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For Those With Knowledge About Mental Health Dx's


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8 replies to this topic

#1 mosaicmom

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Posted 07 September 2008 - 08:16 PM

If you've received a mental health diagnosis in the past, one that you could agree with in some ways and others around you might've agreed...
Did they go away upon gluten-free diet for significant periods of time?
Or does gluten damage receptors in the brain that cause the disease and no turning back?
Also have read selenium deficiencies in those with co occuring disorders of mental health issues and celiacs.
Big on fish oil in the house, didn't "cure" but didn't have dd on gluten-free diet yet.

Just hoping for a cure for the debilitating effects. She noticed clarity when going gluten-free for 2 weeks, so I'm hopeful... but we had to go back on gluten for the endoscopy, holding on for dear life til then.
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#2 mftnchn

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Posted 07 September 2008 - 09:07 PM

I don't personally have a diagnosis, but I do work in the field.

On this forum since I joined I have seen many who report resolution of such symptoms. Some after gluten-free, some after gluten-free plus some other restrictions that has worked for them.

Recently starting the specific carbohydrate diet, I've read of a whole number of other reports of resolution of symptoms which removal of any carbohydrates that have to be broken down. (Intestinal damage can lead to the inability to make the enzymes to break down carbs).

So hang in there.
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4/2007 Positive IGA, TTG Enterolab results, with severe malabsorption: Two DQ2 celiac genes--highest possible risk.

gluten-free since 4/22/07; SF since 7/07; 3/08 & 7/08 high sugar levels in stool (i.e. cannot break down carbs) digestive enzymes for carbs didn't help; 7/18/08 started SCD as prescribed by my physician (MD).

10/2000 dx LYME disease; 2008 clinical dx CELIAC; Other: hypothyroid, allergies, dupuytrens, high mercury levels

#3 ravenwoodglass

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Posted 08 September 2008 - 02:45 AM

I suffered from severe cyclic bouts of depression and also had a sub-illeal seizure disorder that caused out of the blue, for no reason rages. I have also been formally diagnosed with post traumatic stress disorder, PTSD. The celiac diagnosis did away with the depression and the seizures. The only time I get the depression now is when glutened, it hits hard and heavy for 24 hours after I injest. Then it lifts. I haven't had a seizure now at all in years, even when glutened. The PTSD however is due to violent trauma both as a child and as an adult. That and the anxiety from it has not been relieved.
I hope the endo is close for you. Do get you DD back on the diet as soon as the endo is finished. I would also stay on the diet for at least a few months regardless of the biopsy report. It can take a while to heal neuro stuff and the least little bit of gluten for many causes things to reappear. My depressive symptoms combined with my DH were the biggest clues for me in the beginning that some gluten was sneaking in. Also with neuro symptoms we often have to avoid the gluten grain alcohols and vinegars. You should avoid and then challenge them before you accept the blanket promise that none of us react. Some of us definately do.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#4 RiceGuy

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Posted 08 September 2008 - 04:09 AM

Something else to consider would be supplements. Vitamin B12, magnesium, iron, zinc, and others can be very helpful. Here's a link to some useful information on this: http://www.nutros.com/nsr-0306b.html

Sometimes just going gluten-free isn't enough. As was stated, other intolerances and sensitivities should be considered as well. Things like dairy, soy, corn, nuts, eggs, nightshades, and probably some others.

Hang in there!
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A spherical meteorite 10 km in diameter traveling at 20 km/s has the kinetic energy equal to the calories in 550,000,000,000,000,000 Twinkies.

#5 mosaicmom

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Posted 08 September 2008 - 04:53 AM

Something else to consider would be supplements. Vitamin B12, magnesium, iron, zinc, and others can be very helpful. Here's a link to some useful information on this: http://www.nutros.com/nsr-0306b.html

Sometimes just going gluten-free isn't enough. As was stated, other intolerances and sensitivities should be considered as well. Things like dairy, soy, corn, nuts, eggs, nightshades, and probably some others.

Hang in there!


She was on a vitamin regimen prior to this being looked at. I will have to try and force her back into it.
She was dx'd with Bipolar 1, which is worse than 2. She also has anxiety like no other. My husband has ptsd and anxiety- preexisting, but also before going to Iraq- so not totally a gluten issue for him. She- dd- believes it's schizophrenia whereas I do not- which I've read is of higher prevalence in those with Celiac. She didn't just read this and come up with it, she's been warning me for some time. By day for of the gluten-free diet, she came to me and said her "depersonalization" had gotten significantly better. We didn't attribute it to gluten-free b/c I hadn't started looking into it yet. I have alot of hope.
We need to get her appetite back though as the stomach issues are only allowing for at tops, 800-1000 calories a day to be ingested.
I've read a bit about the SCD, have it bookmarked. We'll start with gluten-free since it made the biggest difference in a short period of time, and then exclude from there when we have the tests finished.

If I hadn't found this site, I wouldn't have investigated her rash further, which is clearly not the atopic derm she's had all her life, it is most certainly the examples you see, but not extreme- just in small patches throughout her body.
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#6 feelingbetter

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Posted 08 September 2008 - 10:57 AM

Hi- I had PTSD, Bipolar ll, chronic fatigue, fibro and severe migraines. One year ago I went off all meds and started taking high doses of vitamins and minerals. This helped quite alot once I got through the most hellish withdrawal period.

Six months ago I went gluten and dairy free. This took care of the migraines and all fibro problems. My mood was better but I still had strong bouts of anxiety and depression.

Four months ago I started the SCD and have noticed a huge improvement. My energy is coming back. I now believe that I cannot tolerate any grain products. When I cheat and eat rice pasta or rice I become very depressed. I still take lots of vitamins and minerals as well as a weekly b12 shot. I have never felt this well as I do now on this diet.

My only remaining problem is some anxiety. I will travel to the U.S next year to the Pfeiffer Center in Illinois as I have been reading alot about pyroluria. I sense this is what I have.

My prayers are with you. I understand your suffering.
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Brenda

Diagnosed with chronic fatigue, fibro, anemia, chronic constipation, low blood pressure, migraines, headaches, severe low sugar reactions and bipolar disorder. I was basically disabled.
March/08  Gluten and dairy free - Tested positive through enterolab
April/08   Gave up tomatoes, corn, soy, potatoes and peanutsMay/08  
May/08   Started SCD. Dramatic improvement!!! All symptoms above have mostly gone away.  Will stay on SCD for at least a year or two. My diet consists of 65% raw fruit and vegetables,  25% protein and the balance good fats.  NO PROCESSED FOODS!
Oct/08 Now 80-90% Raw Food Diet. My health continues to improve and energy is coming back.

#7 AliB

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Posted 08 September 2008 - 02:55 PM

My daughter has suffered with quite severe anxiety, panic and depression - I had her down as Bipolar at one point & she was even suicidal at times - in the pit one minute, bouncing off the walls at the next.

She has, within the last year gone back on to St John's Wort on a pretty permanent basis. It deals with her problems a lot better and less drastically than the drugs do and is keeping her on a fairly level field at the moment, however I am convinced that she would not need them at all if she were on the SCD.

I keep chipping away at the resistance and hopefully I will get through eventually! Both her little boys have issues linked to GI and poor gut flora so it would not do any of them (or my husband either) any harm to join me on the SCD. We would all be a lot better for it.

My daughter, I think, is waiting to see how I fare on it. My health is slowly improving, but not quick enough to spur her into it. Unless she gets into it now, by the time my healing has completed she and the boys will have lost the time in between and possibly deteriorated even further.

We don't necessarily link what happens in the brain to what is happening in the gut, but it is all connected. 2,500 years ago Hippocrates said that all disease begins in the gut. Wise Man.
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Ali - 50 - struggled with what I now know to be GI symptoms and poor carb digestion for at least 35 years! Diabetic type II (1997). Mother undx Celiac - lifelong diabetic Type 1 & anemic (plus 1 stillborn and 10 miscarriages after me). Father definitely very GI.

Stopped gluten & dairy, Jan 08, but still other issues so dropped most carbs and sugar and have been following the Specific Carb Diet (SCD) since March 08. Recovery slow but steady and I can now eat a much broader range of foods especially raw which are good for my digestion and boost my energy level.

Not getting better? Try the SCD - it might just change your life.........

#8 feelingbetter

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Posted 08 September 2008 - 03:39 PM

This is just my opinion but I think most mental illness is the result of a vitamin and mineral deficiency. I really think it is at the root of the problem. If there is intestinal damage then there will be nutritional deficiency. If there is pyroluria there is a severe zinc and b6 deficiency. My oldest daughter presents with clear signs of bipolar ll. When she takes her vitamins she is a different person. Just like I am a different person when I take my supplements.

If anyone is interested The Mood Cure by Julia Ross is loaded with information and proper dosing of vitamins and minerals.

I eat a very healthy diet loaded with raw fruit and vegetables but I doubt I will ever be able to stop taking the vitamins and minerals. I really don't think the SCD will be enough by itself to keep the bipolar under control.
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Brenda

Diagnosed with chronic fatigue, fibro, anemia, chronic constipation, low blood pressure, migraines, headaches, severe low sugar reactions and bipolar disorder. I was basically disabled.
March/08  Gluten and dairy free - Tested positive through enterolab
April/08   Gave up tomatoes, corn, soy, potatoes and peanutsMay/08  
May/08   Started SCD. Dramatic improvement!!! All symptoms above have mostly gone away.  Will stay on SCD for at least a year or two. My diet consists of 65% raw fruit and vegetables,  25% protein and the balance good fats.  NO PROCESSED FOODS!
Oct/08 Now 80-90% Raw Food Diet. My health continues to improve and energy is coming back.

#9 mosaicmom

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Posted 09 September 2008 - 04:25 AM

AliB
Yes, he was a wise man. Now I know who I'm quoting when I told my husband to shut up and drink the aloe vera juice we had... "death begins in the gut", I kept telling him. He felt better while I had him on it. He's not the on with C issues that I can tell so far.
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