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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Chronic Lower Right Abdominal Pain Please Help!
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For the past 9 months ive had chronic and sharp pain in my right lower abdomen and im starting to get really concerened, when the pain does go away its only for a few hours and then its back again :( . Its agrivated by exersize and isnt really aided by any pain killers that ive tried.. i dont want to take anything stronger and im unwilling to keep taking any kind of medication until i know what is wrong. Please help, any suggestions of what it could be would be really helpful.

P.S. Ive seen my GP twice as well as a peadiatric registra (who was frankly useless) and my GI and ive had an ultrasound which was clear

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Hi Nikki,

Pain for that long really needs to be investigated further. The abdomen is such a big place that holds lots of organs, but off the top of my head, things that come to mind in the lower abdomen are intestinal issues which should have been covered by your GI doc. You could have a urinary tract infection, and if untreated could travel up to the kidneys. You also could have issues in your pelvis, e.g. with your ovaries, uterus, cervix, etc. Have you seen a GYN doc? If it were me, I would want an abdominal CAT scan. You could have a vascular problem too. Good luck - I hope you find some answers.

Karen

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Hi Nikki,

Pain for that long really needs to be investigated further. The abdomen is such a big place that holds lots of organs, but off the top of my head, things that come to mind in the lower abdomen are intestinal issues which should have been covered by your GI doc. You could have a urinary tract infection, and if untreated could travel up to the kidneys. You also could have issues in your pelvis, e.g. with your ovaries, uterus, cervix, etc. Have you seen a GYN doc? If it were me, I would want an abdominal CAT scan. You could have a vascular problem too. Good luck - I hope you find some answers.

Karen

thankyou for you help. The problem with CAT scans is that the waiting list is about 8 months long for non-emergancy patients and i really dont know if i will be able to cope for that long. I havent seen a gyn doc but will seriously consider it. Thankyou! :)

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I have the same problems!! Only thing is, I've had it since I was 15.. I'm 21 now. No one knows what it is.... :(

Wish I had something reassuring for you, but I don't even have it for myself.

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What does your diet look like? Are there any foods that cause it to be worse or better?

I have been dealing with a similar pain for the past month or so and figured out that sugar and chocolate aggravate it. I suspect Candida overgrowth as I have other symptoms of that. Will be going to a competent Dr. in 2 weeks and hopefully get some answers/releif. 9 months or 6 years is a long time to deal with this kind of pain.

As a side I am convinced if I went to the hospital with these symptoms they would yank my appendix out. Just cutting chocolate out stopped the stabbing pains in the appendix area. :P

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What does your diet look like? Are there any foods that cause it to be worse or better?

I have been dealing with a similar pain for the past month or so and figured out that sugar and chocolate aggravate it. I suspect Candida overgrowth as I have other symptoms of that. Will be going to a competent Dr. in 2 weeks and hopefully get some answers/releif. 9 months or 6 years is a long time to deal with this kind of pain.

As a side I am convinced if I went to the hospital with these symptoms they would yank my appendix out. Just cutting chocolate out stopped the stabbing pains in the appendix area. :P

I have tried not eating sugar for a while, didn't seem to help too much. But, I didn't stop eating it for long.

I had my appendix removed about 5 years ago, but no relief.

I am also going to do a candida cleanse...

LET US KNOW IF YOU GET ANY ANSWERS!! :D :D

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lower right pain is typical of Crohn's disease-- it's unlikely but not impossible to have both. Got any other symptoms that could be that? Do beans and whole grains make the pain worse?

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lower right pain is typical of Crohn's disease-- it's unlikely but not impossible to have both. Got any other symptoms that could be that? Do beans and whole grains make the pain worse?

They don't seem to on me...

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For the past 9 months ive had chronic and sharp pain in my right lower abdomen and im starting to get really concerened, when the pain does go away its only for a few hours and then its back again :( . Its agrivated by exersize and isnt really aided by any pain killers that ive tried.. i dont want to take anything stronger and im unwilling to keep taking any kind of medication until i know what is wrong. Please help, any suggestions of what it could be would be really helpful.

P.S. Ive seen my GP twice as well as a peadiatric registra (who was frankly useless) and my GI and ive had an ultrasound which was clear

Lower abdominal pain is classic for appendix problems. Usually people get acute appendicitis, but other people can have pain for years before the appendix causes severe pain just before it bursts. If your doc ruled out appendix problems, consider getting a stool test for bacteria, parasites and fungus (like candida).

I had a parasite called dientamoeba fragilis which infects the secum, which is right next to the appendix. I thought I was having appendicitis, but the pain came and went. D-frag pain felt like a charley horse (muscle cramp) in my lower right intestine. After my stool test showed I had dientamoeba fragilis, my doc treated that with Iodoquinol for about 5 weeks. Then I took high dose probiotics after that. The pain disappeared and my next stool test was negative for parasites, pathogenic bacteria and fungus.

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Lower abdominal pain is classic for appendix problems. Usually people get acute appendicitis, but other people can have pain for years before the appendix causes severe pain just before it bursts. If your doc ruled out appendix problems, consider getting a stool test for bacteria, parasites and fungus (like candida).

I had a parasite called dientamoeba fragilis which infects the secum, which is right next to the appendix. I thought I was having appendicitis, but the pain came and went. D-frag pain felt like a charley horse (muscle cramp) in my lower right intestine. After my stool test showed I had dientamoeba fragilis, my doc treated that with Iodoquinol for about 5 weeks. Then I took high dose probiotics after that. The pain disappeared and my next stool test was negative for parasites, pathogenic bacteria and fungus.

That gives me hope. I feel like I have two ferrets playing around in my intestines most of the time after I eat. It doesn't cause pain often but there is a rumbling and bloated feeling.

Crohns, Celiac, as far as I can tell its all a manifestation of Gluten Intolerance. I don't see why you couldn't have both. It's funny because I was looking at cook books yesterday and flipped through a Chrons one for giggles. Most of the stuff in it contained wheat.

That cook book gets a giant FAIL. :blink:

I will definitely let everyone know how it goes at Doc Vikki's. I am very interested to know how out of balance my poor body is myself. And as much as I like ferrets I do not appreciate them using my innards as play tubes. :)

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    • Will my doctor test me? So many symptoms...
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    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
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    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
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