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Celiac? Left Side Abdominal Pain, Sharp Chest Pain And More >>


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44 replies to this topic

#16 BRUMI1968

 
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Posted 16 November 2008 - 10:08 AM

My physical therapist thought it might well be a spasm of my diaphragm or muscles around there, since I have recently started QiGong, which has a lot of breathing I'm not used to.
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#17 GFinDC

 
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Posted 18 November 2008 - 06:23 AM

I've had a pain in my left side under the ribs for many years. It has mostly retreated since going gluten-free last year though. Flares up some times but not as bad. I think it is related to intestinal symptoms though not positive. For years before I went gluten-free, I used to lay in bed trying to sleep but couldn't. I found that laying on my left side a few minutes, then on my right side a few minutes, would help get things moving around inside. Some of the gas would come out. I believe that sometimes the pain is from inflamed intestines being blown up like a balloon from too much gas. I also think that if your intestines are inflamed and not working normally they can slow down and not be able to get things moving as normal. Basically it can just plain hurt a lot. I use psyillium husks in my food for extra fiber, and eat oatmeal. I know some people say oatmeal bothers them but it sits well with me. gluten-free made a big improvement in my GI symptoms and pain.
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#18 Bell

 
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Posted 18 November 2008 - 08:18 AM

My pain was in front under my ribcage and did not move to the back; not having just eaten fatty thing...well wait, maybe walnut butter; have been more constipated than usual for the past few weeks, but that day was a bit better; burping a bit more than usual, but only during eating time. I had eaten lots of cabbage the previous days, as I had a hankering for ginger stir-fry.



I don't know about the spleen - and my pain is behind my ribs, but I got it today a few hours after a greasy lovely omelette, and then a few hours later 2 little coconut macaroons. Could it be related to fat? How do we know? BTW both times I've had it since this thread began it's been followed by painless (no cramping) diarrhea.

??

-I had been gardening like billy-o in between all this, in case you were thinking I was a little piggy!
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#19 Rebecca's mom

 
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Posted 30 December 2008 - 03:54 PM

I just wanted to say that I have that same left side (right under the rib cage) abdominal pain. I have had it for four years now and the first time I had it, It was also a really sharp pain that made it hard to breath or even move. I went to the ER and they said that it was just gas after testing my appendix. Since then I have had gas, that same sharp pain in my left abdominal, anywhere from diarrhea to constipation changing weekly. The doctors diagnosed me with IBS, but the medicine doesn't help, so I don't take it. I have also been diagnosed with a Hypo Thyroid and then three yrs later undiagnosed and given a diagnosis of Polycystic Ovarian Syndrome. I am at a loss of what to do. I am 23 and can't get a doctor to take me seriously. Any suggestions would be much appreciated. Thanks.


Sweetie,
Have they tested you for gallstones? I had the same pain when I was pregnant with my 4th child, and thought that it was heartburn - 6 months later, I was having my gallbladder removed because the pain didn't go away after my daughter was delivered.

Also, given that you have been diagnosed with POSD, chances are very good that you have either Celiac Disease or Gluten Sensitivity. Many women find that after they try a gluten-free diet, they are able to conceive and carry a pregnancy to term. Please consider asking your doctor to test you for Celiac Disease, and don't be afraid to INSIST on it if he/she isn't willing to entertain the possibility that you might have it.

Even if your test results come back negative, you may have a sensitivity to gluten. The Celiac medical community just released a statement earlier this year stating that Non-Celiac Gluten Sensitivity (NCGS) is a valid condition, and that most people who have this condition will have many of the same health concerns as people who have been diagnosed with Celiac Disease. The only difference between the two disorders is that the system of a person with celiac disease will perceive gluten as an invader and will start to attack it (thus causing an auto-immune reaction), while the system of a person with NCGS will perceive gluten as an irritant and the intestinal walls will swell to try and eliminate the gluten from the system. In both cases, the intestinal walls are affected and the surface area of the villi is reduced, causing malabsorption (and if not treated, a whole range of health problems later on).

I hope that you are able to find relief for your pain!

Love from Fort Worth, Texas
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Teresa Koch
Fort Worth, Texas


Youngest daughter diagnosed with celiac disease April, 2008

Self-diagnosed Dermatitis Herpetiformis after daughter's Celiac diagnosis
Confirmation of HLA-DQ*05*0201 March, 2009 (Quest Diagnostics)


Whole family Gluten-Free since April, 2008


Mom - HLA-DQ 2.5, 3.7 (Confirmed celiac)
Dad - HLA-DQ 1.6, 2.2 (Non-Celiac Gluten Sensitive)
DD#2 - HLA-DQ 2.2, 3.7 (NCGS)
DD#3 - HLA-DQ 1.6, 3.7 (NCGS)
DD#4 - HLA-DQ 2.5, 2.2 (Confirmed celiac)
DD#1 - Away at college


#20 beterraba

 
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Posted 30 December 2008 - 08:19 PM

Hi!

I have not been diagnosed either...but I have this pain all the time. It's a habit for me to rub the area! I'm always told it's gas, and then in college I had mono, and they said it was my spleen, then that was over and it was gas again! Now I'm wondering....

I am counting the days to see the GI doc and get scoped. I feel so yucky. My stomach is like a rock it's so filled with air. Of course all my lab work has been normal, just low WBC's. I haven't had a celiac panel. I'm going to talk to the doc, maybe he'll just order it for me. I ignored this for so many years, but it's getting worse.

Does anyone else feel bad when they don't eat too, and feel a little hungry but also nauseated?
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#21 Billygean

 
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Posted 02 January 2009 - 04:07 AM

Oh mono and celiac - story of my life!

I too have the left side pain, behind my ribs, just feels like something's pushing against the ribs. It pretty much went away and came straight back when I did a gluten challenge...

BG
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Gluten, dairy and caffeine free since 22nd June 2008. Still have a caffeine withdrawal headache ;o)

#22 lbd

 
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Posted 02 January 2009 - 06:16 AM

Yes, I have this same pain - to the point that I thought I was having a heart attack. I have been gluten free for months then accidentally ate what I thought was gluten-free food and was not (we've all been there, I'm sure). The pain showed up the next day. It took a good week for the pain to subside. It feels nerve-related to me. When I get glutened, my symptoms are almost always neurological - migraines, back pain, visual disturbances, and brain fog. The other thing is that there was extreme heat in this area, like something is inflamed.

This pain seems to originate just below my shoulder blade, then wraps around to the sternum and is a squeezing, intense pain which worsens with deep breaths. I had similar pains 15 years ago when I caught chicken pox from my daughter - the doctor then said I had symptoms of shingles and chicken pox together. I had far more pain than itching. Shingles originates in the nerve endings where the chicken pox virus likes to reside.

I was glutened over Christmas as well, though not to the same extent as before. I ate what I thought was a safe chocolate only to find out they were handmade candies with Oreos inside! I have had a little remnant of the same pain since, though not nearly as intense.

I find it extremely interesting that so many have had the same experience. This seems to be unique to gluten sensitivity. I searched a couple of other boards for "chest pain" when it happened to me the first time, and I got several hits on those boards as well. I think this might just be another symptom that the medical community has no clue about, yet because of forums like this, we recognize how many people have the same thing.

laurie
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#23 leethinker

 
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Posted 11 May 2009 - 04:02 AM

Hi there. I just wanted to add to this thread... I too have that wierd pain on the left side under my ribs. In fact that is the first symptom that eventually made me go to the doctor about a year ago. Unfortunately, I'm still trying to get a doctor to take it all seriously and help me find a diagnosis. Good luck to you all!
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#24 gfb1

 
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Posted 11 May 2009 - 05:07 AM

[snip]
- upper left side abdominal pain
- sharp chest pain at times
[snip]

generally this type of intermittent pain after eating -- usually (but not always) distinguished by pain radiating up to the neck/shoulder region -- is caused by irritation of the vagus nerve and can be caused by a variety of factors, ranging from esophagitis, pancreatitis & gastritis. all possible secondary symptoms of celiac disease.

usual disclaimer: you can't be diagnosed over the internet. there is certainly the possibility of more severe illnesses that could cause this pain.
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#25 SLB5757

 
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Posted 11 May 2009 - 05:56 AM

I'm a 24m and have been having gastrointestinal problems for about 8 years or so. I've been tested for almost everything under the sun (endoscopy, colonoscopy, barium swallow, stomach biopsy, heidelberg test etc.) and they can't find anything. Every test comes back normal and I'm so desperate to figure this out and turn my life around.

My symptoms are as follows:
- upper left side abdominal pain
- exhausted feeling all the time
- sharp chest pain at times
- shortness of breath
- bloating & gas after eating
- very deep burping
- have to eat very slowly (1-2 hrs for a normal meal)
- some constipation
- can't gain weight and never have been able to
- pale skin & ridges in finger nails

I had a stomach biopsy 4 or 5 years ago but it came back borderline and the doc said I was just gluten sensitive and diagnosed me with IBS. I've been reading a bit about latent celiac and trying to figure out if celiac might really be the culprit. I just can't seem to find anything else it might be. Last week I was tested for pernicious anemia but you guessed it, the test came back normal. I'm really skinny and look anemic but all of the levels are normal.

Thank you so much in advance for any help you can provide!



Those are my EXACT symptoms.....down to a "T" !!! If you figure anything out - pleaseeee let me know as I am still awaiting a diagnosis. I am on Nexium but it does nothing for the Sharp left side pain, bloating and Gas, deep belching, underweight, or constipation issue. I like you am pale and have the ridges as well.
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*Multiple allergies including IGE positive RAST to Wheat, Rye, Barley and Oats.
*Diagnosed with IBS 3/09.

#26 Salax

 
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Posted 11 May 2009 - 08:23 AM

I too have the left side pain, upper and under my last rib area, sharp stabbing. I found that whenever I ate casein it was "active" no casein no pain. Strange....

Best of luck. ;)
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Salax
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Celiac Disease - Gluten Free since Feb 2009,
Cow Milk &  Corn free - June 2012,
Gall Bladder Failure - Removed July 2009,
Colitis, Hashimotos Disease, & Diverticulitis

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
( )_( )
(='.'=)
(")_(") Eat your vegetables!


#27 PhillyCeliacTriathlete

 
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Posted 11 May 2009 - 04:34 PM

I'm a 24m and have been having gastrointestinal problems for about 8 years or so. I've been tested for almost everything under the sun (endoscopy, colonoscopy, barium swallow, stomach biopsy, heidelberg test etc.) and they can't find anything. Every test comes back normal and I'm so desperate to figure this out and turn my life around.

My symptoms are as follows:
- upper left side abdominal pain
- exhausted feeling all the time
- sharp chest pain at times
- shortness of breath
- bloating & gas after eating
- very deep burping
- have to eat very slowly (1-2 hrs for a normal meal)
- some constipation
- can't gain weight and never have been able to
- pale skin & ridges in finger nails

I had a stomach biopsy 4 or 5 years ago but it came back borderline and the doc said I was just gluten sensitive and diagnosed me with IBS. I've been reading a bit about latent celiac and trying to figure out if celiac might really be the culprit. I just can't seem to find anything else it might be. Last week I was tested for pernicious anemia but you guessed it, the test came back normal. I'm really skinny and look anemic but all of the levels are normal.

Thank you so much in advance for any help you can provide!

You would do best on a Paleo Diet. It is the cleanest diet for celiacs, yet the hardest. If you can do it, like I have for 4 years.... you will feel no symptoms. U will just be very hungry!! YUMMY

Check out this site from some triathlete kid who does gluten-free and Paleo Diet. www.glutenfreetriathlete.com
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#28 Ms. Skinny Chic

 
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Posted 11 May 2009 - 05:05 PM

I too have the left side pain, upper and under my last rib area, sharp stabbing. I found that whenever I ate casein it was "active" no casein no pain. Strange....

Best of luck. ;)



I had pain in the left side alot, until I was diagnosed by my physician and placed on the diet.
It was a truefuly painful period of my life.
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#29 caligirl2001

 
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Posted 12 May 2009 - 03:31 PM

Yes, I get that pain as well. For me, it does seem to be related to the fat content of what I eat, and also happens when I get glutened. It is 2-3" to the left of my sternum, and is sharp and burning. Drives me crazy, not to mention being painful. It was constant before I went gluten free, but now comes and goes.
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Positive response to elimination diet November 2008
Gluten free since November 2008
Dairy free since March 2011

#30 bellypain

 
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Posted 24 June 2009 - 07:28 AM

I can not tell you how many hours I spent on the Internet trying to find these symptoms for the last year and a half, especially the upper left ab pain, to figure out what was causing me pain. I went to the doctor. He thought it was GERD. Gave me an OTC (prilosec) which only kind of works after taking it for days. Then I went for an ultrasound. I didn't hear anything back for 8 months. Then my doctor decided to send me to a GI doc. I hadn't had any of the symptoms for a couple of months so I thought "what's the big deal". Turns out that the ultrasound should my liver was uneven in texture. I have no idea what that means. I had more rounds of tests to make sure it wasn't hepatitis or some other liver problem. It wasn't anything detectable and my liver enzymes were fine. It's a mystery that my doctors seem willing to just sit on rather than investigate more thoroughly...great. <_<

So now I have pain and I finally narrowed it down to gluten b/c every time I eat something with gluten I get a major pain and tons of gas. I'm tired all the time. I have pain in my hips, my feet and now my knees. They cramp, ache and burn. I have constipation unless I eat a ton of veggies and fruit. Then I get diarrhea ( I hate that I can't trust my body). My female parts are behaving as if I'm menopausal (I'm 34). My lower back hurts and now I'm experiencing kidney like pain even though I drink the advised daily water amount.

I just recently went gluten free and have noticed some improvements. It's been hard trying to find out where it is hiding (my coffee creamer seems to set it off). I haven't gone back to my doctors b/c frankly I no longer trust doctors. I don't like paying literally and figuratively for their guessing games and dismissals.

I've had some kind of stomach on and off all my life but a year ago is when it took off. Two things happened at that time. One, I quit smoking (wasn't a heavy smoker but did in the evening) and two, I got really sick with some weird virus (which was suspiciously like Mono or Strep). After that is when the pain started.

I don't know my own body anymore. I'm so frustrated. :(
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