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I Work In A Clinic


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35 replies to this topic

#1 BamBam

 
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Posted 14 February 2005 - 03:34 PM

I work in a clinic and because of all of the confidentiality rules, I am at a loss in what to do. There are dozens of people coming into this office with symptoms that I would love to recommend that they try a wheat free diet. But I can't say anything, because I am not supposed to know what they are coming in for, but I want to say something so bad. These people have chronic diarrhea and all of the symptoms that I have suffered with for many years. I love my job and of course do not want to put that in jeapordy.

BamBam
;)
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Montana
Self-diagnosed after many tests and no results to feel better
Gluten Free since 8-6-2005
Lactose free for many years
Casein Free since 02/14/06

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#2 MySuicidalTurtle

 
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Posted 14 February 2005 - 05:57 PM

I think it's good that you don't say anything to them and respect the laws. I like when someone in an office/clinic knows what I am in for when they shouldn't and talks to me. Maybe you can talk about the signs of Celiacs to the poeple who can tell them? Or even put posters around the clinic about Celiacs or pamplets on tables?
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#3 KaitiUSA

 
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Posted 14 February 2005 - 06:23 PM

I totally agree with what was said by MySuicidalTurtle. It's definately good you are obeying the laws. Putting pamplets out or talking to someone with the authority to talk to them are awesome ideas. Posters around will also get peoples attention whatever catches their eye and can alert them about the possibility will be good :D
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Kaiti
Positive bloodwork
Gluten-free since January 2004
Arkansas

Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"

"One Nation, Under God"

Feel free to email me anytime....jkbrodbent@yahoo.com

#4 cdford

 
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Posted 14 February 2005 - 11:38 PM

If any of you know of a source for good pamphlets or posters, please post them here. I'd love to share them with family and friends as well as my primary care doc.
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Donna
South Georgia
9 yrs gluten-free
...also DH, fibromyalgia, neuropathy, osteopenia, hypothyroid...

After almost 10 years, I am doing soooo much better!

#5 angel_jd1

 
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Posted 15 February 2005 - 05:49 AM

Friends of Celiac Disease has some great phamplets. They are not too overwhelming with information. They are great to give out just to "inform" people.


The celiac sprue association also will mail you phamplets for free.

You could always make your own phamplet with information that YOU think is important to know about celiac disease.



-Jessica :rolleyes:
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Jessica
Gluten Free since 12-31-2002!!
Kansas

#6 Canadian Karen

 
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Posted 15 February 2005 - 06:20 AM

Hi BamBam,

This might be exactly what you are looking for.......

http://www.glutenfreecanada.com/

Have a great day!

Karen
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#7 Thomas

 
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Posted 15 February 2005 - 09:30 AM

I also think it's a good idea that you are respecting the laws.
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#8 luvs2eat

 
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Posted 15 February 2005 - 09:47 AM

Funny I should see this today... I work for an insurance company and am handling a claim for a person with diarrhea, unexplained weight loss, bloating, etc... and the doc's done lots of blood/stool/urine tests... all neg. of course... and I'm thinking... WHERE'S THE CELIAC BLOOD WORK?? It ain't there... and, of course, there's nothing I can do!!
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luvs2eat
Living in the beautiful Ozark mountains in Arkansas
positive blood tests and later, positive biopsy
diagnosed 8/5/02, gluten-free (after lots of mistakes!) since that day
Dairy free since July 2010 and NOT happy about it!!

#9 Guest_PastorDave_*

 
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Posted 15 February 2005 - 10:55 AM

Hi guys. I have to admit I personally have a pet peeve when people try to diagnose others. We don't all have the same symptoms, all the symptoms we have could be literally dozens of different things (that is why it is so often misdiagnosed). I understand that celiac is more common then the medical field has realized, and I understand that many of you have been burned by misdiagnosis and want to help others, but I have seen so many people so desparate for relief that they go gluten-free without asking a doctor, or finding out for sure, and who knows what that might do. It's like when my mom was diagnosed as lactose intolerant, without any tests. She just went off milk...still ate lots of bread. She actually felt OK for a while because she thought she was better. But she was still hurting herself.
I know I am usually a lot more lighthearted about Celiac, I think that is the best way to deal with it. If I can use this as a soapbox for a second, I also use the fact that I have a hope of ressurection through Jesus, a ressurection with no Celiac Sprue, to deal with rice bread that looks like it belongs in my kid's toy box. (That "Pastor" part of my name is actually my title)
Anyhow, I think it is best to trust in the medical professionals to help others. If someone asks...you know..."you work in the medical field, what do you think"...then tell them. Or recommend they talk to thier doctor about their problems and ask about sprue.
Ok so I know some of you will disagree with me. Please feel free to, I know I am not always right, and your circumstances are different. Bam Bam, don't feel I am picking on you, this has been bugging me for a while, and I probably should have started a different discussion, but I just started and got carried away.
B)
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#10 plantime

 
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Posted 15 February 2005 - 12:09 PM

I didn't know about celiac until a woman suggested I look into it. Now, here I am, a year later, with a positive biopsy for it. Because someone brought it to my attention, and I was able to research it before the test, I knew more about what to do about it than my doctor did. Put out pamphlets in the waiting room. People will pick them up and read them, some out of boredom, some that just want to know what it is. If they have any questions, they can then ask their doctors. It would be the same thing as the ads on tv about different drugs. No diagnosing, just putting the info out there for others to read.
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Dessa

The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25

#11 Canadian Karen

 
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Posted 15 February 2005 - 12:19 PM

I agree, Dessa,

It's not that we are trying to be armchair doctors here. We are all aware that the medical establishment by and large is quite unaware of celiac, thus the large number of population that remains undiagnosed. I don't agree with those who take the approach, "Well, I know what is wrong with you..... yada, yada..." but I see nothing wrong with putting the posters I suggested above or some pamphlets to be available in the waiting room. Then, the onus is on the patient to broach the subject with their doctor, thereby hopefully pointing their doctor in the right direction which otherwise they would not take.

When confidentiality is involved, it is a fine line to walk. But by making the information readily available to the patient in the waiting room, then all we are doing is arming them with as much information pertinent to their symptoms as possible.

Have a great day!

Karen
  • 0
Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#12 KaitiUSA

 
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Posted 15 February 2005 - 12:19 PM

Yeah I don't like to try to diagnose people but I like to give them information so they know about it and the symptoms so they can be aware. People need to be aware of things so if they do have it they can catch it sooner rather than later :D
Pamphlets are a good way to get info. across. I know when I'm waiting in the doctors office I get bored and read things. Good luck :D
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Kaiti
Positive bloodwork
Gluten-free since January 2004
Arkansas

Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"

"One Nation, Under God"

Feel free to email me anytime....jkbrodbent@yahoo.com

#13 Guest_PastorDave_*

 
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Posted 15 February 2005 - 03:17 PM

I know I am coming across as a big advocate for doctors (even though I have good friends who are docs) but actually doctors have known about celiac sprue for a long time, however it had been thought to be very rare, and a "childhood disease". I have no problem with putting out information about it, in fact I was happy when Reader's Digest listed it among the top ten misdiagnosed problems. That allowed people to understand more about it. I am all for education. Just remember that celiac is among the thousands of things that can go wrong with our bodies and doctors can't understand all of them (why I go to a gastroentologist (sp?) who is a specialist instead of our family doctor) and don't have the room to put out pamphlets on every one of them either. We want people to be fair with education on our problem...we need to be fair with education with other problems too.
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#14 jknnej

 
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Posted 16 February 2005 - 04:23 PM

The blood test for Celiac is SO easy and simple. I believe any doctor at ALL who has a patient with all of those symptoms should give them a simple blood test for Celiac. How else could they even consider themselves a medical professional?
i agree with Bambam. We're not suggesting these people go gluten-free or get an endoscopy. Just get a blood test.
Aren't you supposed to get a diabetes check every year? Cholesterol? This should be no different.
When I meet people who confide in me that they have tummy troubles, I always suggest the blood test, NOT the diet. this is not trying to diagnose people; rather, it's trying to point them in the right direction. We don't think everyone has celiac disease; but everyone who has tummy troubles that can't be explained should definitely be tested. There's nothing wrong with suggesting that. You never know who you can help. I'd rather help ONE person realize they may have this than piss off a couple of people who didn't care for my suggestion.
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#15 MySuicidalTurtle

 
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Posted 16 February 2005 - 04:39 PM

When the awareness of Celiac Disease spreads then more people will be tested for it. Most symptoms can be explained by something else and it takes awhile to think of a food "allergy." Just because the test is simple doesn't mean finding the thing to test for is. That's why it takes people years to find an answer.
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