Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Entro Labs
0

8 posts in this topic

I want to use this lab for a diagnosis. DH is concerned that it is on the up and up. Can someone direct me to solid evidence that it is a reputable lab?

Thank you so much in advance!

Cinthia

0

Share this post


Link to post
Share on other sites


Ads by Google:
I want to use this lab for a diagnosis. DH is concerned that it is on the up and up. Can someone direct me to solid evidence that it is a reputable lab?

Thank you so much in advance!

Cinthia

Hi there,

There is no such thing. You won't find anything, other than people's testimonies, which are (if you visit the website) pretty positive. As of yet, Dr. Fine hasn't officially published anything related to his findings. We don't really know why. Some people think Enterolab is bogus. Some people don't.

I personally believe it is reputable and here's why: they found I have active dietary gluten sensitivity as well as two genes that predispose to gluten sensitivity. As soon as I cut gluten out, I can honestly say I feel 100% better. The results of this test have kept me from thinking 'its all in my head', as I was always told. That, to me, was worth every penny that I paid them.

All I can tell you is that Enterolab can't give you a Celiac diagnosis, or any diagnosis really. Only a doctor can do that, and they base it on bloodwork and/or biopsy. Most doctors don't support Enterolab because of their old ways and narrow views. Enterolab can test for many active dietary sensitivities in the stool, such as gluten, casein, soy and eggs. They can also run malabsorption scores and gene testing.

Many people here forego the testing and just start the diet and are very happy with their decision. However, there are also some that later on find their problems haven't resolved yet and can't get testing done because they've been off gluten for so long. If you haven't cut gluten out yet, you should definitely get the bloodwork and biopsy done by a gastro. No matter what the tests say, you should go on the diet strictly for at least 3 months and see what happens.

Good luck!

-Kim

0

Share this post


Link to post
Share on other sites

Enterolab did not find Celiac genes for me and neither did Kimball. It would have been questionable in my mind if the two were not consistent.

Enterolab did find 2 gluten sensitivity genes in me. One DQ3 is related to neurological disorders (which are my primary symptoms). After doing research on the DQ3 gene, comparing what I learned to my symptoms, and knowing I have the DQ3 gene, was enough for me to believe they are doing what they say they are doing. I feel comfortable with having paid them for their service.

0

Share this post


Link to post
Share on other sites

You'll get various opinions on this. I don't think it has to do with Enterolab, per se, (as they are not the only lab that does this type of testing) but the validity of the method of testing.

There is some research that supports it, but mostly, the 'experts' disagree with stool testing for this.

However, there is a lot that we don't know about Celiac and gluten intolerance/sensitivity.

0

Share this post


Link to post
Share on other sites

I guess I have the same question. My kid's father says he has found info that the tests are invalid for children and want to have a biospy done. I tested negative for both the biospy and bloodwork but was found to have the celiac genes through enterolabs. My one child's test has shown the celiac genes and the other gluten intolerance. All of us have responded well to the diet. Myself more so, but I have no guarantee of what they are eating at their father's house. I can say when they have admitted to eating gluten it has explained the 3 day tummy ache, D, and headaches. He won't agree, but then again, feeds them the stuff and I'm left to deal with reprocusions. I don't want to have the biopsy done (they've been off gluten at my house since April). Am I wrong?

0

Share this post


Link to post
Share on other sites




http://www.celiacdiseasecenter.columbia.ed...C05-Testing.htm

Genetic testing for celiac disease

Celiac disease is a multigenic disorder associated with HLA-DQ2 (DQA1*05/DQB1*02) or DQ8 (DQA1*0301/DQB1*0302). HLA DQ2 is expressed in the majority (>90%) of those with celiac disease and DQ8 in about 8%. The expression of these HLA-DQ2 or DQ8 molecules is necessary but not sufficient to develop celiac disease and accounts for only about 50% of the genetic component of the disease. Studies in sibling (sib recurrence risk for celiac disease of 10%) [42] and of identical twins (concordance of 70%) [43] suggest that the contribution of HLA genes in celiac disease is less than 50%. The determination of the presence of HLA DQ2 or DQ8 is now available commercially. The role in the diagnosis of celiac disease is however limited because of the low specificity of the test for celiac disease. These HLA types are present in about 30% of the normal population. Their absence is useful in excluding celiac disease. The role in assessment of the presence of HLA DQ2 or is: 1. In the presence of an equivocal biopsy, 2. When someone is already on the diet, 3. To determine which family members should be screened for celiac disease.

0

Share this post


Link to post
Share on other sites

Ok, this has been helpful. I know for sure I don't want to put DS back on gluten. His dietary response has convinced me that at the VERY least he has a gluten intolerance. He was an extremely sick little boy back in March, since gluten-free diet his health has improved so much. His DH is all but gone, along with eczema, weepy eyes, runny nose, wheezing/asthmatic type symptoms, severe abdominal pains, IBS and behavioral problems have decreased markedly. I assume it will continue to get better as we continue on the diet. To put him back on it makes me shudder, he has done so much healing I DO NOT want to reverse the process if I can help it! I think what we may do is get my DH and I tested in Canada. Either way nothing will change we will all go on a gluten-free diet. My eldest (a girl) doesn't seem to have a problem but I know Celiac can be silent also. I have completely avoided gluten for my 17 month old DD.

Thanks for the responses.

Cinthia

0

Share this post


Link to post
Share on other sites

while I too am slightly wary of enterolab as far as their antibody testing, I would say it is worth it for the genetics. I was diagnosed through genetics (I have the DQ2 gene, a celiac gene) which, combined with my symptoms and reaction to the diet, was enough for my GI to diagnose me.

However, I was tested through prometheus (as the doctor ordered), and insurance decided after the fact that they would not cover the $500+ test. So I would say the $99 for enterolab is worth it, and VERY helpful for skeptics looking for more concrete evidence for a "diagnosis."

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,630
    • Total Posts
      918,404
  • Topics

  • Posts

    • A good diet for avoiding type 2 diabetes
      Hey, I am a member of that forum (not very active though).  But that's exactly how I eat.  They base their diet on this site: http://www.phlaunt.com/diabetes/ A year after my celiac disease diagnosis, my GP tells me that I am prediabetic via an email.  Instructs me to improve my diet and exercise more.  What?  I exercise more that most my age.  I run, swim, bike and teach a few exercise classes.  Change my diet?  I am gluten free.  I can not give up my gluten-free goodies!  It was asking for too much.  But I did know about celiac disease and the connection to Type 1 diabetes and Type 2 runs in my family.  So I found Jenny's site.  It made sense and I continued to research more.  Bought a Walmart meter, started testing my foods and found that "snap" I had huge spikes!  Kept meticulous data for a month and went back to my doctor.  He agreed.  I am insulin resistant and the writing's on the wall.  How to stop or slow the progression?  A low carb high fat diet.  Within three days, my blood sugar readings were normal.  Keep tracking and went back to my doctor who was amazed.  He told me to keep doing what I had been doing -- and it's been 2-1/2 years! Here's a recent study from the University of Alabama: https://www.uab.edu/news/innovation/item/4997-low-carb-diet-recommended-for-diabetics Sometimes you just have to take things into your own hands.  If I had just cut down on sugar, I 'd be on drugs and insulin and struggling to keep my feet from being amputated.  That's an exaggeration (not really), but really who cares if my foot gets chopped off?  My doctor?  He's nice, but pretty busy.  No, it's all on me!   Guess what?  I am happy on my diet.  I was addicted to sugar.  What's the biggest thing to change in our diet over the last 100 years?  Sugar.  It's in everything!  California just released a study stating over 50% of all Californians are prediabetic or have diabetes and most don't even know they have it (hummm....sounds like celiac disease).   http://newsroom.ucla.edu/releases/majority-of-california-adults-have-prediabetes-or-diabetes Enough of my soapbox talk......I've got to get some stuff done!  
    • healthy bread recipe?
      One month into the diet and she's probably very constipated because she HAS celiac disease.  She needs more time to heal.  Maybe six months to a year.  Why so long?  In theory, she should heal within weeks, but it takes a long time to really master the gluten free diet and learn about cross contamination and shared manufacturing lines.  Plus, consuming lots of gluten-free items right off the bat, may be contributing more to her health problems.  We had kids on this forum who did not drop their antibody levels until they eliminated processed foods.  20 parts per million may just be too much for her to handle right now. I would recommend reading our Newbie 101 section under "Coping".  It has some nice tips.  I would strongly recommend feeding her whole foods.  She can get plenty of fiber from fruit and veggies.  I do not even eat any grains at all, but that's my choice because grains spike my blood sugar just the same as cane sugar (I have diabetes too).   After she has healed, you can introduce breads and all kinds of junk food!     By then you will not remember what real bread tastes like.  Ask my non-celiac kid.  She's likes gluten-free pasta now.  She admits that she has forgotten what real pasta tastes like.  She adores all my baked-from-scratch gluten free cakes and cookies (that I can not eat! ) When I was diagnosed, my learning curve was easy.  My hubby had been gluten free for 12 years!  So, I ate like him.  Turns out that I was reacting.  Found out that because I was in the healing stage, I could not tolerate additives like Xanthan Gum (really needed to replace gluten in bread), preservatives, etc.  found in commercial breads and baking flour mixes.  I had lots of food intolerances that eventually resolved and some did not!   Okay. Villi damaged but not gone?  Is your doctor crazy?  Your daughter has celiac disease!  I strongly recommend getting her records and lab results and getting a second opinion.  She should have been diagnosed by now.  You should be looking into keeping her safe at school with a 504 plan (but a 12 she shouldn't be playing with playdough, but colleges will have to accommodate her diet and that's coming up faster than you think!)   Welcome to the forum!  I hope this helps.  
    • Received Results. Looks like not Celiac?
      If I were in your shoes, I would first test out a histamine intolerance diet before going gluten free.  Migraines and  fatigue seems to scream histamine intolerance.  It's most widely known in Europe, but it is gaining some ground here in the US.   But, I am not a doctor and I do not know you.  What I can suggest is that you do some research and continue to advocate for your health.   If you go gluten free, then it's six months.  If you had celiac disease, it would take that long to heal or longer!  It's a hard diet to follow when your results are negative, but nothing's impossible!  
    • My doctor suspects Coeliac Disease ?
      Money.  It costs more to run a celiac panel.  For years the TTG has been the recommended screening test for celiac disease.  It catches most, but not all celiacs.  It's a pretty good test, but no test is perfect.  You are going forward with the endoscopy.  Make sure your GI takes 4 to 6 tissue samples (biopsy) because just a "visual" often looks fine (visually I was fine, biopsies revealed a Marsh Stage IIIB).   So, keep eating gluten.  My advice is to eat all your old favorite things.....it might be your last chance!   The good news is that you are getting closer to getting a diagnosis which will result in improved health (if you go gluten free).  
    • Received Results. Looks like not Celiac?
      Thank you so much.  I have not had those things ruled out, but will look into those.  I wonder how long I should try gluten-free to truly know if there is a difference?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,720
    • Most Online
      1,763

    Newest Member
    Fendell
    Joined