Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Families In Jacksonville Nc
0

15 posts in this topic

Just looking for some families in jacksonville nc area. My son was diagnosed in May and I have yet to meet another person with celiacs. It would just be nice to have some local support and discuss things!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi,

I'm in Asheville NC.

0

Share this post


Link to post
Share on other sites

Hi.

How old is your son? Our family is in Kure Beach. That's not too far from Jacksonville. The kids go to school in Wilmington. I have celiac disease as well as my 11 year old daughter. I also believe me my 10 year old son has it as well. He went gluten free over the summer and feels so much better. He doesn't want to have to eat gluten again in order to be tested, so I am leaving the choice to him.

Vicki

0

Share this post


Link to post
Share on other sites




Hi! I live in Jacksonville, NC and also haven't met anyone else with Celiac here. I was diagnosed in 2003 (age 17) and have been living (or at least trying to live) gluten-free since then. My sister also has it. Thanks for posting, I never would have known there was anyone here with it too!

0

Share this post


Link to post
Share on other sites
Just looking for some families in jacksonville nc area. My son was diagnosed in May and I have yet to meet another person with celiacs. It would just be nice to have some local support and discuss things!

Hello! My mom and my little sister are just getting ready to start the gluten free diet. They live in Wilmington, which if I remember is around an hour away. I live in Nebraska, so I'm not much help, but I have given them a lot of information, meal plans, etc... to help them out. It's so hard when you're first starting off and you feel kind of isolated!! I totally understand!

0

Share this post


Link to post
Share on other sites

Hi!

I am so happy to find someone else in Jacksonville with Celiac disease.(Not that I'm glad you have it. lol) I thought I was the only one. I was just diagnosed in February. Any ideas you may have for gluten-free shopping or restaurant suggestions will be greatly appreciated. Our supply here seems to be pretty limited. I usually just cook everything I eat other than fresh veggies and fruit.:(

0

Share this post


Link to post
Share on other sites

Hi!

I am so happy to find someone else in Jacksonville with Celiac disease.(Not that I'm glad you have it. lol) I thought I was the only one. I was just diagnosed in February. Any ideas you may have for gluten-free shopping or restaurant suggestions will be greatly appreciated. Our supply here seems to be pretty limited. I usually just cook everything I eat other than fresh veggies and fruit.:(

My sister and her daughter live in Sneads Ferry, right near Jacksonville both are gluten-free. Her daughter is going into first grade! Let me know if you want to meet, she is excellent at gluten free cooking!

0

Share this post


Link to post
Share on other sites

My sister and her daughter live in Sneads Ferry, right near Jacksonville both are gluten-free. Her daughter is going into first grade! Let me know if you want to meet, she is excellent at gluten free cooking!

I am staying in Wilmington visiting my sister for a few weeks and returning home soon.I found several places that catered to Celiacs. One was a food co op called Tidal Creek. They are located on Oleander. They label all their shelves to indicate the item is gluten-free. Their salad bar dishes are all indicated if gluten-free and warnings not to mix utensils. Another place is Lovey's Market in Landfall shopping center. Their salad bar also lists ingredients as gluten-free free or not.

Harris Teeter has a good selection of gluten-free foods as well. THey even carry the gluten-free beer which is very good.

hope that helps...!

0

Share this post


Link to post
Share on other sites

My sister and her daughter live in Sneads Ferry, right near Jacksonville both are gluten-free. Her daughter is going into first grade! Let me know if you want to meet, she is excellent at gluten free cooking!

Thanks! I could really use some tips for baking and frying. The recipes and commercial mixes I have tried so far taste fair, but are VERY dry. The flour seems to fall right off and end up burned in the bottom of the pan.

0

Share this post


Link to post
Share on other sites

I am staying in Wilmington visiting my sister for a few weeks and returning home soon.I found several places that catered to Celiacs. One was a food co op called Tidal Creek. They are located on Oleander. They label all their shelves to indicate the item is gluten-free. Their salad bar dishes are all indicated if gluten-free and warnings not to mix utensils. Another place is Lovey's Market in Landfall shopping center. Their salad bar also lists ingredients as gluten-free free or not.

Harris Teeter has a good selection of gluten-free foods as well. THey even carry the gluten-free beer which is very good.

hope that helps...!

Thank you!! I will have to make a trip to Wilmington soon. I appreciate your help. I can't wait to try these places.
0

Share this post


Link to post
Share on other sites

I am in Jacksonville, NC

My son was 7 when he was diagnosed and is now 14.

Would love to meet other families~

0

Share this post


Link to post
Share on other sites

Hi!

I am so happy to find someone else in Jacksonville with Celiac disease.(Not that I'm glad you have it. lol) I thought I was the only one. I was just diagnosed in February. Any ideas you may have for gluten-free shopping or restaurant suggestions will be greatly appreciated. Our supply here seems to be pretty limited. I usually just cook everything I eat other than fresh veggies and fruit.:(

There aren't too many places in Jacksonville itself. There is a small health store in the New River Shopping Center that offers a few gluten-free items. Food Lion on Piney Green Rd offers a good selection, Walmart also now offers gluten free items. If you are willing to travel Harris Teeters, Loveys and Tidal Creek in Wilmington offer gluten-free items.

As for restaurants, the best in town I have found so far is Outback Steakhouse, they have a dedicated gluten-free menu. Also Olive Gardens now offers a gluten-free pasta meal. Longhorn steakhouse also claims to offer gluten-free dining but I have not tried them yet. Just be sure to remind them that you do not want bread. Sometimes the waitresses that pack the food in take out bags forget and include the bread.

0

Share this post


Link to post
Share on other sites

We are in Jacksonville and have a 9 yr old daughter with Celiac.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,092
    • Total Posts
      920,314
  • Topics

  • Posts

    • WOW.  That looks eerily familiar.  Last December the temporary provider here at my local (rural) clinic gave me doxycycline to experiment with, but it was a mere ten milligrams.  Lol, no wonder it didn't help!  I'm glad you're feeling better.
    • I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more.   Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
    • I laughed out loud at the 'little notebook' comment!😂 It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again.  But the notebook comment is spot on.  Hopefully within the next 10 years restaurants will evolve enough to offer us a menu that clearly lists the delicious and extensive offerings that they have lovingly prepared just for us...and not just an ingredient list with nutritional values that take longer to read than War and Peace.   I am grateful that there are places to go that at least make the effort.  Who knows?  Eventually there may be restaurants which will have to offer menus with GLUTEN options available!
    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,123
    • Most Online
      1,763

    Newest Member
    ForeverYoung&GlutenFree
    Joined