26 replies to this topic

[jymles]

I was diagnosed with Celiac Disease and have been gluten free for a year. No cheating but a few accidental ingestions of hidden gluten, so for the most part I am doing pretty well in my gut. My problem is that I have always been pretty physically active, not a triathelete but weight train and ride a mountain bike regularly, and my endurance and stamina are way lower than before the onset of my gluten problems. After I began taking liquid vitamins by Innovative natural products, and as long as I take them religiously I do ok. But if I miss a day I can tell the difference. It's like I have a gas tank that's just above the empty mark and I'm refilling it with only enough fuel for another mile. My doctors has checked out my heart which is fine, but he is not familar with celiac disease. Another md. diagnosed me. Is there tests for vitamins which we are not getting enough of? Since the liquid vitamins are helping, I'm assuming that I'm not getting enough of something. I also see a lot of mention of avoiding caffiene, why is that. I eat goat cheese but nothing from cows. Thank you for your help.
Jim Campbell

[tarnalberry]

Yes, you can ask your doctor to test your vitamin/mineral levels. (There are a number of vitamins/minerals they can check for. Iron and B vits are two that come to mind as being important to check.)

[mela14]

I had all my vit/minerals checked but all were OK an I still suffer fatigue and muscle pain. Do you have Espstein Barr? That may be something for you to look into.
What liquid vitamins do you take? Are they free of a lot of preservatives?
Good luck to you !

[KaitiUSA]

I was also very active with sports. I played in tournaments 5-6 games a weekend, had alot of endurance and never got tired. I got mono first which I was tested for it 3 times before it was positive. Then I was diagnosed with celiac after that. Liquid vitamins get into your bloodstream quicker so that may be why your body is liking them more. Also Sublingual B vitamins are really good because they also get into your bloodstream quicker and is better absorbed.
Caffeine takes the water out of your system and so you have to drink more or you will dehydrate which can make you tired and sick(I speak from experience)
Good luck

[stef_the_kicking_cuty]

Hi Kaiti,

now i read that again. Liquid vitamins? What is that and where can i get it? Do I need a prescription?

Hugs, Stef

[cdford]

I take shots of the B vitamins and of magnesium sulfate. The B's help with the stamina and thinking problems. They also help with the petechial hemorrhaging spots on the skin. The mag sulfate is a nasty shot but it really helps with the muscle spasms and charlie horses. It only takes a couple of shots a week of the B's to keep me going fairly well.

I just started on a good multi-vitamin to ensure that I am getting all the others.

Shot 1: (works next day and for several)
B-complex 50 units
B-12 25 units
Folic Acid 5-15 units
Add 10 units of xylocaine at the end of the insulin needle and push slowly. Press on injection site for at least 30 seconds.


Shot 2: (works on muscles immediately)
70-80 units of mag sulfate
5 units of xylocaine
PUSH SLOWLY OVER 2-3 FULL MINUTES

[KaitiUSA]

Stef-you can get liquid vitamins at a vitamin or health food store. You do not need a prescription. They are really good because your body absorbs them better.

[Carriefaith]

I also have problems with fatigue, energy levels, and lack of stamina. Most of my vitamin levels have been checked (to my knowlegde) and the only one that wasn't excellent was calcium. So I don't know why I am still having problems.
I try everything to get energy. I drink boost (which helps sometimes), I take lots of vitamins and minerals, I drink tons of orange juice/grape juice, and I eat a lot.
I hope you find the source to your problem.

[stef_the_kicking_cuty]

Hi Kaiti,

I also knew, that the body absorbs the things better, when you spray it under the tongue. We learnt that in medicine school with the Nitro Spray. Yeah, well, but i didn't know, that there are also vitamins you can spray. That's awesome, i gotta try that.

@ cdford: I'm sure the shots work fine. I only heard good stuff about it. I'm just not a big fan of needles , so i might try the liquid vitamins first.

Thanks for all your answers,
Stef

[KaitiUSA]

Stef-the liquid vitamins I take are drinkable. I have a b12 vitamin as well that is sublingual though and you put it under your tongue. There are also minerals you can get and put drops into your drink. One of my doctors actually recommended them too me.
Talk to you soon

[YankeeDB]

My fatigue improved after I got tested for food allergies via York labs and as a result began avoiding daily, yeast, soy, eggs, pears, cashews, and sunflower seeds.

[jymles]

Thank you all for your input. It's been frustrating trying to get help. On my recent doctor visits I end up explaining what Celiac disease is, before we start the exam. I take liquid: multivitamins, minerals and iron, from Innovative Natural Products. I need to check on the preservatives. But they are Gluten free, I called. I order them online, but some health food stores carry them. Thanks again.

[jymles]

Kaiti,
What brand of sublingual vitamin b do you use? Thanks

[KaitiUSA]

jymles-I use Enzymatic Therapy sublingual b vitamins. They mark their supplements of what they are free of on the bottle I use a lot of this brand.

[cdford]

Surely you don't think I actually LIKE those shots! I used to panic at the sight of a needle, but if it makes me have this much energy, I'll do it. Especially with the muscle spasms, the doc says you can't get enough magnesium fast enough with any method other than the shots. It's a bummer, but at least it is a regular insulin needle and not one of those huge ugly ones I used to have to take.

It's awful when even your six year old knows how to pull and give a shot.