Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Lets Talk About Coffee Filter Please!


DebNC84

Recommended Posts

DebNC84 Apprentice

I have been having an ongoing issue with my DH for the last two months - after getting a good handle on it for over a year. I thought I found the offending food - but then it came back - it acts like I've been injesting whatever it is, on a daily basis..because the itching usually subsides within a day or two after the initial injestion of gluten. It just dawned on me this morning... what about my coffee filters? other paper products in my home have been replaced but I never once thought about coffee filters. Do I feel like a dummy or what! i think i'm going to buy one of those washable strainer type filters.. but does anyone know if there is a brand of paper filters that are gluten-free?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced
I have been having an ongoing issue with my DH for the last two months - after getting a good handle on it for over a year. I thought I found the offending food - but then it came back - it acts like I've been injesting whatever it is, on a daily basis..because the itching usually subsides within a day or two after the initial injestion of gluten. It just dawned on me this morning... what about my coffee filters? other paper products in my home have been replaced but I never once thought about coffee filters. Do I feel like a dummy or what! i think i'm going to buy one of those washable strainer type filters.. but does anyone know if there is a brand of paper filters that are gluten-free?

I use the non-bleached, brown coffee filters and have not had any problems whatsoever. As this is a non-food item, I would be highly surprised if there would be any gluten in a coffee filter. You also may be sensitive to something else in your daily diet. Very frustrating as it can take a while to figure it all out. Good luck!

Link to comment
Share on other sites
msmini14 Enthusiast

What kind of coffee do you drink? I had a lot of trouble with Foldgers Custom Roast, I dont know why but I can not drink it at all. I do good with their standard roast. Are you drinking flavored coffee? Do you use creaner and if so is it gluten-free?

Link to comment
Share on other sites
DebNC84 Apprentice

i was drinking Folgers at one time (custom roast) and and had no problems... now i'm drinking maxwell house

no creamer - cut that out several months ago because the hydrogenated oils - just sugar and I've not tried to get into any flavored coffees because I don't know about the gluten aspect. one step at a time.

Link to comment
Share on other sites
lovegrov Collaborator

Never heard of a coffee filter that wasn't gluten-free.

richard

Link to comment
Share on other sites
DebNC84 Apprentice

well i'm going to get in touch with the company that makes them - just to see.

so far - i'm itching less... tomorrow everything should be better if this was the culprit.

Link to comment
Share on other sites
Peggy Anne Newbie

I have just found out, from a wine labeling company no less, that red wines, some teas and coffee are de-acidified by rinsing them over and over with ....... gluten and/or milk proteins! GEEZ! No wonder I was having problems with "100% Coffee." The article went on to say tha the European Union is going to enforce that if a product uses allergens in its processing it must be on the label. Here in the USA where Cool Whip can label their casein filled product "Dairy Free" I am not holding my breath that our labeling laws will improve.

In the mean time I am avoiding the above products, and now the itchy, cramping, painful abdominal sensations gone. I have read in other gluten free books that caffiene stimulates the frayed nerves left over from the gluten intollerance neuropathies, so they say to avoid any and all caffiene drinks. I use jiaogulan tea as a waker-upper as it opens up blood vessels aiding in the get up and go and brain-fog clearing in the AM. It also lowers blood presure!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DebNC84 Apprentice
I have just found out, from a wine labeling company no less, that red wines, some teas and coffee are de-acidified by rinsing them over and over with ....... gluten and/or milk proteins! GEEZ! No wonder I was having problems with "100% Coffee." The article went on to say tha the European Union is going to enforce that if a product uses allergens in its processing it must be on the label. Here in the USA where Cool Whip can label their casein filled product "Dairy Free" I am not holding my breath that our labeling laws will improve.

In the mean time I am avoiding the above products, and now the itchy, cramping, painful abdominal sensations gone. I have read in other gluten free books that caffiene stimulates the frayed nerves left over from the gluten intollerance neuropathies, so they say to avoid any and all caffiene drinks. I use jiaogulan tea as a waker-upper as it opens up blood vessels aiding in the get up and go and brain-fog clearing in the AM. It also lowers blood presure!

that is disturbing info.

the coffee filter company said that the filters I'm using ARE in fact gluten free... but I beg to differ. Maybe they test up to a certain ppm and there might be a trace of gluten, not enough to effect most but since I have DH i am more sensitive - I did something stupid this weekend - so stupid that I'm not even going to tell... ok I'll tell... I ate some toppings off of a pizza - :( oh well - my gut will be back in shape in a few days - but it did give me a setback in figuring out if the filters were causing me a problem... so a few more days and we'll see.

If anyone has any info on the testing procedures for products or a link that I can go to that explains the ppm thing... i don't quite understand it and I would appreciate it.

Link to comment
Share on other sites
Lisa Mentor
I have just found out, from a wine labeling company no less, that red wines, some teas and coffee are de-acidified by rinsing them over and over with ....... gluten and/or milk proteins! GEEZ! No wonder I was having problems with "100% Coffee." The article went on to say tha the European Union is going to enforce that if a product uses allergens in its processing it must be on the label. Here in the USA where Cool Whip can label their casein filled product "Dairy Free" I am not holding my breath that our labeling laws will improve.

In the mean time I am avoiding the above products, and now the itchy, cramping, painful abdominal sensations gone. I have read in other gluten free books that caffiene stimulates the frayed nerves left over from the gluten intollerance neuropathies, so they say to avoid any and all caffiene drinks. I use jiaogulan tea as a waker-upper as it opens up blood vessels aiding in the get up and go and brain-fog clearing in the AM. It also lowers blood presure!

Peggy Anne,

Would you mind supporting the information you posted about red wine, teas and coffee, with a link or an article.

Link to comment
Share on other sites
larry mac Enthusiast

I'm sure you've heard the story about the woman who had a bat in her coffee filter. It was in all the newspapers and on all the TV news last week.

Open Original Shared Link

best regards, lm

Link to comment
Share on other sites
Lisa Mentor
I'm sure you've heard the story about the woman who had a bat in her coffee filter. It was in all the newspapers and on all the TV news last week.

Open Original Shared Link

best regards, lm

OMG...That sent shivers all the way down my spine and I'm not sure that I don't need to throw up! Thanks for that larry! <_<

Link to comment
Share on other sites
DebNC84 Apprentice
OMG...That sent shivers all the way down my spine and I'm not sure that I don't need to throw up! Thanks for that larry! <_<

I JUST WANT TO KNOW how the bat got into her coffee maker? huh.... I'm not sure I am believing that one!! :o

Link to comment
Share on other sites
lovegrov Collaborator

I must agree that if you make a blanket statement about products like wine, coffee and teas that are almost certainly gluten-free, you really HAVE to provide evidence or a contact.

richard

Link to comment
Share on other sites
Gemini Experienced
that is disturbing info.

the coffee filter company said that the filters I'm using ARE in fact gluten free... but I beg to differ. Maybe they test up to a certain ppm and there might be a trace of gluten, not enough to effect most but since I have DH i am more sensitive - I did something stupid this weekend - so stupid that I'm not even going to tell... ok I'll tell... I ate some toppings off of a pizza - :( oh well - my gut will be back in shape in a few days - but it did give me a setback in figuring out if the filters were causing me a problem... so a few more days and we'll see.

If anyone has any info on the testing procedures for products or a link that I can go to that explains the ppm thing... i don't quite understand it and I would appreciate it.

Deb......take a deep breath for a moment. Gluten is a protein and it's food. I cannot imagine there being a protein in a coffee filter. Why do people question a coffee filter? No one would even be doing testing on a coffee filter to see if there was any gluten in it because it's not food. People also need to get off the PPM thing. That would only be pertinent if a FOOD product were being marketed as a gluten free product and testing needed to be done to ensure compliance. I would start looking in the direction of another food intolerance or allergy. Remember, you have to eat it and it has to be a food product (unless you are into ingesting make-up, which would be the one exception I can think of) before you have to start worrying about it. It just might be the coffee itself as coffee is very acidic, especially the supermarket kind, and acid can cause problems in some people.

The coffee, tea and wine post is another one of those posts you have to laugh at. I drink all 3 on a regular basis and have done vineyard tours and questioned the staff on wine-making as it relates to the gluten-free lifestyle and ALL of them adamantly stated there is no gluten in wine, period. There is no part of the process where anything gluten related would be used. I would tend to believe them because every one of my symptoms related to celiac disease have gone and hopefully, will not return. Maybe ripple wine or cheap, floor sweeping coffee contain gluten but if you drink a good brand of any of these things, I wouldn't worry about it. They are naturally gluten-free.....except for some flavored tea's and coffee's! The same is true for cigarettes....even if they did contain any gluten, you would have to eat them to cause a problem.

You really need to do some better research before posting things like this because many people believe everything they hear without looking into the facts and then have a harder time with this lifestyle!

Link to comment
Share on other sites
DebNC84 Apprentice
Deb......take a deep breath for a moment. Gluten is a protein and it's food. I cannot imagine there being a protein in a coffee filter. Why do people question a coffee filter? No one would even be doing testing on a coffee filter to see if there was any gluten in it because it's not food. People also need to get off the PPM thing. That would only be pertinent if a FOOD product were being marketed as a gluten free product and testing needed to be done to ensure compliance. I would start looking in the direction of another food intolerance or allergy. Remember, you have to eat it and it has to be a food product (unless you are into ingesting make-up, which would be the one exception I can think of) before you have to start worrying about it. It just might be the coffee itself as coffee is very acidic, especially the supermarket kind, and acid can cause problems in some people.

The coffee, tea and wine post is another one of those posts you have to laugh at. I drink all 3 on a regular basis and have done vineyard tours and questioned the staff on wine-making as it relates to the gluten-free lifestyle and ALL of them adamantly stated there is no gluten in wine, period. There is no part of the process where anything gluten related would be used. I would tend to believe them because every one of my symptoms related to celiac disease have gone and hopefully, will not return. Maybe ripple wine or cheap, floor sweeping coffee contain gluten but if you drink a good brand of any of these things, I wouldn't worry about it. They are naturally gluten-free.....except for some flavored tea's and coffee's! The same is true for cigarettes....even if they did contain any gluten, you would have to eat them to cause a problem.

You really need to do some better research before posting things like this because many people believe everything they hear without looking into the facts and then have a harder time with this lifestyle!

DO YOU HAVE DH? didn't think so... I'll say more later - maybe. Maybe someone else would like to join in?

Link to comment
Share on other sites
DebNC84 Apprentice
I cannot imagine there being a protein in a coffee filter. Why do people question a coffee filter? No one would even be doing testing on a coffee filter to see if there was

You really need to do some better research before posting things like this because many people believe everything they hear without looking into the facts and then have a harder time with this lifestyle!

Gemini,

OK - I'm back! I have not once named the brand of filters... nor did I say that I was sure. I got on this site for help - support. You aren't offering support - as a matter of fact you and people like you make me look elsewhere for help. I'm not a pro on this and I'm still trying to find answers. I've had a major flare-up of my DH and it's really upsetting to me - try losing handfuls of hair daily - or scratching yourself bleeding in the middle of night - having sickly looking angry looking welts and lesions on your body for the world to see... you'll be begging for help. I managed to stay free of any major setbacks until now and the only thing different that I can tell since I've pretty much been starving myself - AND eliminating any new stuff I've been using.

i don't care what you say - but my facial breakouts around my nose and mouth STOPPED when I started using only bounty for napkins - and other issues STOPPED when I became faithful to charmin tpaper. I'm not eating the paper - I'm using it on my skin - also I am feeding my dog gluten free food - NOW I don't break out where he licks me on my hands.... go figure... i'm not licking his saliva off my hands.. nor am I eating his dog food. hmmm how is it getting in my system to cause my DH - OH maybe it's skin contact with the wheat... hmmm... what an idea... thanks for the help.

Link to comment
Share on other sites
aikiducky Apprentice

As far as I know, casein and egg white are not uncommon in fining wine. So for someone with additional intolerances, wine could possibly give trouble.

Article for example:

Open Original Shared Link

...searched a bit more and I did find something about gluten:

Open Original Shared Link

The second one is a study, I don't know if anyone actually uses gluten in wine making, but it has at least been studied as a possible fining agent.

Personally I've had pretty good results sticking to Spanish, Italian and French wines, and not buying the very cheapest ones. Just to be clear, I'm also casein free, so in my case that is probably why I sometimes react to some wines. (Can't afford very expensive ones either but so far so good. :))

Pauliina

Link to comment
Share on other sites
Katie618 Apprentice

DEbNC84- i def feel for you, as i have DH too... i went a long time with continious breakouts and looking sick and feeling sick, but i did more research on dh, and with the help of my sister we found out that milk is a big culprit in adding to dh flares due to the iodine and salt in dairy products. i cut dairy out and it took a few weeks, but i felt better and saw a difference. maybe look more into what you are eating, as we know gluten can hide anywhere... i often find that if i eat chips or any food that has been manufactured with wheat products, i'll get a small dh flare.

i do agree that i don't think it could be the coffee filters... i've never had a skin reaction to touching something with gluten, i'm not even sure that would be able to happen? but you'd have to ask your dr about that DH only flares if you ingest gluten.

like me, you could have very sensitive skin, so touching certain tissues or napkins with oils on it acn cause a break out or look something like dh.

i haven't had a prob with coffee, wine, or tea

hope you feel better :( , i know what you are going through

Link to comment
Share on other sites
Lisa Mentor

DebNC,

Gemini is usually very accurate in her postings and has been around a long time. She knows her stuff. As with most posts here, you can take it in, and then draw your own conclusions.

With that said, there is a lot of research that needs to be developed with regard to Celiac and DH, hopefully, not too far in the future.

Hope you feel better soon.

Link to comment
Share on other sites
DebNC84 Apprentice
DEbNC84- i def feel for you, as i have DH too... i went a long time with continious breakouts and looking sick

hope you feel better :( , i know what you are going through

thanks - I'm a little embarrassed about my reaction to Gemini's statement...it struck a chord and I kind of had a meltdown last night. I guess I really wanted it to be the filters...because I've exhausted all my ideas. I agree it's not the filters... as I've been without them long enough now and still having breakouts... I will go without dairy and see if it helps... I know about the iodine. I don't want it to be dairy, that is causing my issues - but I don't make those decisions... this rash makes me crazy. I don't eat a lot of dairy but I do binge on cheese every now and then. and the more I think about it - that might be why the DH is flaring and almost going away and flaring again. - I'll let you guys know what happens.

thanks for caring. It really means a lot.

Debbie

Link to comment
Share on other sites
larry mac Enthusiast
...... - it acts like I've been injesting whatever it is, on a daily basis..because the itching usually subsides within a day or two after the initial injestion of gluten......

I have a comment that I hope may be helpful. I hesitated to post earlier 'cause I don't know enough about DH.

Deb, you felt like it may have been something you were ingesting on a daily basis, and that the itching subsides in a day or two. Well, if it is something you are ingesting on a daily basis, why would it subside in a day or two? The fact that it subsides in a day or two may indicate that it's an occassional gluten ingestion, and not something such as coffee filters that you do use daily. Just an idea.

best regards, lm

Link to comment
Share on other sites
DebNC84 Apprentice
I have a comment that I hope may be helpful. I hesitated to post earlier 'cause I don't know enough about DH.

Deb, you felt like it may have been something you were ingesting on a daily basis, and that the itching subsides in a day or two. Well, if it is something you are ingesting on a daily basis, why would it subside in a day or two? The fact that it subsides in a day or two may indicate that it's an occassional gluten ingestion, and not something such as coffee filters that you do use daily. Just an idea.

best regards, lm

I read that post by me a little while ago and I know it is confusing... what I meant was - normally if I get glutened, it is over in a day or two. I came to the conclusion that this was something I was getting regulary into my system because it wasn't going away. And day by day it just gets worse. My DH symptoms have lessened in the last few days but not completely - I don't know what is happening, I was doing great and all of a sudden it just started and it's getting to the point that I'm scared to eat - just like it was when I first went gluten free last year. I just don't know. I just want to crawl in a hole. I'm really tempted to take the prednizone that my dermatologist prescribed for me before we knew what was going on... she gave me more than I needed that first time just in case I needed them again. Prednizone will knock it out and I can start with a clean slate. I think I will call her and see what she says.

Link to comment
Share on other sites
happygirl Collaborator

Have you tried Dapsone?

Link to comment
Share on other sites
pinkscooby6 Rookie

I completely agree with Gemini. If someone wants to post something saying certain products have gluten, they should provide a link or something to support that. The same goes for Gluten-free products. Don't get upset just because someone told you that you might have another food intolerance. Actually, most people that have Celiac disease have another food disorder, so do YOUR research. And I have DH and I drink coffee and wine all the time, and it has NEVER effected me! So let's learn how to control our tempers people! Act like a grown up!

Link to comment
Share on other sites
Lisa Mentor
I completely agree with Gemini. If someone wants to post something saying certain products have gluten, they should provide a link or something to support that. The same goes for Gluten-free products. Don't get upset just because someone told you that you might have another food intolerance. Actually, most people that have Celiac disease have another food disorder, so do YOUR research. And I have DH and I drink coffee and wine all the time, and it has NEVER effected me! So let's learn how to control our tempers people! Act like a grown up!

Think we got it covered. Thanks. ;)

Sometimes, due to extended illnesses, some days are difficult. We get frustrated. Those are the days when you extend a hand, not judge or scold.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,501
    • Most Online (within 30 mins)
      7,748

    fine one
    Newest Member
    fine one
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • SuzanneL
      It was tTG IGG that was flagged high. I'm not sure about the other stuff. I'm still eating my normal stuff. 
    • cristiana
      Thank you for your post, @Nedast, and welcome to the forum. It is interesting to read of your experiences. Although I've not had TMJ, from time to time I have had a bit of mild pain in my jaw, sharp stabbing pains and tingling in my face which appears to have been caused by issues with my trigeminal nerve.  I read that sometimes a damaged trigeminal nerve in coeliacs can heal after adopting a gluten free diet.  I try to keep out of cold winds or wear a scarf over my face when it is cold and windy, those conditions tend to be my 'trigger' but I do think that staying clear of gluten has helped.  Also, sleeping with a rolled up towel under my neck is a tip I picked up online, again, that seems to bring benefits. Thank you again for your input - living with this sort of pain can be very hard, so it is good to be able to share advice.
    • Julie Riordan
      I am going to France in two weeks and then to Portugal in May   Thanks for your reply 
    • Nedast
      I made an account just to reply to this topic. My story resembles yours in so many ways that it is truly amazing. I also suddenly became lactose intolerant, went a little under 10 years attributing all my symtoms to different body parts, never thinking it was something systemic until much later. I had the same mental problems - anxiety, depression, fatigue, etc. In fact, the only real difference in our story is that I was never formally diagnosed. When I discovered that my myriad symtoms, that had been continuous and worsening for years, all rapidly subsided upon cessation of consuming gluten, I immediately took it upon myself to cut gluten out of my diet completely. I live in America, and had lost my health insurance within the year prior to my discovery, so I could not get tested, and I will never willingly or knowingly consume gluten again, which I would have to do in order to get tested now that I have insurance again. But that is not the point of this reply. I also had extreme TMJ pain that began within months of getting my wisdom teeth out at - you guessed it - 17 years old. I was in and out of doctors for my various symptoms for about 5 years before I gave up, but during that time I had also kept getting reffered to different kinds of doctors that had their own, different solutions to my TMJ issue, an issue which I only recently discovered was related to my other symptoms. I began with physical therapy, and the physical therapist eventually broke down at me after many months, raising her voice at me and saying that there was nothing she could do for me. After that saga, I saw a plastic surgeon at the request of my GP, who he knew personally. This palstic surgeon began using botox injections to stop my spasming jaw muscles, and he managed to get it covered by my insurace in 2011, which was harder to do back then. This helped the pain tremendously, but did not solve the underlying problem, and I had to get repeat injections every three months. After a couple of years, this began to lose effectiveness, and I needed treatments more often than my insurance would cover. The surgeon did a scan on the joint and saw slight damage to the tissues. He then got approved by insurance to do a small surgery on the massseter (jaw) muscle - making an incision, and then splicing tissue into the muscle to stop the spasming. It worked amazingly, but about three months later it had stopped working. I was on the verge of seeing the top oral surgeon in our city, but instead of operating on me, he referred me to a unique group of dentists who focus on the TMJ and its biomechanical relationship to teeth occlusion (i.e. how the teeth fit together). This is what your dentist did, and what he did to you was boderline if not outright malpractice. There is a dental field that specializes in doing this kind of dental work, and it takes many years of extra schooling (and a lot of money invested into education) to be able to modify teeth occusion in this manner. Just based on the way you describe your dentist doing this, I can tell he was not qualified to do this to you. Dentists who are qualified and engage in this practice take many measurments of your head, mouth, teeth, etc., they take laboratory molds of your teeth, and they then make a complete, life-size model of your skull and teeth to help them guide their work on you. They then have a lab construct, and give you what is called a "bite splint." It looks and feels like a retainer, but its function is entirely different. This is essentially a literal splint for the TMJ that situates on the teeth. The splint is progressively modified once or twice per week, over several months, in order to slowly move the joint to its correct position. The muscles spasm less, stress is taken off the joint, as the joint slowly moves back into its proper position. The pain reduces each month, each week, sometimes even each day you go in for a visit. The joint has to be moved in this manner with the splint BEFORE the modification to the teeth begins. They then add to your tooth structure with small bits of composite, to keep the joint in its proper place after it has been sucessfully repositioned. Subtracting from your teeth, by grinding down bits of your natural tooth structure, is done very conservatively, if they have to do it at all. This process worked for me - after six months, my face, jaw, neck all felt normal, and I had no more pain - a feeling I had not had in a long time. It also made my face look better. I had not realized the true extent that the spasming muscles and the joint derangement had effected the shape of my face. The pain began to return after a few months, but nowhere near where it had been before. This immense reduction in pain lasted for a little over two years. The treatment still ultimately failed, but it is not their fault, and it is still the treatment that has given me the most relief to this day. Later on, I even went about three years with very, very good pain reduction, before the joint severely destabilized again. This field of dentistry is the last line treatment for TMJ issues before oral surgery on the TMJ. There aren't as many denists around who practice this anymore, and the practice is currently shrinking due to dentists opting for less espensive, additional educations in things like professional whitening, which have a broader marketability. Getting this treatment is also very expensive if not covered by insurance (in America at least). My first time was covered by insurance, second time was not, though the dentist took pity on me due to the nature of my case and charged like a quarter of usual pricing. Most cases seen by these dentists are complete successes, and the patient never has to come back again. But occasionally they get a case that is not a success, and I was one of those cases. A little over a year ago, I began seeing the second dentist who keeps my TMJ stable in this manner. The first dentist retired, and then died sadly. A shame too, because he was a truly amazing, knowledgable guy who really wanted to help people. The new dentist began to get suspicious when my joint failed to stay stable after I was finished with the bite splint and his modifications, so he did another scan on me. This is ten years after the first scan (remember, I said the surgeon saw "slight" damage to the tissue on the first scan). This new scan revealed that I now no longer have cartilage in the joint, on both sides - complete degeneration of the soft tissues and some damage to the bone. The dentist sat me down and had a talk with me after these results came in, and said that when he sees damage like this in cases like mine, that the damage to the joint is most likely autoimmune, and that, in his experinece, it is usually autoimmune. He has sent patients with cases like mine to Mayo Clinic. He said he will continue to see me as long as the treatment continues to offer me relief, but also said that I will probably have to see a dentist for this type of treatment for the rest of my life. He is not currently recommending surgery due to my young age and the fact that the treatment he provides manages my symptoms pretty well. I still see this dentist today, and probably will see this kind of dental specialist for the rest of my life, since they have helped with this issue the most. I did not inform him that I am 100% sure that I have celiac disease (due to my complete symptom remission upon gluten cessation). I didn't inform him because I thought it would be inappropriate due to not having a formal diagnosis. I was disappointed, because I had believed I had caught it BEFORE it had done permanent damage to my body. I had never suspected that my TMJ issues may be related to my other symptoms, and that the damage would end up complete and permanent. Luckily, I caught it about 6 months after my other joints started hurting, and they stopped hurting right after I went gluten free, and haven't hurt since. I of course did the necessary research after the results of the second scan, and found out that the TMJ is the most commonly involved joint in autoimmune disease of the intestines, and if mutliple joints are effected, it is usually the first one effected. This makes complete sense, since the TMJ is the most closely related joint to the intestines, and literally controls the opening that allows food passage into your intestines. I am here to tell you, that if anyone says there is no potential relationship between TMJ issues and celiac disease, they are absolutely wrong. Just google TMJ and Celiac disease, and read the scientific articles you find. Research on issues regarding the TMJ is relatively sparse, but you will find the association you're looking for validated.
    • trents
      Welcome to the forum, @SuzanneL! Which tTG was that? tTG-IGA? tTG-IGG? Were there other celiac antibody tests run from that blood draw? Was total IGA measured? By some chance were you already cutting back on gluten by the time the blood draw was taken or just not eating much? For the celiac antibody tests to be accurate a person needs to be eating about 10g of gluten daily which is about 4-6 pieces of bread.
×
×
  • Create New...