site. I'm BRAND new. (2 months) My test results showed that that I was suspicious for celiac. I have no symptoms except unexplained bone fractures, osteopenia with bone loss, I also have a vitamin D def.-malabsorption. Thats it. I've started the gluten-free diet and can't tell a difference- I guess because I didn't feel bad to begin with. After reading some of your symptoms and problems with the weight and felling so bad, I beginning to think that I don't have it. I feel so confused.

I also have barrett's esphougus and Chron's disease, I've never had heartburn in my life, how did I get that? Are their any other symptoms? Thanks for any info!

Sherry

0

Share this post


Link to post
Share on other sites




There are many symptoms that can come with celiac but you may also have none at all. There does not have to be symptoms for you to have celiac. If you are a celiac, symptoms or not, your intestines are being damaged. It took me about 3 months to finally see a significant difference.I had no symptoms growing up until I had mono which triggered it. Otherwise I never would have known. Malabsorption can be a big things with celiacs because your body damages the villi which take nutrients of food into your blood stream. So then no matter how much food you eat you don't get the nourishment you need. Make sure that no gluten is sneaking in. Check shampoos, lotions, cosmetics etc. I had a accident with some lip balm which ended up having vitamin e derived from wheat and was giving me a reaction. If you have any questions I would be happy to help :D

0

Share this post


Link to post
Share on other sites

I love this 2 wk guide it is very useful! I use it all the time and I found it like 4 months ago

0

Share this post


Link to post
Share on other sites

Thanks SO much for the survival guide. I'm having such a difficult time sticking to the gluten-free diet. Our funds are so very limited that sometimes, when we run out of gluten-free items, I have no choice but to eat some mac&cheese or romain noodles. This is definitely a rich man's disease.

0

Share this post


Link to post
Share on other sites

I have to disagree about this being a rich man's disease

if you can keep it simple and not buy a lot of the gluten free

stuff you can manage. the only thing I find expensive

are the gluten-free spaghetti and cereal but the rest is mostly

meat, vegetables, and fruit. Once in a while a treat.

I use mostly rice cakes instead of bread and lots of

salads. We just made a Salmon salad today, enough

for a few days and tonight we are having grilled steak

and veggies. Please try not to eat gluten you are just

damaging yourself.

0

Share this post


Link to post
Share on other sites

I am so glad I found this site. I found out about celiac and gluten intolerance about a year ago. I spent 36 years struggling with this problem. I went to more doctors than I can count and none of them ever suggested a food allergy. They sure wanted to write me lots of prescriptions though. I finally began to realize what I had when I read the Atkins Diet book. There was a chapter on food intolerances and it described exactly how I felt. After a lot of research and watching what I eat I finally feel alive for the first time in my life. I had gained a lot of weight and was on the verge of becoming a diabetic. Since eliminating gluten I have lost the weight and in perfect health. This disease nearly caused me to lose everything I had but it is good to see I am not alone.

Ian

0

Share this post


Link to post
Share on other sites

My food bill is actually lower than when I wasn't gluten-free.

I know that gluten-free noodles aren't cheap but home-made spaghetti sauce is VERY cheap. Watch for sales on meat. Fresh, canned or frozen veggies are cheap. Fresh fruit. Buy a bag of uncooked beans for about $1.29 and cook. If you want to get fancy add a can of tomatoes, a little ham, and some spices. Add a salad to it and you have several meals for $1 each or less. One pound of hamburger, two cans of beans (or cook your own), a can of tomatoes and some spices and you have chili. Might cost $1 per serving depending on your serving size. All the Vienna sausage I've ever checked has been gluten-free and I think it's less than $1 per can. Canned tuna is cheap. Add mayo, celery, an egg, and salt and pepper and you have cheap and delicious tuna salad. Eggs where I live are maybe $1.29-$1.49 for 18 of them. Scramble three egs and throw in a smattering of cheese, ham, onions, whatever you like and you can make an omelette for a LOT less than $1.

If you need sweet treats, lots and lots of candies are gluten-free.

Just some ideas. Staying away from gluten is a lot cheaper than what it will cost if you destroy your health.

richard

0

Share this post


Link to post
Share on other sites

What a thoughtful thing to do, celiac3270......this thread will help so many new people. I know you are so very young yet, but you should think about becoming a doctor some day specializing in this very subject you are so learned in already. This country needs another good doctor in this subject.

Barbara

0

Share this post


Link to post
Share on other sites

My food bill is drastically lower too now that I am gluten-free. By eating protien, mostly green vegetables and certain fruits I can eat a small amount and not feel hungry for several hours. With the high carb, gluten grain diet I would stuff myself and still feel hungry.

Ian

0

Share this post


Link to post
Share on other sites

I found that rice krispies, korn pops & ragu speghetti sauce are gluten-free. the noodles are the only thing-so far- that I'm paying extra for.

0

Share this post


Link to post
Share on other sites

Which rice krispies? They all contain barley in their malt flavoring and so do the rice krispy bars.

Here is a link to the kellogg's dietary special needs list it states at the bottom that they contain barley in them... barley is off limits for us.

http://www.kelloggs.co.uk/products/DietaryNeeds.pdf

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,367
    • Total Posts
      920,556
  • Topics

  • Posts

    • This easy to make bean dip makes a great addisiton to any good munching session. Goes gret with salsa and gluten-free beer. View the full article
    • Good grief!  :o. I'm so sorry, I wish there was something I could do or say to help you.  I agree with the NP, your primary needs to be requesting copies of your records from the other doctors, as well as the records and lab reports from your hospital stay.  They are supposed to work together as a team, not just individually out in left field.
    • Just a quick one to say I got a diagnosis of celiac disease today. I know in the past it's been helpful for me to know the outcome for other folk, so thought I would update. The moral of this story is even with a VERY borderline blood test it's worth persisting. thanks for all the help Sue 
    • Our own resident gluten-free expert is Suzie Davies. Suzie has been dedicated to gluten-free products since she was diagnosed with celiac disease ... View the full article
    • Well, I am stressed to the max. I just spent 3 days in the hospital with D and stomach pain, dizziness, chest pain, generally unwell. Then another trip to the ER on top of that. My protein was low and my RBC and hemoglobin dropped below normal in 3 days. Not terribly low, but below normal. I also had metabolic acidosis which still confuses me. I usually eat every 2-3 hours despite it causing pain to keep my energy up and was unable to eat that frequently in the hospital. I usually carry protein with me and had been taking liquid iron which I stopped a few weeks ago because my new endo is not a fan of iron supplements. As soon as I got home from the hospital I started with my protein drinks and blackstrap molasses for iron.  I now have bilateral mild pleural effusions and a nodule on my left lung, which hopefully is nothing, but was not there on a CT back in March. In addition, my left adrenal gland, which also appeared normal in March, is calcified and the report indicates this is most likely due to a previous bleed or infection. My colon appears tortuous (whatever that means) and we are waiting on colon/endo biopsies. I have been gluten-free since March except for cc so expect the biopsies to again be negative.  My primary care is useless. I am in the process of getting a new one I will see on the 7th but need the current one to fill out FMLA paperwork because I both physically and mentally need time to recover. I will have to go off of payroll for 2 weeks but I think I need to. I called the primary's office today to discuss the hospital tests which she does NOT have yet and to ask if we should/could start a low dose of prednisone because my body is attacking itself. My thyroid on ultrasound is also abnormal though my bloodwork thus far is normal. But it hurts on that side. The only reason the ultrasound was ordered is because I asked for it in the first place. The only reason I have started seeing an endocrinologist is because I found one myself. Anyway...I broke down in tears on the phone eith her today and she told me I was having a "manic episode". I have no history of mania. I only recently started taking xanax to help me cope with the stress of being sick. I was not sick until I did this stupid gluten challenge over the winter. My mother was in town and spoke with the doctor on the phone as well who was trying to get my mom to take me to a psych hospital. She also threatened to send the police to check on me. My mother assured her I was in no danger and we hung up the phone in complete shock. Admittedly, I was in tears when I called her and probably sounded like a fucking mess. But I believe I referenced the dropping iron, protein, fluid near lungs, enlarged thyroid and attacked adrenal gland then literally said "my body is attacking itself and I need help" to which she said, "I think you are manic". Lovely. If I was a mess before that phone call it was 10x worse when we hung up.  Anyway, this is the first night it has been extremely difficult to sleep. I admit my thoughts about my odd symptoms keep me up often recently. I mean, who the hell bleeds from or gets an infected adrenal gland?! I am sure it was another time I begged my primary for help. On a side not, the NP at the ER told me the primary should be putting these pieces together and communicating with my other doctors better. He then stated that he used to go to the same practice but left because the practice got too big and like a business. So I got some validation from that chat.  A melatonin or a .25 xanax usually does the trick for me to sleep but I am so disturbed about my interaction today, stressed at my health, stressed that my ex has our son so much because I am always sick (bless him for coming through), stressed that I have to go back to this awful doctor because I will need the FMLA paperwork before I see the new doc on the 7th.  8 months ago, I took a multivitamin when I remembered it and that was it.  End rant. Maybe now that it is off my chest I can finally sleep. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,443
    • Most Online
      1,763

    Newest Member
    Richard Green
    Joined