Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Dizziness/lightheadedness


Niteyx13

Recommended Posts

Niteyx13 Explorer

I have been gluten-free for several months now. The last couple of months, though, I have had waves of dizziness and I feel lightheaded much of the time. I was at the mall last night, and I almost passed out. I also seem to get car sick feeling when I ride in the passenger seat. This is really scaring me, and I just wanted to know if anyone else has had a problem like this? My mother who is an RN thinks I may not be getting enough carbs. Opinions? Thank you!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jmengert Enthusiast

I could have written what you just posted, my symptoms are so similar. I, too, have been gluten-free for a couple months now, and I'm now struggling with dizziness. I recommend going to the doctor to get your different "levels" checked: blood sugar, thyroid, potassium, iron, etc., as dizziness can be a symptom of these things. However, all my bloodwork came back normal, so I'm just assuming my body is still working things out being gluten-free. It's scary to be out and almost pass out--I can sympathize--let's just hope we start feeling better soon!

Link to comment
Share on other sites
KaitiUSA Enthusiast

When I get up too fast or am low on food I will get dizzy and have a black out for a few seconds so i usually have to stand right where I am till it goes away. I have never had this outside of my house though and it doesn't happen to often. My blood pressure tends to be on the low side and I was told that what happens to be is a result of low blood pressure. I think blood sugar may be a factor as well. It also could be your body still adjusting to the changes in food.

Link to comment
Share on other sites
jknnej Collaborator

I've posted on this topic several times now. I even started one thread on it. Since going gluten-free, I get dizzy, lightheaded, and nauseated. My stomach feels much better pain wise, but these other symptoms are kind of cumbersome. I am hoping the longer I am gluten-free, they will disappear. The dizziness is not as bad as it was at first, but now I do get nauseated after eating.

I'd love to know how to stop it, but I think, honestly, our blood completely changes after going gluten-free; kind of like how your blood thins when you move to a new climate. My guess is, just like when I first moved to Phoenix and my blood thinned because of the heat, it will probably take about a year to subside.

Link to comment
Share on other sites
Guest Viola

This seems to be a common problem with us. It turned out to be a combination of things for me. Low iron, even though I've been gluten free for many years, I can't seem to keep the iron up. But the big thing turned out to be 'acid reflux disease' Although I didn't have the usual problem with 'heart burn' The acid was going up and burning my esophagus and limiting my breathing. The esophagus was going into spassam and I wasn't breathing deep enough to get enough oxygen in. With daily treatment of this disease, I don't have the dizzy spells quite so often.

Link to comment
Share on other sites
plantime Contributor

Wow! Talk about a timely topic! I spent the last few days with my head just reeling. It turns out I had glutened myself, and it was part of the reaction I was having. I also get lightheaded and dizzy when the weather changes, it is my body's own reaction to the barometric pressure changing. It is scary, I was afraid to leave the house alone!

Link to comment
Share on other sites
Newbie Rookie

Hey all... I've been gluten-free for a year and 2 months now. I just wanted to add to this thread that I've been feeling EXACTLY the same in regards to the dizziness and lightheadedness... I went to my doctor today who gave me some medicine for it, as well as something for acid build up ( which might be causing the pain in my stomach that I still have). He is also sending me to a specialist of internal medicine. Hopefully if I find something out that's helpful, I will let you know. The dizziness and lightheadedness makes me feel sooo nauseated as well. It's the worst in the mornings but is there all day. It's not just when I get up fast either... it's constant. Hope you're all doing ok.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Niteyx13 Explorer

Thank you all for your responses. I think I must have slipped somewhere and eaten gluten. It's weird, because I have never totally felt better yet, so sometimes I think there could be something else wrong with me. Had my thyroid drawn again friday, still awaiting those results (I am hypo). Those with thyroid disease: has anyone found that going gluten-free made their thyroid go nuts? Mine was doing very well with meds before I went gluten-free. Sorry for all the questions.

:)

Link to comment
Share on other sites
MySuicidalTurtle Enthusiast

I have had this problem since going glutenfree, too. Somedays it's bad but most it's okay to deal with.

Link to comment
Share on other sites
KaitiUSA Enthusiast

My thyroid has been off since I had celiac yes. I first was hypo now it's hyper. It's still in beginning stages so my gland is still in the normal range it is just overactive.

Link to comment
Share on other sites
ianm Apprentice

I used to get a lot of dizzy spells and would black out for several minutes prior to going gluten-free. Over the past year that has happened only once. If I get an accidental hit of gluten I start to feel light headed. It usually happens within minutes of eating the poisoned food so I can usually avoid eating too much of it.

Ianm

Link to comment
Share on other sites
jknnej Collaborator

The $100, 000 question is: why do we get dizzy AFTER going gluten-free? I never had anything like it before going gluten-free, even though I had a ton of stomach pain.

Link to comment
Share on other sites
KaitiUSA Enthusiast

I get especially dizzy if I am tired and it got worse the first few months of going gluten free and after that it started getting better but I have been researching about things that cause dizziness. Has anybody had their blood sugar checked? Or maybe it could just be the change in our diet that our bodies are dealing with.

Link to comment
Share on other sites
Niteyx13 Explorer

Maybe it is a combination of things. I got some gluten-free shakes that have protein and other vitamins in them, we'll see if they help me feel better also.

Link to comment
Share on other sites
mopsie Newbie

I've had lightheadedness too and had my blood sugar checked and it showed the low end of normal, the dr. didn't think that was low enough to cause my symptoms, yet my symptoms go away when I have something to eat. :D

Link to comment
Share on other sites
tarnalberry Community Regular

you could be displaying mildly hypoglycemic signs - ones that a doc may not point to on a lab result, but ones that are still causing you problems.

try to make sure your meals are all balanced, and that you don't eat anything on it's own that's really high in sugars. (this is different than what a diabetic who took too much insulin would do in a state where their blood sugar is too low.) make sure meals and snacks are balanced between fat/protein/carbs, and light on the sugar! ;-)

Link to comment
Share on other sites
  • 2 weeks later...
jcgirl Apprentice

I have had the same situation sense going gluten-free as well. For me, I notice it more in the morning on my way to work which is scary. I usually feel better after I eat something. My routine is to have some fruit for breakfast once I am settled in at my desk. I should eat before I leave but that would require getting up earlier and I am still having trouble sleeping at night. My mother has tested my sugar level a few times when I felt dizzy and it always comes back on the low side of normal.

Link to comment
Share on other sites
red345 Apprentice

Verify that your fluids/electros have been checked recently, magnesium included. Ongoing dizziness is most often associated to this fact if vertigo has been ruled out.

Link to comment
Share on other sites
Guest BellyTimber

This is very familiar to me as well. Sometimes it goes away if I have a substantial "elevenses", sometimes it persists.

Some days I don't get it at all! :lol:

Michael

Link to comment
Share on other sites
plantime Contributor

According to my doc, I have normal blood sugar levels, but high insulin levels. I have noticed that I will get light-headed and headachy if I go too long without food, so I have been trying to eat smaller meals more often. I also will get extremely dizzy shortly before storms, so I think maybe I am reacting to barometric changes, as well. Anyone that knows anything about normal sugar with high insulin is welcome to jump in and advise me. My doc only told me to lose weight. Period. That is supposed to be the cure for everything that ails me! :huh:

Link to comment
Share on other sites
winki4 Apprentice

I have been gluten-free for 10 years now and found myself dizzy and lightheaded only when in my nephews car. He told me later he spilled beer in his car many weeks earlier. I only get sick in his car so I correlate the gluten in the beer is hanging around in his carpet and upholstery. I had no idea I was that sensitive!

Wendy

Link to comment
Share on other sites
Lesliean Apprentice

You all covered the dizzy end so well I know you are on the right track. :lol:

But to Niteyx13 's mom about the carbs. There is a world out there of carbohydrates that are not gluten containing including: corn tortillas, polenta, corn pasta, rice, rice cakes, rice pasta, sweet potatoes, potatoes, butternut and acorn squash, gluten free breads, nuts, gorp, beans, corn chips (like Que Pasa with unadulterated oil and no flour).

I know I still crave bananas (potasium) and salt (Braggs Aminos or wheat free soy sauce but not too much). I hear lots of people talk about gluten and rapid heart beat and irregular heart beat and might that tie into dizziness too? My heart rate and BP are down and my irregular heart beat is gone.

Link to comment
Share on other sites
  • 6 years later...
Bill Clar Newbie

The $100, 000 question is: why do we get dizzy AFTER going gluten-free? I never had anything like it before going gluten-free, even though I had a ton of stomach pain.

Mods, I hope the thread bump is okay. I didn't feel the need to start a new topic.

I'm glad I found this forum and that I'm not the only one gets lightheaded and/or dizzy.

I've been gluten free for almost two months. After the first two weeks my dizzy spells began. I dealt with it the best I could by playing web doctor. I thought it was my influx of fish oil or Omega 3s or 5-HTP (for depression) or L-Tyrosine. I cut back on some of these supplements to no avail.

A few weeks ago I caved and talked to a holistic doctor. He suggested a deficiency in potassium and electrolytes. He says I'm taking in a larger amount of nutrients, now that I'm healthy and gluten free. These nutrients require water, of which I drink enough, and electrolytes.

So, I started eating about 1-2 bananas per day and taking "elete" electrolyte mix with water for a total of 1g of potassium added to my diet. The extra potassium immediately reduced the dizziness but didn't get rid of it completely. It was manageable. I could safely drive my car and concentrate at work.

A few days later, my energy dropped, I became irritable, my appetite diminished, and I felt nauseated. In panic mode I played web doctor again and discovered that magnesium and potassium go hand in hand. You can't correct potassium deficiency if you're magnesium deficient. My new symptoms were related to magnesium deficiency. I applied magnesium oil twice a day and within a day the new symptoms went away. I was back to my slightly dizzy self.

I'm on the mend but I hit a dizzy spell this morning that's stronger than previous days.

I've had bloodwork done for various doctors (psychiatrist and general physician) and my thyroid, iron, and sugar levels are good. No actual testing for elctrolytes though.

Link to comment
Share on other sites
Reba32 Rookie

avocados are better for potassium, and with less sugars than bananas. A banana is about 14.43 grams of sugar and only 422 mg of potassium each. An avocado is about 975 mg of potassium and only 1.3 g of sugars. Plus, the avocado has lots of healthy fats and fibre, the banana, not so much.

Link to comment
Share on other sites
Bill Clar Newbie

avocados are better for potassium, and with less sugars than bananas. A banana is about 14.43 grams of sugar and only 422 mg of potassium each. An avocado is about 975 mg of potassium and only 1.3 g of sugars. Plus, the avocado has lots of healthy fats and fibre, the banana, not so much.

Thanks Reba. I'll give that a try.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,091
    • Most Online (within 30 mins)
      7,748

    Grammar B
    Newest Member
    Grammar B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...