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How Do You Handle Gluten "slip-ups"?


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11 replies to this topic

#1 CMWeaver

 
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Posted 17 February 2005 - 06:03 AM

My twin daughters are 4 and have been gluten-free since the beginning of December. The one who was failure to thrive and the first to be diagnosed celiac gained 4 lbs! Life was good. Two weeks ago, they got a cold....a bad one. I didn't worry about the appetite slipping because I thought with post nasal drip, coughing etc. it's alright. I noticed she was skipping at meals and is now down 2 of those 4 lbs.

The cold is on its way out but I began to wonder if something she was eating wasn't gluten-free. We were using Pam (Butter flavor) and the store was out so I got the olive oil kind by Pam. I had some information printed out that said their (ConAgra) Pam was safe with the exception of Pam for baking. So when I purchased the olive oil one, I didn't look. Bad move. I looked this morning and it says grain alcohol. I didn't notice that on the previous Pam.

In the event that they have infact been getting gluten....what can I do to ease the effects? I do have some Probiotics. I was putting them into her KozyShack rice pudding but wonder if she now be lactose sensitive again. I just feel so disappointed. It wasn't something she did.....it was something I did and I feel so guilty. I know it doesn't make sence to dwell....just to fix it but shoot......to make so much good progress and then have an induced setback is hard.

Any suggestions for making it easier?

Thanks so much!

Christine
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#2 lovegrov

 
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Posted 17 February 2005 - 06:40 AM

It's my understanding that the olive oil Pam is gluten-free. The grain alcohol should be distilled and therefore is gluten-free.

If they're still getting over the cold, that's probably your problem.

richard
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#3 hthorvald

 
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Posted 17 February 2005 - 07:15 AM

Are you giving them any cold remedies, either prescription or over the counter? Some drug manufacturers use glutens. You may want to call and check.

Helen.
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Helen Kendrick
Gluten free since 5/03/04

#4 dsrcmr

 
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Posted 21 February 2005 - 10:19 AM

It's my understanding that the olive oil Pam is gluten-free. The grain alcohol should be distilled and therefore is gluten-free.

If they're still getting over the cold, that's probably your problem.

richard

This is my understanding also. Each year, the University of Iowa puts out a gluten free packet with major brands in it that they believe to be gluten-free (it really saves me sometimes) and Pam with Olive Oil is listed ok.
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#5 lbsteenwyk

 
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Posted 21 February 2005 - 08:45 PM

Each year, the University of Iowa puts out a gluten free packet with major brands in it that they believe to be gluten-free (it really saves me sometimes)



Do you have a link to this information that you can share? I would like to have access to this gluten-free list.
Thanks! :D
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Laurie
Mom to:
Hayley age 4, gluten-free at 26 months
Clark age 3, negative celiac bloodwork

#6 Boojca

 
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Posted 22 February 2005 - 07:17 AM

Christine,

Are you giving your daughter medications for her cold? These are not always gluten-free so that might be your culprit. Does she have GI issues, if so I would lay off the dairy until she's a little more "healed". That may be causing her pain or whatever and so she doesn't want to eat.

I would very, very carefully go through what she's been eating and try to figure it out. Is your house gluten-free, or at the very least the other twin? Could it be she's getting crumbs, or even getting fed Gluten foods by her sister when you aren't looking (you know how kids are...)

If you are looking for a GREAT mainstream products list (which also includes a medications listing) go to www. delphiforums.com and go to the Celiac Support Group board. It's a great board, but even better is the products listing.

Bridget
Mom to Brennan, age 3, dx Celiac June 2004
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#7 celiac3270

 
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Posted 22 February 2005 - 07:35 AM

Ibsteenwyk,
I think this might be the guide she was referring to--just looked it up on their website. Most recent version is from 2002, though:

http://www.uihc.uiow..... Shopping.htm
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#8 dsrcmr

 
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Posted 22 February 2005 - 11:20 AM

that is the guide I am talking about. they put out a new one each year though. my most current is 2004- I don't think 2005 is out yet.

Amy
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#9 jesslee23

 
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Posted 23 February 2005 - 08:38 AM

Hi! I just recently found this board and I'm so jazzed to have it!

What has helped my 2 year old is aloe vera juice from Walmart. You can buy it pure there. I mix it with his juice (usually apple) and it really calms down his tummy when he's having reactions.
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#10 lbsteenwyk

 
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Posted 23 February 2005 - 08:31 PM

I have read that aloe juice is not recommended for children under 12. That may be because clinical trials have not been done in this age group. Here is a link to a reputable source for more information.

Aloe Information
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Laurie
Mom to:
Hayley age 4, gluten-free at 26 months
Clark age 3, negative celiac bloodwork

#11 jesslee23

 
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Posted 24 February 2005 - 10:42 AM

Yeah, we discussed that with our Gastro. With Joshwa, we have seen only benefits from it. I guess it's a personal thing. It's not recommended because the studies haven't been done. Our Gastro recommends it to all her kids with various stomach and GI issues and has for years with no ill effects.
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#12 watkinson

 
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Posted 24 February 2005 - 01:07 PM

As you probably know there is "scientific dissagreement" about whether or not gluten gets through in the distilling process. Some say grain alchohol is fine, some say not, it's the same with vinegar. To me if the experts have second thoughts I'm just going to stay away. I put olive oil in a spray bottle, it works just like pam, it's great.
Hope the kids are feeling better soon, it probably just needs a few days to leave the system. boost up their liquid intake, good immune boosting ones like pommegranate juice or blueberyy juice. Try natural body cleansers like grapes.
Wendy
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