Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Alzheimer's


  • Please log in to reply

11 replies to this topic

#1 purple

 
purple

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,992 posts
 

Posted 08 September 2008 - 05:52 PM

Is there any relation with Alzheimer' and Celiac? I haven't seen anything on it yet. Thanks for any info. My sister's neighbor has it at age 55. :(
  • 0
Come unto me, all ye that labour and are heavy laden and I will give you rest. Matthew 11:28

Celiac.com Sponsor:

#2 ravenwoodglass

 
ravenwoodglass

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 13,741 posts
 

Posted 09 September 2008 - 02:37 AM

Is there any relation with Alzheimer' and Celiac? I haven't seen anything on it yet. Thanks for any info. My sister's neighbor has it at age 55. :(


Here are a couple of studies:

Mayo Clinic Discovers Potential Link Between Celiac Disease And Cognitive Decline

http://www.scienceda...61010022602.htm

Alzheimer's and Celiac - are they related?

http://www.doctorglu...ey-related.html

Many have severe memory and thought problems related to gluten. Whether these are Alzheimer's or whether they fall into another brain syndrome catagory is a question that may take a bit longer to answer and may depend on lots more research.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#3 darlindeb25

 
darlindeb25

    Advanced Community Member

  • Banned
  • PipPipPipPipPipPip
  • 2,324 posts
 

Posted 09 September 2008 - 02:55 AM

Here are a few more links:

http://www.scienceda...61010022602.htm

http://www.peoplesph..._alzheimers.asp

http://www.csaceliac...y/neurocomp.php

http://www.ncbi.nlm..../pubmed/9088382
  • 0
Deb
Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

#4 Nancym

 
Nancym

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,026 posts
 

Posted 09 September 2008 - 06:49 AM

I've read more about Alzheimer's being related to diabetes, a problem with the brain metabolizing glucose. The glucose levels get too high and cause all kinds of damage.
http://news.bbc.co.u...lth/4315609.stm

If it were a loved one of mine, I'd try to convince them to stop eating sugars and starches and keep the carbs down.

Unfortunately, my Dad went through this before I knew anything about it. *sigh*
  • 0

#5 purple

 
purple

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,992 posts
 

Posted 09 September 2008 - 07:57 AM

Wow, thanks guys! I am mailing off all the info I have to them today and I will include all these web sites and info too. They will appreciate it so much. The couple got married when she was 16 and now she's 55. He was a college professor and had to retire a few years early to take care of her, she was a nurse. I know that she was addicted to pop out of the can...so sorry for them. If you have any more info I will pass it along. Thanks again!
  • 0
Come unto me, all ye that labour and are heavy laden and I will give you rest. Matthew 11:28

#6 Nancym

 
Nancym

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,026 posts
 

Posted 09 September 2008 - 10:14 AM

If you google "type 3 diabetes alzheimer's" you should find lots of stuff. Or "Alzheimer's glucose".

Oh here's one for you! Very recent news:
Sugary Beverages May Increase Alzheimer's Risk

Also, Dr. McCleary (neurologist) has a lot about brain things including dementia. I suggest reading his blog.

http://www.drmccleary.com/default.aspx
  • 0

#7 purple

 
purple

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,992 posts
 

Posted 09 September 2008 - 11:24 AM

If you google "type 3 diabetes alzheimer's" you should find lots of stuff. Or "Alzheimer's glucose".

Oh here's one for you! Very recent news:
Sugary Beverages May Increase Alzheimer's Risk

Also, Dr. McCleary (neurologist) has a lot about brain things including dementia. I suggest reading his blog.

http://www.drmccleary.com/default.aspx


THANKS SO MUCH!!!
  • 0
Come unto me, all ye that labour and are heavy laden and I will give you rest. Matthew 11:28

#8 georgie

 
georgie

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 963 posts
 

Posted 09 September 2008 - 06:20 PM

Lots of links between Alzheimers and low B12 as well. Try to read "Could it be B12?" by Sally Pacholok. Blood tests don't often detect low B12 and sometimes Drs don't even test for low B12 at all ! Or know how to interpret the result. Low normal with symptoms is not normal....
  • 0


Diagnosed May 2006 - Hashimotos Thyroid after being diagnosed in 1977 and told it didn't matter.
Diagnosed June 2006 with adrenal insufficiency.
Diagnosed June 2006 as Gluten Intolerant after I failed the Challenge Diet. Negative blood test.No biopsy.
Diagnosed June 2006 as B12 low. Needed weekly injections for a year.Still have them every 2 weeks.
Trialled Dairy Free Diet and reacted positively to that challenge in January 07.
News Flash! Coeliac Genetic Testing done April 08 . DQ2 Positive !
Diagnosed July 2010 FODMAP. Limits on Fructose, lactose, polyols, fructans. NO ONION! But I can have hard cheese, butter and cream again!!!

#9 purple

 
purple

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,992 posts
 

Posted 10 September 2008 - 03:43 PM

Lots of links between Alzheimers and low B12 as well. Try to read "Could it be B12?" by Sally Pacholok. Blood tests don't often detect low B12 and sometimes Drs don't even test for low B12 at all ! Or know how to interpret the result. Low normal with symptoms is not normal....


Amazing that a missing vitamin can play havoc in the body...Thanks for the info!
  • 0
Come unto me, all ye that labour and are heavy laden and I will give you rest. Matthew 11:28

#10 Fiddle-Faddle

 
Fiddle-Faddle

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 4,159 posts
 

Posted 10 September 2008 - 04:42 PM

And of course, celiacs with malabsorption problems have low B12, don't they?

And there's the link between celiac and diabetes, too.....

I'd be amazed if there were NO link between celiac and Alzheimers...
  • 0

#11 georgie

 
georgie

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 963 posts
 

Posted 10 September 2008 - 05:54 PM

And of course, celiacs with malabsorption problems have low B12, don't they?

And there's the link between celiac and diabetes, too.....

I'd be amazed if there were NO link between celiac and Alzheimers...


Vitamin B12 and folate in relation to the development of Alzheimer’s disease
H-X. Wang, BA;, Å. Wahlin, PhD;, H. Basun, MD, PhD;, J. Fastbom, MD, PhD;, B. Winblad, MD, PhD; and L. Fratiglioni, MD, PhD

From the Stockholm Gerontology Research Center and Division of Geriatric Medicine (Drs. Wang, Wahlin, Basun, Fastbom, Winblad, and Fratiglioni), NEUROTEC, Karolinska Institutet, Stockholm; and Astra Zeneca (Dr. Basun), Clinical Science, R & D Södertälje, Sweden.


CONCLUSIONS: This study suggests that vitamin B12 and folate may be involved in the development of AD. A clear association was detected only when both vitamins were taken into account, especially among the cognitively intact subjects. No interaction was found between the two vitamins. Monitoring serum B12 and folate concentration in the elderly may be relevant for prevention of AD.


http://www.tinyurl.com.au/x.php?19jt
  • 0


Diagnosed May 2006 - Hashimotos Thyroid after being diagnosed in 1977 and told it didn't matter.
Diagnosed June 2006 with adrenal insufficiency.
Diagnosed June 2006 as Gluten Intolerant after I failed the Challenge Diet. Negative blood test.No biopsy.
Diagnosed June 2006 as B12 low. Needed weekly injections for a year.Still have them every 2 weeks.
Trialled Dairy Free Diet and reacted positively to that challenge in January 07.
News Flash! Coeliac Genetic Testing done April 08 . DQ2 Positive !
Diagnosed July 2010 FODMAP. Limits on Fructose, lactose, polyols, fructans. NO ONION! But I can have hard cheese, butter and cream again!!!

#12 ravenwoodglass

 
ravenwoodglass

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 13,741 posts
 

Posted 11 September 2008 - 02:05 AM

Lots of links between Alzheimers and low B12 as well. Try to read "Could it be B12?" by Sally Pacholok. Blood tests don't often detect low B12 and sometimes Drs don't even test for low B12 at all ! Or know how to interpret the result. Low normal with symptoms is not normal....


They also fail to ask if a person is taking supplements with folate when they do test. Folate can give a false normal reading to the B12 even if the person is not able to utilize the vitamin at all. It can take a long time for blood B12 levels to go down and some doctors when they do test don't bother to look at what the reading was a year ago. My B12 levels got to just a few points above the lowest number on the scale, like 2. I was still being told it was in the normal range even though my tests showed that it was dropping from the 500's to the 300's and finally ended up at about 200 before a doctor even suggested a supplement.
I wonder about those plaques they found also and whether they have any relation to the brain lesions that they find in some of us.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: