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Shouldn't Celiac3270 Be Back On Line By Now?


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33 replies to this topic

#16 MySuicidalTurtle

 
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Posted 19 February 2005 - 03:25 PM

Hello, celiac3270!
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#17 mommida

 
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Posted 19 February 2005 - 03:43 PM

Glad to hear everything went well.
My family wishes you a speedy recovery.
Laura
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Michigan

#18 Canadian Karen

 
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Posted 19 February 2005 - 04:26 PM

Well, Mister Readingracer!!!!

I sure is a relief to hear from you!!!!

I am glad you are home safely and it sounds like it's wasn't exactly a walk in the park, eh? Oh well, it will all be worth it once you start feeling so much better than you have in years!! God was watching out for you in regards to the doctors telling you that you were very lucky that some much more serious didn't happen.

Now make sure you get some rest and recoup your strength....

Hugs,
Karen
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#19 celiac3270

 
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Posted 19 February 2005 - 04:30 PM

I was back at the hospital a little sooner than expected: about 2:30 (Eastern time). This morning I had some swelling....I'm pretty open about things, but I won't go into a tremendous amount of detail here--just the scrotum becoming very enlarged and they told me to come in. It's some sort of infection with the epidydimus (sp?) ...antibiotics for 10 days....released around 6:30, though and hoping I won't be leaving home again for a little while.
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#20 Maggie1956

 
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Posted 19 February 2005 - 08:03 PM

So glad you're on the mend celiac3270. :D It sounds like you've been through quite an ordeal, so take it easy for a while, ok?

Please keep us posted. We're looking forward to hearing about your progress toward total good health. ;)
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SUNSHINE COAST, QUEENSLAND, AUSTRALIA

Maggie

Working towards wellness.
gluten-free (or trying to be) since December 1st 2004

positive blood test - Oct. 2004
positive biopsy -Nov. 2004

#21 lbsteenwyk

 
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Posted 19 February 2005 - 08:29 PM

Welcome back, celiac3270. I'm so glad your surgery went well. You've been in my thoughts these past few days. As someone else said, it does take time to recover from surgery, so take it easy!
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Laurie
Mom to:
Hayley age 4, gluten-free at 26 months
Clark age 3, negative celiac bloodwork

#22 cdford

 
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Posted 19 February 2005 - 09:57 PM

Been praying for you. Glad you are better and home again. Those tubes are awful. What was even worse for me was not being able to communicate well. Maybe that is the last time you will ever have to experience it.
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Donna
South Georgia
9 yrs gluten-free
...also DH, fibromyalgia, neuropathy, osteopenia, hypothyroid...

After almost 10 years, I am doing soooo much better!

#23 Twister2

 
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Posted 20 February 2005 - 05:02 AM

Hi celiac3270! Glad to hear you are recovering well, what an ordeal! I hope you feel better soon and hope the surgery works well for you in the long run.

Keep us posted!!

Hugs,

Twister
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Antibody positive, diagnosed October 2004.
Mother and two sisters with Celiacs also
Edmond, Oklahoma

#24 plantime

 
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Posted 20 February 2005 - 08:11 AM

{{{Hugs}}}!! Rest and recover. Give yourself time. Take care of yourself! I'm glad you were able to reach out to that nurse, maybe now she doesn't feel so alone with celiac.
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Dessa

The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25

#25 mela14

 
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Posted 20 February 2005 - 08:34 AM

boy...it's always something. don't get discouraged. take the antibiotics and rest. you'll be be on your feet soon enough. don't foget to take probiotics with the anitbiotics!
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Mel
mela14@optonline.net

10 years of abdominal problems, incorrectly diagnosed with Endometriosis / suffered 7 surgeries. Total hysterectomy 2 years ago!
Fibromyalgia, Chronic Fatigue, Interstitial Cystitis ,IBS, Migraines, Primary Immune Deficiency to name a few. Finally realizing that food intolerances make them all worse!

#26 strack2004

 
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Posted 20 February 2005 - 09:39 AM

celiac3270, I didn't realize that you had been hospitalized. I am glad to hear that you are home again after your second hospital visit and pray that this surgery will be the answer for you. Cheers, Ruth S. Strack 2004
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#27 debmidge

 
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Posted 20 February 2005 - 12:53 PM

celiac3270, Wishing you a speedy and uneventful (except for happiness and joy) recovery. Rest, then let us know how you are doing.

(By the way, which hospital were you at for this surgery?)

Debbie Midge :)
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Husband has Celiac Disease and
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006
It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

#28 celiac3270

 
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Posted 20 February 2005 - 02:10 PM

Columbia Presbyterian -- the same hospital that Dr. Greene and my GI (celiac-specialist) practice at.

And thank you....the swelling went down a little bit with the pill--and I've just been relaxing, posting, and reading (right now it's Bringing Down the House -- a NY Times bestseller that I'm really enjoying right now).....no further incident w/ anything :)
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#29 mela14

 
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Posted 20 February 2005 - 07:06 PM

Hi celiac3270.....hope you are doing better. Who is the dr that you see at Columbia. I called ther last month to make an appt as I am moving to NJ this week and wanted to see Peter Green. Of course he is very busy and does not take my ins. They suggested that I see an associate. I think her name was Dr Lee.
I didn't make the appt yet but would love to hear about your experience there.
I saw a GI dr in NJ last month and he was OK....not Columbia material though.
Take care of yourself,
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Mel
mela14@optonline.net

10 years of abdominal problems, incorrectly diagnosed with Endometriosis / suffered 7 surgeries. Total hysterectomy 2 years ago!
Fibromyalgia, Chronic Fatigue, Interstitial Cystitis ,IBS, Migraines, Primary Immune Deficiency to name a few. Finally realizing that food intolerances make them all worse!

#30 celiac3270

 
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Posted 20 February 2005 - 07:54 PM

Dr. Green doesn't take children so, since I'm only 14, I see Dr. Joseph Levy. Everyone, it seems, who has ever had him has been extremely pleased--he takes the time to talk to you, confident, reassuring, etc. He's only a pediatric doctor, though....I assume that you meant my normal GI, who specializes in celiac, at Columbia
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