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Nasonex Not Gluten-free


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27 replies to this topic

#1 ArtGirl

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Posted 18 September 2008 - 05:10 AM

Yesterday I was given a sample of Nasonex from the doctor for treating a sinus infection. Nothing in the ingredients list looked bad to me. So, I used it.

Bad choice. Am sick this morning and it feels a lot like a glutening.

So, (hindsight being so much better than foresight) I did a search on this forum for Nasonex. Found a 2007 thread and, sure enough, it is NOT GLUTEN FREE!
Here's the link if you want to read what they said...
http://www.glutenfre...showtopic=36053

The manufacturer, when asked, said that they do use gluten ingredients in the formulation. I'm not going to call them because my gut reaction - pun intended :D - is enough to confirm this.

The poster did say that Nasacort AQ is gluten-free (at least, at the time of the post). I think I'll check with them first if the doctor switches me to that.
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Valda
Enterolab results: ...two genes for gluten intolerance ...casein intolerance
other sensitivities: corn, eggs, soy, potato, tapioca
Hypoglycemic
Sensitivity to high EMFs [electromagnetic frequency] (limits my time in front of the computer)
Living a healthier, happier life.
-------------------------------------------------------------------------------------------------------------------
If I take the wings of the morning, and dwell in the uttermost parts of the sea, even there shall thy hand lead me, and thy right hand shall hold me.Psalm 139: 9,10

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#2 jerseyangel

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Posted 18 September 2008 - 05:23 AM

I took Nasacort AQ up until about a month ago, and it was fine. I'm now on the generac for Flonase, which also seems to be ok.

I called Roxane Labs (the makers of the generic Flonase) and they refused to give me any ingredient information. My pharmacist also called and they wouldn't give it to her either--telling her to refer to the ingredient list on the package insert. The ingredient list matches Flonase exactly, so I gave it a try and have been fine with it.

I would like to tell Roxane where they can stick it, but my insurance company has a terrible prescription program and I'd have to pay full price for a brand name. <_< I have ETD, so I need the spray.
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Patti


"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

#3 missy'smom

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Posted 18 September 2008 - 06:17 AM

Thank you for posting this. DS takes it for his allergies. He seems to think it helps but he doesn't sound like it helps enough. I wonder if it is wheat or barley that is the source of gluten. Ds reacted to wheat. I didn't even think to check on it because it's a nasal spray! I did check on the tablets he was prescribed. I'm going to call them, that way I can say that I verified it myself when we go in for the next check up with the allergist.
  • 0
Me: GLUTEN-FREE 7/06, multiple food allergies, T2 DIABETES DX 8/08, LADA-Latent Autoimmune Diabetes in Adults, Who knew food allergies could trigger an autoimmune attack on the pancreas?! 1/11 Re-DX T1 DM, pos. DQ2 Celiac gene test 9/11
Son: ADHD '06,
neg. CELIAC PANEL 5/07
ALLERGY: "positive" blood and skin tests to wheat, which triggers his eczema '08
ENTEROLAB testing: elevated Fecal Anti-tissue Transglutaminase IgA Dec. '08
Gluten-free-Feb. '09
other food allergies

#4 ArtGirl

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Posted 18 September 2008 - 06:21 AM

Glad to be of help. That's why I started the thread, since the other one was no longer active being a year old.

When you do contact Schering about the Nasonex, would you post their reply in this thread. Thanks.
  • 0
Valda
Enterolab results: ...two genes for gluten intolerance ...casein intolerance
other sensitivities: corn, eggs, soy, potato, tapioca
Hypoglycemic
Sensitivity to high EMFs [electromagnetic frequency] (limits my time in front of the computer)
Living a healthier, happier life.
-------------------------------------------------------------------------------------------------------------------
If I take the wings of the morning, and dwell in the uttermost parts of the sea, even there shall thy hand lead me, and thy right hand shall hold me.Psalm 139: 9,10

#5 missy'smom

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Posted 18 September 2008 - 06:32 AM

Just talked with them and they gave the same resonse that everyone got. CYA . The operator has his statement to read and that's all he knows or can find out(not to knock him-that's all the company gives him). When I asked about if it was due to potential CC or gluten ingredients or sources of ingedients changing(ie. switching from corn to wheat) he said all of the above. I did ask if the gluten was potentially from wheat or barley and he couldn't say. It's interesting listening to the ingredient list, it makes you wonder if you really want to be putting that stuff in your body! Along with the starch(corn), there was another ingredient that is sometimes derived from plant seeds and when questioed about whether those could be gluten containing seeds the response was a CYA "yeah".
  • 0
Me: GLUTEN-FREE 7/06, multiple food allergies, T2 DIABETES DX 8/08, LADA-Latent Autoimmune Diabetes in Adults, Who knew food allergies could trigger an autoimmune attack on the pancreas?! 1/11 Re-DX T1 DM, pos. DQ2 Celiac gene test 9/11
Son: ADHD '06,
neg. CELIAC PANEL 5/07
ALLERGY: "positive" blood and skin tests to wheat, which triggers his eczema '08
ENTEROLAB testing: elevated Fecal Anti-tissue Transglutaminase IgA Dec. '08
Gluten-free-Feb. '09
other food allergies

#6 ArtGirl

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Posted 18 September 2008 - 07:08 AM

It's my guess that the cellulose and citric acid would be a corn source, but could be from other grains. I suspect that they use whatever's the cheaper source at any given time, hense the "changing formula" statement that someone got from them last year.
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Valda
Enterolab results: ...two genes for gluten intolerance ...casein intolerance
other sensitivities: corn, eggs, soy, potato, tapioca
Hypoglycemic
Sensitivity to high EMFs [electromagnetic frequency] (limits my time in front of the computer)
Living a healthier, happier life.
-------------------------------------------------------------------------------------------------------------------
If I take the wings of the morning, and dwell in the uttermost parts of the sea, even there shall thy hand lead me, and thy right hand shall hold me.Psalm 139: 9,10

#7 Jodie2DQ2

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Posted 18 September 2008 - 07:46 AM

I have been using this all summer because I looked and it was on the gluten free meds website.(www.glutenfreemeds.com) Why would it be on the list? Does whoever creates that list even verify it before putting a list like that together. I have relied on it alot for medicines. Now I guess I know better! Very frustrating! Jodie
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#8 RiceGuy

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Posted 18 September 2008 - 07:46 AM

I find it almost astonishing that any company would put top allergens in a product aimed at relieving allergies :o :huh: <_< :rolleyes: But when you see all the junk they put in meds, it gets sorta expected after awhile. Then they tell people not to trust herbal remedies!

A Google search for herbal antihistamines turns up tons of stuff.
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A spherical meteorite 10 km in diameter traveling at 20 km/s has the kinetic energy equal to the calories in 550,000,000,000,000,000 Twinkies.

#9 RiceGuy

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Posted 18 September 2008 - 07:56 AM

I have been using this all summer because I looked and it was on the gluten free meds website.(www.glutenfreemeds.com) Why would it be on the list? Does whoever creates that list even verify it before putting a list like that together. I have relied on it alot for medicines. Now I guess I know better! Very frustrating! Jodie

That's a sort of "portal" site, most likely because someone acquired the domain name, but didn't pay their bill. If a site like that gets enough hits, the registrar keeps it active with more-or-less generic stuff, just to take advantage of the traffic. I'd have to guess the content is generated automatically. It really isn't maintained by anyone. Nobody checks or verifies anything on it.
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A spherical meteorite 10 km in diameter traveling at 20 km/s has the kinetic energy equal to the calories in 550,000,000,000,000,000 Twinkies.

#10 jerseyangel

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Posted 18 September 2008 - 08:00 AM

I find it almost astonishing that any company would put top allergens in a product aimed at relieving allergies :o :huh: <_< :rolleyes:

I heartily agree! Boggles the mind!

As far as the drug lists are concerned, I never use them myself. I call and verify one way or the other. I've found things on the lists to be outdated, and I only have checked on a couple of things.

Lists of any sort are subject to change.
  • 0
Patti


"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

#11 ArtGirl

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Posted 18 September 2008 - 08:14 AM

Along with making my own inquiries, I also rely on others' experiences as relayed in this forum. (Just wish I had checked here first before using the spray!)


OFF TOPIC.... I just noticed RiceGuy's signature statement

A spherical meteorite 10 km in diameter traveling at 20 km/s has the kinetic energy equal to the calories in 550,000,000,000,000,000 Twinkies


LOL :D :D :lol: :D :P
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Valda
Enterolab results: ...two genes for gluten intolerance ...casein intolerance
other sensitivities: corn, eggs, soy, potato, tapioca
Hypoglycemic
Sensitivity to high EMFs [electromagnetic frequency] (limits my time in front of the computer)
Living a healthier, happier life.
-------------------------------------------------------------------------------------------------------------------
If I take the wings of the morning, and dwell in the uttermost parts of the sea, even there shall thy hand lead me, and thy right hand shall hold me.Psalm 139: 9,10

#12 lovegrov

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Posted 18 September 2008 - 08:54 AM

That's a sort of "portal" site, most likely because someone acquired the domain name, but didn't pay their bill. If a site like that gets enough hits, the registrar keeps it active with more-or-less generic stuff, just to take advantage of the traffic. I'd have to guess the content is generated automatically. It really isn't maintained by anyone. Nobody checks or verifies anything on it.


At least as of recently that site was maintained by a pharmacist named Steve Plogsted. So where did you get your information about nobody checked anything?
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#13 RiceGuy

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Posted 18 September 2008 - 09:57 AM

At least as of recently that site was maintained by a pharmacist named Steve Plogsted. So where did you get your information about nobody checked anything?

It's pretty simple to tell such a site. For one, just look at where all the links refer to:
searchportal.information.com

Then, each link has an absolutely huge query in it, so it's basically going to another site to searching for stuff. So it in itself doesn't have any verifiable info. Only predefined search links, probably based on the domain name or whatever the site was intended to be when it was "real".

Additionally, all the lists of links - left, top, and main body of the page, are basically the same things.

Finally, the lower set of searches are just "popular" searches, and not even related to gluten-free anything.

There are a lot of sites like this, which as I said, tends to happen when a site goes under financially.

Looking it up, I found that the site is kept online by maltuzi.com, which is a domain name holding company. The blurb on their home page basically says it all.
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A spherical meteorite 10 km in diameter traveling at 20 km/s has the kinetic energy equal to the calories in 550,000,000,000,000,000 Twinkies.

#14 lovegrov

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Posted 18 September 2008 - 10:30 AM

I was unaware that Plogsted has stopped taking care of it.
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#15 lovegrov

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Posted 18 September 2008 - 10:36 AM

Oops, I wasn't paying close attention. I was talking about glutenfreedrugs.com, not glutenfreemeds.com. Yes, glutenfreemeds obviously is not actually being taken care of by anybody. However, Nasonex is listed as gluten-free at glutenfreedrugs as well.

richard
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