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Finding A Good Doctor In Bc
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HI!

I am looking for a Doctor in BC that specializes in celiac disease. Can anyone suggest a good doctor?

Also, I have got only positive blood work. Now being gluten-free, I don't want to get a biopsy, nor feel it is necessary. I do think I need a coloscopy, right? Any other necessary tests to check health?

Also, does anyone get their vitamins covered by medical? Having celiac disease, I would hope that the gov't can provide some financial support when not taking chemical medicines.

Thanks for any input :)

~ Newby

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Hi there I am from Surrey and I am sorry but I can't suggest a good doctor. Maybe try getting in touch with the Canadian Celiac Association and see if they have a suggestion. They were a great help to me recently when they put together a New Member's Meeting on Feb 10th. It was so great to meet other people with the disease and chat about. Choices even got us goodie bags to take home and refreshments to eat there. One of the many tests that I had was a bone density test to check for signs of Oteoporosis so that is one to think about maybe.

Karen

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Thank you so much. Yes, that is a large concern for me as well. I will check with the association and see if they can assist.

All the best,

~ Newby

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The doctor that works at the Hyperbaric Chamber in Coquitlem BC, is the one that first diagnosed me. He is really good. He gave me a list of the good and bad foods, and gave me some pills as well. That helped too, to heal the digestive tract.

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    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
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