Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Thyroid Recovery - Taking Innate Thyroid Response Complete Care


  • Please log in to reply

13 replies to this topic

#1 jennsboys23

 
jennsboys23

    New Community Member

  • Members
  • Pip
  • 4 posts
 

Posted 09 September 2008 - 09:01 AM

Hi Folks,

I was diagnosed with Celiac's 3 weeks ago by my holistic doctor (thank God! 20 years and endless tests by traditional practitioners later!!). My thyroid is very under active, so my dr. put me on Innate Thyroid Response Complete Care 2x a day. Does anyone know how long it will take before my thyroid wakes up? I exercise regularly at the gym, but over the last 5 years have gained 20 lbs despite eating well and exercising.

Thank you!
  • 0

Celiac.com Sponsor:

#2 ShayFL

 
ShayFL

    ShayFL

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,393 posts
 

Posted 09 September 2008 - 09:20 AM

Did your doctor test you for thyroid antibodies??? If no, then you need to get that done. BECAUSE there are different reasons the thyroid hypofunctions and depending on the reason, treatment can be very different.

For instance if you have Hashimotos (antibodies) then your thyroid is low because it has been attacked (auto-immune) and if you do not have enough thyroid tissue left to produce adequate hormone, then you can take all the supplements in the world and it will not work. You will need thyroid replacement (I use and recommend Armour and likely your Holistic Doc will too), but there are many options. Thyroid is not a cookie cutter disease. Each person is different and it takes a REALLY good doctor to work with you to find out what will work best for you. Also, if you have Hashimoto's taking all of that iodine in that supplement will make your situation WORSE.

You can Google everything I am telling you and I encourage you to do that. Research the thyroid. Learn about your body and this will help you make good decisions about your health.

Did he test your ADRENALS? Ferritin? Parathyroid hormones? B12? These are a MUST when considering treatment for the thyroid.

Thyroid isnt something to mess around with. It controls everything in your body and it is CRUCIAL that you find a good doctor for this. Yours might be great, but make sure he tests properly and recommends accordingly (based on your own research).

www.stopthethyroidmadess.com is a great place to start. Keep in mind that the ranges for TSH changed a long time ago, but most labs still use old ranges.
  • 0
GLUTEN FREE 4/4/08. LEGUME/SOY FREE 5/15/08. YEAST FREE. CORN FREE. GRAIN FREE. DAIRY FREE. I am eating all meats, eggs, veggies, fruits, squash, nuts and seeds. I just keep getting better every day. :)

Do not let any of the advice given here substitute for good medical care. Let this forum be a catalyst for research. Find support for any post in here before you believe it to be true. Arm yourself with knowledge. Let your doctor be your assistant. Listen to their advice, but follow your own instincts as well. Miracles are within your reach. You can heal!

#3 jennsboys23

 
jennsboys23

    New Community Member

  • Members
  • Pip
  • 4 posts
 

Posted 10 September 2008 - 05:59 AM

Did your doctor test you for thyroid antibodies??? If no, then you need to get that done. BECAUSE there are different reasons the thyroid hypofunctions and depending on the reason, treatment can be very different.

For instance if you have Hashimotos (antibodies) then your thyroid is low because it has been attacked (auto-immune) and if you do not have enough thyroid tissue left to produce adequate hormone, then you can take all the supplements in the world and it will not work. You will need thyroid replacement (I use and recommend Armour and likely your Holistic Doc will too), but there are many options. Thyroid is not a cookie cutter disease. Each person is different and it takes a REALLY good doctor to work with you to find out what will work best for you. Also, if you have Hashimoto's taking all of that iodine in that supplement will make your situation WORSE.

You can Google everything I am telling you and I encourage you to do that. Research the thyroid. Learn about your body and this will help you make good decisions about your health.

Did he test your ADRENALS? Ferritin? Parathyroid hormones? B12? These are a MUST when considering treatment for the thyroid.

Thyroid isnt something to mess around with. It controls everything in your body and it is CRUCIAL that you find a good doctor for this. Yours might be great, but make sure he tests properly and recommends accordingly (based on your own research).

www.stopthethyroidmadess.com is a great place to start. Keep in mind that the ranges for TSH changed a long time ago, but most labs still use old ranges.


  • 0

#4 jennsboys23

 
jennsboys23

    New Community Member

  • Members
  • Pip
  • 4 posts
 

Posted 10 September 2008 - 06:17 AM

ShayFL: Thank you so much for your response. I pulled out my test results to check the answers to your questions. I had a comprehensive metabolic panel done:. I did read it, only I just read it again and consulted WebMD, etc. so that I really understood it all:

Yes, I'm ow on B12, taking a supplement. My thyroid is low because of autoimmune deficiency caused by the gluten allergy.

My Thyroid Peroxidase (TPO) is abnormal - 256.9H; , and Ferritin is very low (37, normal is 80-100).
T3, Free & T4 are normal, but on the low end of normal
TSH is low
I do have anti-TPO antibodies.

My doctor told me that my thyroid will start to recover after about 4 weeks off gluten.

Thanks again for the info - I did check out that site yesterday and it has a tremendous amount of good info. :)

Jenn
  • 0

#5 Nancym

 
Nancym

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,026 posts
 

Posted 10 September 2008 - 06:57 AM

TSH is low?

TSH stands for thyroid stimulating hormone. It is secreted by the pituitary gland and says to the thyroid, "Hey buddy, I want more T-juice". When it is low then that means the brain (pituitary gland is in the brain) thinks your body is producing enough thyroid, or sometimes, if it is low enough, it can even mean you're hyperthyroid. Just depends how low.

When TSH is high (the definition of high is debatable but the range is usually around 4.5 these days) then that means the brain wants more thyroid hormone and this can indicate a hypothyroid condition.

So do you have an actual number for the TSH?

Also, sometimes the pituitary gland can get whacked and mess up too. That's why looking at the individual thyroid levels (T4, T3) becomes important.

And... if you're anemic, it can cause a lot of the same symptoms as hypothyroid.

Also, restricting calories or dieting can lead to lower T3 levels. Nothing wrong with that, IMHO. It is the bodies natural way to prevent starvation. It is actually a marker for longevity.

There are foods and hormones that can make your body not use thyroid correctly, like soy and birth control pills. Google "goitrogenic foods" and see. For most people, it isn't a problem but if your thyroid is marginal it can be an issue.
  • 0

#6 ShayFL

 
ShayFL

    ShayFL

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,393 posts
 

Posted 10 September 2008 - 07:14 AM

Yes, Low TSH with hypothyroid indicates the pituitary is not working properly.

I am gluten-free 5+ months now and my Thyroid has not shown any indication of healing. With hashi's it isnt always possible. I do not say this to discourage you. You may be one of the lucky ones and I hope you are. I am telling you this, because it should be monitored very carefully.

You have antibodies, so you have Hashi's. Most doctors find that Hashi's patients need replacement hormone. Make sure you keep your doctor on his toes if you do not start feeling better within that 4 month period.

I am not fond of the Endocrinologists in Tampa, but you should see one. There are other tests that should be performed. Your thyroid should have an ultrasound to look for nodules and cancer.

My Mom had Hashi's and Cancer and did not know it until her thyroid was almost completely eaten away. Her bloodwork kept coming back normal. But she felt like total crap. Finally she convinced her doctor to do an ultrasound and that is when they found the cancer. Her Hashi's was dx post surgery. She NEVER had any antibodies show up. Why? Antibodies are generally testes as IgA. We (my family) appear to have very low levels of IgA.

Tests are tests. But some are very useful. Ultrasound is non-invasive and painless. I recommend getting one.

Please be careful with thyroid. It can cause a lot of misery, but can be treated effectively with a good doctor.
  • 0
GLUTEN FREE 4/4/08. LEGUME/SOY FREE 5/15/08. YEAST FREE. CORN FREE. GRAIN FREE. DAIRY FREE. I am eating all meats, eggs, veggies, fruits, squash, nuts and seeds. I just keep getting better every day. :)

Do not let any of the advice given here substitute for good medical care. Let this forum be a catalyst for research. Find support for any post in here before you believe it to be true. Arm yourself with knowledge. Let your doctor be your assistant. Listen to their advice, but follow your own instincts as well. Miracles are within your reach. You can heal!

#7 georgie

 
georgie

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 963 posts
 

Posted 10 September 2008 - 01:22 PM

I tend to agree with ShayL on this. Hashimotos is Hashimotos and another autoimmune disease as well as your Celiac. If you neglect the symptoms then the eventual damage can be serious - even cancer. I have not heard of a gluten-free diet curing Hashimotos although it may be possible.

I was dx with Hashis with a low # of Antibodies but my Dr was aware of how these tests can vary. She immediately ordered the ultrasound and that is what showed the nodules and damage. After a year of Armour Thyroid I had a repeat ultrasound and all nodules had vanished. I feel I was very lucky to be dx when I was. I also had Hashimotos a long time - but Dr after Dr kept sending me away saying my Thyroid was normal cos my TSH was low.

I now find it is likely that I am HypoPituitary. I have had extra blood tests which suggest this and also a brain MRI ( should have been pituitary MRI ) to check for tumours.

Gaining weight as you complain of - can be low thyroid or it can be low Growth Hormone ... Both are switched on to work by the Pituitary and if the Pit is damaged - you start to get a systemic failure of all your hormones with blood tests looking atypical in places ( low TSH for eg). I have been told that GH is usually the first hormone to fail with HypoPit and usually the last to be dx. I also know of many that start with autoimmune Hashimotos Thyroid and then become HypoPit low Thyroid later.

Good luck with finding an Endo though. I have found them all to be clueless - waiting for me to collapse before considering a dx. My Dr has taken over now and is treating me so I can live my life now without suffering more years of misery.
  • 0


Diagnosed May 2006 - Hashimotos Thyroid after being diagnosed in 1977 and told it didn't matter.
Diagnosed June 2006 with adrenal insufficiency.
Diagnosed June 2006 as Gluten Intolerant after I failed the Challenge Diet. Negative blood test.No biopsy.
Diagnosed June 2006 as B12 low. Needed weekly injections for a year.Still have them every 2 weeks.
Trialled Dairy Free Diet and reacted positively to that challenge in January 07.
News Flash! Coeliac Genetic Testing done April 08 . DQ2 Positive !
Diagnosed July 2010 FODMAP. Limits on Fructose, lactose, polyols, fructans. NO ONION! But I can have hard cheese, butter and cream again!!!

#8 ShayFL

 
ShayFL

    ShayFL

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,393 posts
 

Posted 10 September 2008 - 01:36 PM

Yes, honestly, if you can get your regular doctor to do the ultrasound and avoid the Endo, this is best.

One thing to keep in mind is that some become hypoPit because of tumors that damages the Pituitary that secrete GH.

A lot of folks with hypoPit have issues with their thyroid, adrenals and sex hormones.

Arent these bodies so complicated......
  • 0
GLUTEN FREE 4/4/08. LEGUME/SOY FREE 5/15/08. YEAST FREE. CORN FREE. GRAIN FREE. DAIRY FREE. I am eating all meats, eggs, veggies, fruits, squash, nuts and seeds. I just keep getting better every day. :)

Do not let any of the advice given here substitute for good medical care. Let this forum be a catalyst for research. Find support for any post in here before you believe it to be true. Arm yourself with knowledge. Let your doctor be your assistant. Listen to their advice, but follow your own instincts as well. Miracles are within your reach. You can heal!

#9 GFinDC

 
GFinDC

    A little farting never hurt anybody... :-).

  • Advanced Members
  • PipPipPipPipPipPip
  • 4,134 posts
 

Posted 11 September 2008 - 04:02 AM

I have been reading on the Medhelp.org site that selenium is thought to reduce thyroid antibodies for a while up to 9 months. So I am trying that at 100 mcg daily for now. Also doing some L-carniteine and Alpha lipoic Acid. Just started all these so not sure if they are a real help or not. I seem to be able to sleep better so far, but it's only been a few days.
  • 0
Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#10 ShayFL

 
ShayFL

    ShayFL

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,393 posts
 

Posted 11 September 2008 - 04:39 AM

ALA raised my blood sugar, so monitor yourself.
  • 0
GLUTEN FREE 4/4/08. LEGUME/SOY FREE 5/15/08. YEAST FREE. CORN FREE. GRAIN FREE. DAIRY FREE. I am eating all meats, eggs, veggies, fruits, squash, nuts and seeds. I just keep getting better every day. :)

Do not let any of the advice given here substitute for good medical care. Let this forum be a catalyst for research. Find support for any post in here before you believe it to be true. Arm yourself with knowledge. Let your doctor be your assistant. Listen to their advice, but follow your own instincts as well. Miracles are within your reach. You can heal!

#11 georgie

 
georgie

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 963 posts
 

Posted 11 September 2008 - 12:57 PM

I have been reading on the Medhelp.org site that selenium is thought to reduce thyroid antibodies for a while up to 9 months. So I am trying that at 100 mcg daily for now.

If you have Thyroid Antibodies ( ie Hashimotos or Graves) then you really should be monitored by a Dr. Armour Thyroid is the best med I have found to reduce Antibodies and believe me - over the years I had tried everything I could as my Dr would not. Since changing Drs the problem was solved :lol:
  • 0


Diagnosed May 2006 - Hashimotos Thyroid after being diagnosed in 1977 and told it didn't matter.
Diagnosed June 2006 with adrenal insufficiency.
Diagnosed June 2006 as Gluten Intolerant after I failed the Challenge Diet. Negative blood test.No biopsy.
Diagnosed June 2006 as B12 low. Needed weekly injections for a year.Still have them every 2 weeks.
Trialled Dairy Free Diet and reacted positively to that challenge in January 07.
News Flash! Coeliac Genetic Testing done April 08 . DQ2 Positive !
Diagnosed July 2010 FODMAP. Limits on Fructose, lactose, polyols, fructans. NO ONION! But I can have hard cheese, butter and cream again!!!

#12 jennsboys23

 
jennsboys23

    New Community Member

  • Members
  • Pip
  • 4 posts
 

Posted 13 September 2008 - 04:48 PM

I looked at my score again - I think I read the TSH incorrectly - it's 3.3 which is within normal range.

I went to the Nutritionist who works with my holistic dr - she put me on a completely natural diet (no more low fat or fat free anything!), lots of seeds, nuts, whey, flax, cod liver oil (retch!) and OHMYGOD real fat! She promises that I will lose weight (I work out regularly) and I trust her. Gluten I can live without - but thank goodness I can still eat peanut butter!
  • 0

#13 georgie

 
georgie

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 963 posts
 

Posted 13 September 2008 - 05:49 PM

I looked at my score again - I think I read the TSH incorrectly - it's 3.3 which is within normal range.


Sorry to say but TSH of 3.3 with TPO Antibodies of 259.6High ......is Hashimotos Thyroid Disease. You need treatment for that .... :( A normal TSH is around 1. And Thyroid Antibodies overrule the TSH results.....you need those Antibodies brought back down to zero.
  • 0


Diagnosed May 2006 - Hashimotos Thyroid after being diagnosed in 1977 and told it didn't matter.
Diagnosed June 2006 with adrenal insufficiency.
Diagnosed June 2006 as Gluten Intolerant after I failed the Challenge Diet. Negative blood test.No biopsy.
Diagnosed June 2006 as B12 low. Needed weekly injections for a year.Still have them every 2 weeks.
Trialled Dairy Free Diet and reacted positively to that challenge in January 07.
News Flash! Coeliac Genetic Testing done April 08 . DQ2 Positive !
Diagnosed July 2010 FODMAP. Limits on Fructose, lactose, polyols, fructans. NO ONION! But I can have hard cheese, butter and cream again!!!

#14 ShayFL

 
ShayFL

    ShayFL

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,393 posts
 

Posted 14 September 2008 - 06:16 AM

YOU ARE HYPOTHYROID. PERIOD.

I was severely hypothryoid with a TSH at 2.8. I dont feel good unless my TSH is below 0. It is currently .008 and I feel really good. Everyone is different with regard to what TSH makes them feel well. But the American Association of Clinical Endocrinologist ALL agree that 3.00 is the cut off. And there is talk of them lowering it even more as more data comes in. I predict at some point in the future it will be dropped to 2. My hope is that someday it is eliminated all together.

You have Hashimotos Disease. You MUST get those antibodies down or eventually you could end up like my Mom (no thyroid left). And she developed thyroid cancer as a result of not getting it treated in time. I fear that if you are not being treated by a knowledgeable doctor, you can do yourself great harm.

According to the American Association of Clinical Endocrinologists
(AACE), 1 in 10 Americans - more than the number of Americans with
diabetes and cancer combined - suffer from thyroid disease, yet as
many as half remain undiagnosed. In order to counteract this lack of
awareness and educate the public about the prevalence of thyroid
disease, diagnosis, and treatment, in January, AACE continued its
annual thyroid awareness campaign. The 2003 campaign, Hiding in Plain
Sight: Thyroid Undercover, launched as part of the January 2003
Thyroid Awareness Month.

According to the AACE, until November 2002, doctors had relied on a
normal TSH level ranging from 0.5 to 5.0 to diagnose and treat
patients with a thyroid disorder who tested outside the boundaries of
that range. The new guidelines narrow the range for acceptable thyroid
function, and AACE is now encouraging doctors to consider treatment
for patients who test outside the boundaries of a narrower margin
based on a target TSH level of 0.3 to 3.04. AACE believes the new
range will result in proper diagnosis for millions of Americans who
suffer from a mild thyroid disorder, but have gone untreated until
now. AACE estimates that the new guidelines double the number of
people who have abnormal thyroid function, bringing the total to 27
million.

AACE made the decision to narrow the range because of data suggesting
many people may have low-level thyroid problems that could be improved
with treatment and a narrower TSH range will give doctors reason to
more carefully consider those patients.
  • 0
GLUTEN FREE 4/4/08. LEGUME/SOY FREE 5/15/08. YEAST FREE. CORN FREE. GRAIN FREE. DAIRY FREE. I am eating all meats, eggs, veggies, fruits, squash, nuts and seeds. I just keep getting better every day. :)

Do not let any of the advice given here substitute for good medical care. Let this forum be a catalyst for research. Find support for any post in here before you believe it to be true. Arm yourself with knowledge. Let your doctor be your assistant. Listen to their advice, but follow your own instincts as well. Miracles are within your reach. You can heal!




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: