Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

York Food Allergy Tests
0

11 posts in this topic

:ph34r: I received the test back and am allergic to almost everything (in addition to being Celiac with severe intestinal damage) - Rice, corn, eggs, nuts, milk, soy, etc. I also have gastroparesis (trouble with food moving from stomach to intestine - especially fiber & fats). I am at a loss about what I should eat anymore. Are these tests really accurate? If so what am I supposed to do - live on a feeding tube? This is getting ridiculous.
0

Share this post


Link to post
Share on other sites


Ads by Google:

Did it say how sensitive you are to these things? I know I am sensitive to dairy if I have alot of it but I can have some in moderation. Also I would value what these tests have to say...I for one did not have one done yet but plan to sometime in the near future.

Fruits and veggies are good though :D

0

Share this post


Link to post
Share on other sites

As vote said, how allergic? You may be able to include them in your diet rotationally (have them one day, but not the next few) which could help your options. You'll also want to investigate the widest possible variety of food. (Other grains, other fruits/vegetables, etc.) What's the full list?

0

Share this post


Link to post
Share on other sites

I had that test done about a month ago and also have LOTS of food allergies. I didn't need the York test tell me that I was reacting to food but it did help to pinpoint or at least validate my intolerances. It IS very hard but you will figure out what you can and cannot eat. I was working with a dietician when I was first told about the gluten intolerance and she had me eating sooooooooo many new and different foods that I was reacting almost daily. Then it made sense to me why I was not eating the foods that she put in my diet......I probably reacted to them before and avoided eating them subconsciously. Most fruits, fresh meats, fish and salads are ok. Nothing canned or processed. Think natural.....but eliminate the things that make you ill. If you tested positive and are not sure if you get sick from it try small doses to see how you react.

It's been 3 months since going gluten free and I am still having a hard time with other intolerances. This morning I reacted to hot brown rice cereal and remembered that I felt the same way when I had buckwheat, which I tested positive for, coincidentally made by the same manufacturer. So....it could be cross contamination. This is a learning experience. I'll never eat that hot cereal again....or any other made by that manufacturer! Of course it ruined my day and I am still feeling awful but what is the other option....Not eating???? You have to figure out what doesn't hurt you so that you can eat and maintain nutrition.

I don't do eggs or soy or peanuts anymore....just to name a few.

One of the good things that came out of my appointments with my dietician is that she had me keep a food diary. Everything I put in my mouth was documented along with the time and how I felt afterwards. When you don't feel well it's hard to figure out what did it but if you see it in black and white over and over then you know you can't have it. Consider keeping a food diary.

Email me anytime if you need to talk.

good luck!

0

Share this post


Link to post
Share on other sites

Here is what the CDers in my family had to do.

Start with some simple meat such as chicken that you do not react to. Grill it without extra spices or sauces. Use only a little salt for flavoring and some garlic if you do not react. Be sure you are starting with a clean grill if you used to use it for non-gluten-free items or the cross-contamination can get you.

Next, buy some white rice (or brown if you are like me and a nutrition nut or get constipation badly). Use that as your starch to start with since it is rare to have a reaction to rice.

Pick out a couple veggies and fruits that you like and are not reactive to. Keep it minimal and simple.

Use this simple meal for several days rotating among the couple of fruits for breakfast and snacks and among the couple of veggies for your other meals.

After a week or so and you are not reacting, add in foods like you do a baby learning to eat...one at a time. Keep a food diary. Only add one fruit or one veggie and eat it once daily for several days. If you react, go back to what you were eating before and let it get out of your system. If you don't react, put this food into your rotation.

When you have a little variety in your fruits and veggies, add some potatoes instead of rice. We did mashed potatoes made with gluten-free chicken broth instead of dairy. Now you have two starches you can alternate along with your veggies and fruits so you shouldn't be having to eat the same thing more than two or three times a week.

Next add a different meat. Again, keep it simple and grilled. No added fats, fancy spices, or sauces.

You get the picture. After several weeks, you will find that you have quite a bit of variety and are letting your body relax and heal. After a couple of months more, you will have significant variety and a clear list of what you react to.

After you have been six months or more without a reaction, try adding back an item you were only a little reactive to and see if your immune system will handle it now. We found that we were able to add back almost everything within a yr or two. We each still have a couple of things we don't dare try again, but we are a whole lot better off than before.

0

Share this post


Link to post
Share on other sites




Donna,

I'm reading the advice that you gave linda...I'm going to have to take it myself.

I am having such a hard time with food. I eat things that I think are ok but then react terribly. The advise you gave to keep it simple is what I have to do. The thing is that I thought I WAS keeping it simple! Chicken seems to be ok......white rice is now bothering me too! My gut is always inflamed and bloated. Even certain veggies are doing me in. I have been trying to be gluten free for about 3 months now but have realized there are so many other intolerances and then the IBS acts up too! OKay, so i have to get back to basics and simple food. It seems that the less variety of food the better off I . One thing sets me off and then my gut is irritated for days!

soooooooooooo here I go again..think simple.........and gotta watch those veggies!

Will think of your words whenever I dare to venture onto something that is questionable! "Simple"!!!

0

Share this post


Link to post
Share on other sites

Good advise Donna, I agree with Mel... Keep it simple. Like you Mel, I react to so many things...My IBS, after being great for many months started up again, so I too have had to go back to the tried and true....a few days of mostly rice or rice products, then I know I can safely add puffed millet, puffed corn...and when the pains/bloating/gas goes away I add simple things back in, plain potatoes, peas, carrots, a LF white fish...but only salt as my seasoning.

I still don't know who to go to for the food allergy test...I want to be tested for as many as possible although like some of you I can already tell what I'm sensitive to. Dairy for sure and soy for sure and to many raw fruits or veggies, and then there is chocolate...oh don't even start me on that..I'm a chocoholic but it sure can do me in. I know in part because of the fats. I can do a cocoa based smoothie with no problems.

Anyway you look at it, it's tough. But something challenging always is, and after all, aren't we worth it?

Kandee

0

Share this post


Link to post
Share on other sites

lindasheppard -

You are not alone! And I felt pretty much the way you do now, when I found out that I had celiac disease.

I am allergic to most proteins and lots of fruits and veggies too.

I had to eliminate them from my diet. The only thing I can tolerate is a (very) small amount of corn, which is fortunate because similar to gluten, corn is in everything, including tylenol and ibuprofen. Once your system has calmed down it should be able to tolerate more fresh fruit and vegetables though stay away from things in the cabbage family if you're having fiber issues. While I can eat rice, I have found that I like quinoa better and it has more protein, haven't had a reaction to it either. It can be purchased as natual, flakes and flour. Due to my allergies I eat organic, and I pretty much stay away from mainstream and processed foods. It has taken me a long time to figure out what I can/cannot eat, so don't get too frustrated. I'd be happy to help you with any food suggestions - just let me know..

0

Share this post


Link to post
Share on other sites

aaascr,

i read your post and found it interesting that I used to eat quinoa too and I don't think it gave me a reaction. Then I started seeing a nutrionist who wanted me to have a little protein at every meal. I would have 2 hard boiled egss with the quinoa for lunch. That's when the trouble really started. I would get soooo sick. Not knowing I had food allergies other than gluten I figured there was something up with the quinoa so I stopeed eating it. Then I had the YORK allergy test done and eggs were at the top of the list for allergies...both the white and the yolk. I have never attempted to try the quinoa again as I am afraid. Could there be any cross contamination with quinoa? Not sure. My gut has been in a bad sate for weeks and I can't seem to get it to calm down. I guess I have to scrutinize more and definately stop the espresso that I love so much! it is starting to irritate me regardless of how little of it I drink right now. maybe..........when my gut is better I can sneak in a few sips from hubby's cup! Between the IBS and the allergies this is really tough. I am happy that you finally figured out what you can and cannot eat. I am still trying to get it right. Please pass along any tips that you might have. Even after I have a BM the pain and twisting are there....sometimes I even get bloated! oh well...............................

0

Share this post


Link to post
Share on other sites

I have a different take on the York testing.

My husband is celiac & we did the full test and it came back that he was highly sensitive to soy, yeast, almond, milk, egg yolk, certain nuts like hazelnut, cashew, lentils, chili pepper and mildly sensitive to other items such as garlic & brazil nuts.

We showed the report to his gastro, who is the ONLY gastro who diagnosed him with celiac disease properly in 30 years, he was not familiar with this type of testing, but he said not to put too much faith in it as we could run another test in several months and get differing results, as the body does change.

Why I am skeptical about this test: For example, my husband has not eaten lentils or chili pepper in 30 years! nor hazelnuts or cashews in 30 years; not even in a baked item or processed item as nuts upset his IBS (that he thought he had). Anyway, my question to York was how can someone have an antibody in their blood for a foodstuff that they have not eaten in 30 years? Their reply is that it has to be in something he has eaten recently, maybe as a hidden ingredient. Well, sorry, but that's not possible. From 11/03 to the test date of 8/04 everything he ate was made by me or him from scratch with plain/bland gluten-free ingredients. I am not questionning sensitivity to the soy, yeast, milk or egg yolk, admittedly, he does eat this stuff, but I am questionning the items he hasn't eaten for many, many years. How does the body have a measurable sensitivity to something that the person is not eating?

Anyway, I'd say "proceed at your own risk" and buyer beware. If you get a test, go over it with your GP, gastro or nutritionist (as a matter of fact, the York report tells you to do just that).

0

Share this post


Link to post
Share on other sites

I think they are good to have done however they are not widely accepted by the medical community yet.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,337
    • Total Posts
      920,459
  • Topics

  • Posts

    • Acne are not itchy or only mildly itchy and they look like red bumps with or without white centers. The bumps are quite separated from each other. What did you start to eat after going gluten-free? More fruits and sugary foods? This can trigger acne.  http://www.ehealthstar.com/conditions/acne-vulgaris Dermatitis herpetiformis can be very itchy and the bumps are more close together and they tend to crust over.  
    • What about Xanthan gum?  It really bothers me, so I avoid most commercially processed gluten-free breads, etc.  Never bothers my hubby though.  
    • I use to get them before I went gluten-free.  I stopped eating oats because it also does give me canker sores and causes my toes to get cracked underneath.  
    • I had quite a few of the medical problems that you have before I figured out that gluten was the problem. I can’t do basic math or writing when I eat gluten also I get depressed, irritable, low energy, etc. The best route to go is to do an elimination diet and monitor how certain foods affect you. I eliminated MSG (Monosodium Glutamate), Nitrite, and oat based on the reactions that I get once I consume them. You must be disciplined on a gluten free diet, there is not such a thing as –It is just one cookie! If you can manage to go 100% gluten-free for three weeks and you see those problems going away, you will have a good idea if that is the cause of your problems. The blood test I did after being gluten-free for two years came back negative so the doctor just make me feel that I was crazy and making things up. I have a stool test done which came back with elevated igA also a gene test indicating I have two genes that code for gluten sensitivity. My lactose intolerance went away too, eating a lot of cheese now. Rash in arms? gone, Brown spots in teeth? Gone, Intestinal noises? Gone, Lack of bladder control? Gone, Constipation? Gone, and a lot others.   
    • Oh you're most welcome!  Another thing --- no steroids, oral or injected for 2 months prior to a dh biopsy. Lay off any topical steroid creams for 2 weeks prior. Really, stand your ground with them. It would also be great if you can get a friend or family member to go with you in case they take the biopsy from somewhere that you can't see such as the back of your neck. Your friend/family member can watch to make sure they don't take it directly ON a lesion. Do you have a primary care doc? You can also go to that doc & ask for a full celiac panel PLUS an eTG or TG3. 60% of people with dh test negative on the celiac blood panel but maybe you're one of the 40% who will test positive. It's worth a shot.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,404
    • Most Online
      1,763

    Newest Member
    GKosmac
    Joined