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Weight Loss
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Deb and mag know what I mean, because they've been hearing it from me..and a couple others..But I cant gain weight back!! on Dec 6th I weighed 141...and by the middle of January I went back down to 130, which is where I still am. I just dont get how I can eat MORE yet LOSE more. Ughh if anyone has any suggestions or the similar problem or any comment, please let me know..

~lisa~

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It could be your metabolism is fast so it requires you to then have more calories.

Also could there be gluten slipping in through any shampoos or lotions, etc? Try to go through and see if any products or foods could be slipping in. Hope you find it out soon :D

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I weigh less than I used to before getting sick with celiac disease. I also eat tons of food and never gain a pound. (Although I have always been that way). It's kind of weird I guess. Maybe Vote4PresBush04 idea is right in that we may have high metabolisms. I'd also check all your products for hidden gluten just in case ;)

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I agree have your products checked. If you are not eating anything with gluten maybe a product of yours is giving you trouble.

I have a fast metabolism. I can eat and eat and not put on much weight. It just means we have to eat more. I eat about 500-700 more calories than I would normally eat and I've been able to gain weight. I finally am up to what I was before I got sick. Try eating high calorie foods and if your not gaining weight eat more. If you still can't gain weight my guess would be maybe some gluten might be slipping into your system. Keep me updated Lisa and I'll talk to you soon :D

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Hi,

I have the same problem as alot of you. I wrote in another post. I was diagnosed with Celiac Sprue when I was about 3. That would have been about 1971. I don't ever remember them telling me it was Celiac disease though. They just always called it Malabsorbtion. From what my parents tell me, I was starving to death and they didn't know why. Anyway, I've been thin all of my life and always trying to gain weight. Nothing really works that I can find. I try to stay as gluten-free as possible, but should probably keep a better eye on it. I travel alot and it's hard to stay completely gluten-free on the road. I am taking a vaction for the next several months because of some family problems and I'm going to really try to watch my diet and other things that I may come in contact with and see if this makes any difference. By the way, what is Graves disease? Thanks.

Marty Schiff

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    • Thank you! I will call and ask for a full panel and see where it leads!!
    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
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