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Celiac And 4 Months Pregnant


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7 replies to this topic

#1 mandigirl1

 
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Posted 16 August 2008 - 08:25 PM

I'm 4 months pregnant and have been gluten-free 10 yrs. Does anyone know when and how do you test your baby for celiac disease? While I do have an excellent OBGYN, I'm assuming she wouldnt know much about this. Please share any knowledge/experience.........Thanks!!
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#2 RBC

 
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Posted 21 August 2008 - 02:00 PM

I'm 4 months pregnant and have been gluten-free 10 yrs. Does anyone know when and how do you test your baby for celiac disease? While I do have an excellent OBGYN, I'm assuming she wouldnt know much about this. Please share any knowledge/experience.........Thanks!!



I am 4.5 months pregnant and this is what I have concluded from talking with my Dr. and reading online: when your baby is first born you can do the gene test which consists of swabbing its mouth with a cotton ball and sending it off for testing. This way if the baby does have the celiac gene, then you will know to watch for signs once gluten is introduced into the diet. If the baby does not have the gene, then you will know that it will not be an issue. I had the gene tests years ago and it was very simple. The only drawback is that it is a little pricey and most insurances do not pay for it. Anyway, that is what I plan to do. Hope this helps!
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#3 Rya

 
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Posted 24 August 2008 - 09:11 PM

Another option outside of gene testing is to be very aware of when you introduce gluten into your little one's diet. Look for the same things you would look for in yourself, changes in bowel habits, signs of discomfort, changes in appetite. The current recs are 5-7 months of age. They say if you do it sooner, their intestines aren't mature enough and it increases their risk of developing allergies/celiac. They say if you do it later, I forget why but it also increases the risk. If you do opt to do this, I would take your baby in for a blood test about a month or two after you introduce gluten - just to be sure that all is clear. Sometimes little ones show no overt symptoms at all. Adults do the same as you probably know.

On the other hand, no one says you have to introduce gluten...

And breastfeeding has protective effects against Celiac according to a couple of decades of research.
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#4 mandigirl1

 
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Posted 09 October 2008 - 12:45 PM

I've forgotten to check the responses to my question from August. Thank you for your replies. I'm still wondering if anyone else can add to this, based on their own experience? Now, Im 6 months pregnant and still unsure about when and even if to test my baby. I will not be breastfeeding. Does anyone know which formula is good? Or without gluten? Im not sure what formula would be safe to use if, in fact, my baby does have celiac disease.
Also, when should I give my baby that gene test? What is the name for it? How much will it cost?
Any help would be greatly appreciated! Thank you!
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#5 LisaInTexas

 
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Posted 23 December 2008 - 02:07 PM

I've forgotten to check the responses to my question from August. Thank you for your replies. I'm still wondering if anyone else can add to this, based on their own experience? Now, Im 6 months pregnant and still unsure about when and even if to test my baby. I will not be breastfeeding. Does anyone know which formula is good? Or without gluten? Im not sure what formula would be safe to use if, in fact, my baby does have celiac disease.
Also, when should I give my baby that gene test? What is the name for it? How much will it cost?
Any help would be greatly appreciated! Thank you!


Hi mandigirl~

I just found out I'm pregnant and I've been wondering the same questions. I plan to have a gene test done on my baby just to see which gene I pass along. I know it will either be a celiac gene or a gluten sensitive gene, so either way - I'll most likely avoid giving my child gluten whether they show symptoms or not. My husband hasn't been tested (and won't) so that info will be interesting to learn from our child as well.

I actually did the cotton swab gene test myself as part of a complete panel through www.enterolab.com. It's called the "Gene Test for Gluten Sensitivity/Celiac Sprue". When ordered seperately it is $149. Click on "Pricing and Information about Tests" and scroll down to read more about what they offer and how they work. If you have more questions, they are really good about answering the phone and they typically take the time to make sure you really do understand what they tell you. Of course, any doctor can do a gene analysis as well.

I plan to breastfeed so I don't know about gluten free formulas. I hope you'll reconsider breastfeeding your child as well - if, of course, you are able to. (I know some mothers are not.) It makes even more sense to breastfeed your child if it's possible they could have a gluten sensitive gene or a celiac gene. If you are still interested in gluten-free forumlas, I've read a few other threads on this forum - just do a quick search and I'm sure you'll find what you're looking for. I hope this helps a little bit. Congrats to you - I wish you all the best! :)

~Lisa
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#6 Becky6

 
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Posted 23 December 2008 - 05:43 PM

My husband, daughter and I all have Celiac so I am not planning on introducing gluten to this little guy at all!
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#7 MinRalph

 
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Posted 02 January 2009 - 11:03 AM

My husband, daughter and I all have Celiac so I am not planning on introducing gluten to this little guy at all!


Wow... I've never met anyone besides me and my sister who has Celiac... That's really cool that your husband does too.
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#8 Fiddle-Faddle

 
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Posted 02 January 2009 - 11:26 AM

If the baby does not have the gene, then you will know that it will not be an issue.


Actually, this is not true. There are people who have biopsy-diagnosed celiac who do NOT have either of the 2 genes considered in the US to be associated with celiac.

There are another 5 genes that are considered to be associated with celiac/gluten intolerance in both Europe and Asia.

Also, there are a tremendous number of people (on this board, even!) who are "only" gluten intolerant who have gluten-caused reactions and systemic damage (permanent, for some) every bit as severe as celiac.
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