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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Alzheimer's
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Is there any relation with Alzheimer' and Celiac? I haven't seen anything on it yet. Thanks for any info. My sister's neighbor has it at age 55. :(

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Is there any relation with Alzheimer' and Celiac? I haven't seen anything on it yet. Thanks for any info. My sister's neighbor has it at age 55. :(

Here are a couple of studies:

Mayo Clinic Discovers Potential Link Between Celiac Disease And Cognitive Decline

http://www.sciencedaily.com/releases/2006/...61010022602.htm

Alzheimer's and Celiac - are they related?

http://www.doctorgluten.com/cms/index.php/...ey-related.html

Many have severe memory and thought problems related to gluten. Whether these are Alzheimer's or whether they fall into another brain syndrome catagory is a question that may take a bit longer to answer and may depend on lots more research.

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I've read more about Alzheimer's being related to diabetes, a problem with the brain metabolizing glucose. The glucose levels get too high and cause all kinds of damage.

http://news.bbc.co.uk/2/hi/health/4315609.stm

If it were a loved one of mine, I'd try to convince them to stop eating sugars and starches and keep the carbs down.

Unfortunately, my Dad went through this before I knew anything about it. *sigh*

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Wow, thanks guys! I am mailing off all the info I have to them today and I will include all these web sites and info too. They will appreciate it so much. The couple got married when she was 16 and now she's 55. He was a college professor and had to retire a few years early to take care of her, she was a nurse. I know that she was addicted to pop out of the can...so sorry for them. If you have any more info I will pass it along. Thanks again!

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If you google "type 3 diabetes alzheimer's" you should find lots of stuff. Or "Alzheimer's glucose".

Oh here's one for you! Very recent news:

Sugary Beverages May Increase Alzheimer's Risk

Also, Dr. McCleary (neurologist) has a lot about brain things including dementia. I suggest reading his blog.

http://www.drmccleary.com/default.aspx

THANKS SO MUCH!!!

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Lots of links between Alzheimers and low B12 as well. Try to read "Could it be B12?" by Sally Pacholok. Blood tests don't often detect low B12 and sometimes Drs don't even test for low B12 at all ! Or know how to interpret the result. Low normal with symptoms is not normal....

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Lots of links between Alzheimers and low B12 as well. Try to read "Could it be B12?" by Sally Pacholok. Blood tests don't often detect low B12 and sometimes Drs don't even test for low B12 at all ! Or know how to interpret the result. Low normal with symptoms is not normal....

Amazing that a missing vitamin can play havoc in the body...Thanks for the info!

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And of course, celiacs with malabsorption problems have low B12, don't they?

And there's the link between celiac and diabetes, too.....

I'd be amazed if there were NO link between celiac and Alzheimers...

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And of course, celiacs with malabsorption problems have low B12, don't they?

And there's the link between celiac and diabetes, too.....

I'd be amazed if there were NO link between celiac and Alzheimers...

Vitamin B12 and folate in relation to the development of Alzheimer

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Lots of links between Alzheimers and low B12 as well. Try to read "Could it be B12?" by Sally Pacholok. Blood tests don't often detect low B12 and sometimes Drs don't even test for low B12 at all ! Or know how to interpret the result. Low normal with symptoms is not normal....

They also fail to ask if a person is taking supplements with folate when they do test. Folate can give a false normal reading to the B12 even if the person is not able to utilize the vitamin at all. It can take a long time for blood B12 levels to go down and some doctors when they do test don't bother to look at what the reading was a year ago. My B12 levels got to just a few points above the lowest number on the scale, like 2. I was still being told it was in the normal range even though my tests showed that it was dropping from the 500's to the 300's and finally ended up at about 200 before a doctor even suggested a supplement.

I wonder about those plaques they found also and whether they have any relation to the brain lesions that they find in some of us.

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    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
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