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Newly Diagnosed: Horrible Mood Swings
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Hi Everyone- I was just diagnosed with Celiac's (I tested positive for one of the antibodies and I have been gluten-free or at least attempting to be for the last thireteen days. Physically, I am feeling much better but my God, the mood swings! I thought they were supposed to get better when you went gluten-free.

I have a history of depression and anxiety (shocker) and am on several medications for this but nothing seems to be helping. I am seeing my gastroenterologist and psychiatrist next week (one of my medications is not gluten free) but I'm wondering if anyone else felt depressed, irritable and angry after going gluten-free. I also had a ski accident that landed me in six weeks of pohysical therpay and a lot of pain in December so it's been a heck of a two months. Just want some support, encouragement and advice. Thanks so much, Beverly :rolleyes:

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If one of your meds is not gluten free that can be causing a reaction. The tiniest bit can cause damage to your intestine whether you feel it or not. Also, don't expect all the symptoms to go away overnight. It took me a few months to get feeling much better. Some people can feel better quick but for some people it takes longer. But you are not going to get better while you are still on gluten because you are not on a gluten free diet. I would find a med. similar to what you have that is gluten free. There is a list of meds that are gluten free on here. Also, check your lipsticks,lotions, and shampoos. These can also cause things to slip into your system and there are separate posts on that throughout this board. Whenever I accidentally ingest gluten I get nausea but along with that I get moody and anxious. So you could easily be reacting to that. Hope you feel better soon and good luck :D

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I've had the worst moodswings and have dealt with depression and anxiety for almost a year. I am thanking celiac for that.

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go off that medication because even though it is supposed to be making you feel better, it could be causing the mood swings because it has gluten in it

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Yes--you really shouldn't take that medicine. Gluten causes or has caused mood swings in many of us here--myself included--and eliminating all gluten should, on its own, help it. It may take a few weeks, but it's worth it if you can solve the problem.

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You need to speak with your doctor immediately. Depending on the medication, quitting it "cold turkey" could do some severe damage also!!!! So against the advice of others, please do NOT stop taking your meds until you talk to your doctor. BUT you do need to speak with him/her immediately. Taking meds that contain gluten isn't safe either, but the effects of stopping a medication cold turkey could also be very severe.

-Jessica :rolleyes:

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"I have a history of depression and anxiety (shocker) and am on several medications for this but nothing seems to be helping. I am seeing my gastroenterologist and psychiatrist next week (one of my medications is not gluten free) but I'm wondering if anyone else felt depressed, irritable and angry after going gluten-free."

For me, gluten contamination causes serious depression. It is possible that going off gluten completely will ease your depression/anxiety issues. DO NOT QUIT TAKING YOUR MEDS COLD TURKEY!! I was on Lexapro, and it had to be weaned off gradually. Stopping suddenly causes serious problems, including inability to sleep and psychosis. Talk to your doctor. Even the tiny bit of gluten in one of your meds is enough to make you sick.

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We really should not be recommending to anyone that they stop taking any prescription medications without first consulting with their physician. This could have very dire consequences, depending on the medical condition and the drug concerned.

Tom

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Thanks Everyone- I've been dealing with depression and anxiety long enough to know that I could never go cold turkey! But I thank you all for responding. I have been working with my psychiatrist to slowly wean off the medication (it is HELL- let me tell you!) because he agreed with what you all said- that it was the medication causing the mood swings. They are getting better as I taper down but I feel like a raving lunatic right now!

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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