I Need Help
Posted 13 October 2008 - 01:22 PM
I am a 30yo mother of two young girls and a nurse
In 2005 I had a total colectomy and my entire colon was removed.
Since that time I have had some huge weight loss and weight gain periods
Right now I am in the middle of a weight gain
I can do nothing to lose any weight
I go to the gym and exercise
In the mean time i was diagnosed with fibromyalgia and started taking lyrica
I went to the Dr last week due to stomach upset after eating everytime, fatigue, weight gain, pain and headaches
He diagnosed me with celiac and took some blood test.
He told me to start on a gluten free diet
Ok there is my problem
I am in school for my advanced nursing degree and am raising my girls
I wake up in the morning to poptarts and cereal, in the afternoon a tuna sandwich and the dinner with the family full of gluten
So I have no idea what to do
Any help will do
Posted 13 October 2008 - 01:28 PM
Secondly, how did he Dx Celiac without the results of the blood tests. And here is the thing, if the blood comes back POS he will want you to get a biopsy. You MUST keep eating gluten until ALL testing is done. He may not require a biopsy for a Dx, but you should at least wait until the blood work comes in. If it is POS and he doesnt want a biopsy, start your gluten-free diet then. If it comes back POS and he does want a biopsy, wait till the day after the biopsy to start gluten-free.
If ALL comes back NEG, you can still try the diet to see if you get results. Many in here came back NEG on tests but had a dramatic POS response to the diet (me included).
So right now, hang tight and read through these forums and LEARN LEARN LEARN. There are MANY threads that have menu ideas for children and adults. And you can ask specific questions ANYTIME.
Do not let any of the advice given here substitute for good medical care. Let this forum be a catalyst for research. Find support for any post in here before you believe it to be true. Arm yourself with knowledge. Let your doctor be your assistant. Listen to their advice, but follow your own instincts as well. Miracles are within your reach. You can heal!
Posted 13 October 2008 - 01:42 PM
i'm curious about the doctor your saw...many doctors won't diagnose celiac without first performing a biopsy and certainly not before the blood work results come back...you'll need to continue consuming gluten until all tests are done or they won't be accurate.
but once you go gluten-free...
personally, i found it helpful to read about the disease. Celiac Disease - A Hidden Epidemic by Dr. Peter Green is a great starter book. i read it when i was awaiting my biopsy and found it very helpful. i also have Living Gluten-Free for Dummies. it's your typical Dummies book but worth checking out.
as for eating gluten-free...it's a lifestyle change. i've found it best to plan my week on Sundays. i do my shopping and spend some time cooking ahead of time so it's easier to re-heat and throw together meals if i'm too busy.
Rice Chex is now gluten-free so you can enjoy that for breakfast with some fruit, you can convert your tuna sandwiches to tuna wraps using corn tortillas and then get creative with dinners! you can also consider converting your household to gluten-free that way you don't have to make separate meals for yourself and your girls. (it's healthier anyway so no harm done!)
i'm in love with my crockpot these days, thanks to the "CrockPot Lady"...check out her website: http://crockpot365.blogspot.com/
you may want to stick to naturally gluten-free foods for a while until your body heals. shop the perimeter of the grocery store and steer clear of gluten-free breads and such for a while. some people also have issues with dairy and/or soy after going gluten-free.
it's daunting and scary at first but i promise, it will get easier!
6/24/2008 - negative biopsy
8/11/2008 - DQ2 gene present
7/1/2008 - gluten-free
(and dairy-light until 12/1/2008)
Posted 13 October 2008 - 02:01 PM
Not to worry, once you get the hang of it - the gluten-free lifestyle becomes second nature.
Here are some quick breakfast ideas: Cereal (Rice Chex is my fav - Cocoa/Fruity Pebbles are great for a sugar fix), PB&J on rice cakes, hard boiled eggs and cheese slices, Trader Joe's frozen gluten-free banana waffles or rice pancakes (they also have a mix for both), BumbleBars (I like chocolate and almond chai), apple slices and peanut butter, Trader Joes organic yogurts, egg-cheese-salsa breakfast wraps in corn tortillas. I don't know where you live but, there are some very good markets when it comes to gluten-free: Sprouts, Trader Joe's, Henry's, Wild Oats, Whole Foods (most have gluten-free shopping lists online).
As mentioned by another poster, check out the blog for the gal that does gluten-free crockpot recipes that are pretty simple and tasty: http://crockpot365.blogspot.com/
Things always seem dismal after being newly diagnosed, don't worry, things will get better
Posted 13 October 2008 - 04:00 PM
Son: ADHD '06,
neg. CELIAC PANEL 5/07
ALLERGY: "positive" blood and skin tests to wheat, which triggers his eczema '08
ENTEROLAB testing: elevated Fecal Anti-tissue Transglutaminase IgA Dec. '08
other food allergies
Posted 13 October 2008 - 04:17 PM
Ask your doctor for a referral to a dietitian who is experienced with Celiac.
Learn how to read food labels and which companies make reading labels easier.
http://www.glutenfre...ct_updates.html and http://www.glutenfre...lists/index.htm
Newly diagnosed: http://www.glutenfre...lydiagnosed.htm
Read, read, read.
other good resources besides this forum and its owner, celiac.com:
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