Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Anyone From Pa.


kimis

Recommended Posts

LadyCyclist87 Apprentice
Hi Ladycyclist87

Glad you love Pittsburgh. We are having a gluten-free evening on Feb 5 09 in Butler if you would like to come & join us. If you want more info please let me know. blessings

mamaw

That's awesome! What exactly is going on? Is it just a big community dinner that's entirely gluten-free? I just might be up for it... :-)

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 71
  • Created
  • Last Reply
mamaw Community Regular

Ladycyclist87

I sent you a personal message about the meeting.......

blessings

mamaw

Link to comment
Share on other sites
  • 3 months later...
LadyBugLuv Rookie

Ok... I know this isn't the newest thread... but Hooray for fellow Pennsylvanians :)

I'm originally from RI,

but went to Duquesne out in Pittsburgh, PA, and now live in Lancaster County, PA :). We love it.

I work in Harrisburg, too.

exciting. :)

Link to comment
Share on other sites
mamaw Community Regular

Hi Ladybugluv

welcome.

I live near Pittsburgh .Lancaster is a wonderful area with a great gluten-free group of people. I go to this area about once or twice a year for some R&R......while there we always journey to philly & NJ...... to do some gluten-free shopping.....

blessings

mamaw

Link to comment
Share on other sites
JBaby Enthusiast
Any other Celiacs live in Pa? I live just outside of Philadelphia..

Pittsburgh

Link to comment
Share on other sites
mamaw Community Regular

JBaby

Where are you in Pittsburgh? I'm the founder of a gluten-free group in the area.....

Link to comment
Share on other sites
JBaby Enthusiast
JBaby

Where are you in Pittsburgh? I'm the founder of a gluten-free group in the area.....

Downtown area. How many of us are there?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jamie1763 Newbie

Not PA but 20 min outside philly in South Jersey :)

Link to comment
Share on other sites
mamaw Community Regular

JBaby

I have over 100 registered but all is not celiac. We sample new products at each meeting & do a lot of mailorder for the best of the best. We are the only group in the tri-state area.... if you need any help let me know. I have been a gluten-free mentor for many years. I also test market for many gluten-free vendors/bakers.

Link to comment
Share on other sites
estelita Rookie

I'm near Altoona. Anyone else?

Link to comment
Share on other sites
mamaw Community Regular

I know a gentlemen from Mineral Point, Pa The home of Better Batter flour is in Belltown!

Link to comment
Share on other sites
estelita Rookie
I know a gentlemen from Mineral Point, Pa The home of Better Batter flour is in Belltown!

Bellwood... I know. Yet ironically, I cannot find a support group near me!

Link to comment
Share on other sites
Luvmycats Newbie

Hello,

I'm from Pittsburgh.

Diagnosed with celiac 6-07.

Diagnosed with collagenous colitis 3-09.

Mamaw--do you know of any social events, etc. held in the Pittsburgh area for celiacs?

Does anyone out there also have collagenous colitis? If so, can you relate your experience...how long you've had it...what medication you take...any info is greatly appreciated.

Thanks!

:D

Link to comment
Share on other sites
  • 2 weeks later...
mamaw Community Regular

Luvmycats

Sorrry , I guess I missed this section when I was checking in!

Yes, we are the only active group here in Butler. I get people from the tri-state area.

We are having a gluten-free luncheon at Uno"s in Cranberry Twp on July 11,09 at 12:30 sharp. Uno's will have their new extended menu by then. ALso in Oct we will be having a gluten-free seminar in Cranberry Twp at the Marriott North.

I'll send you a pm with my phone number if you want to talk more.

blessings

mamaw

Link to comment
Share on other sites
  • 1 month later...
Chuck8268 Rookie
Any other Celiacs live in Pa? I live just outside of Philadelphia..

South central Pa here,,,,,,,,,,how yu doing?

Link to comment
Share on other sites
luvs2eat Collaborator

I live in the beautiful Ozark Mts. in Arkansas now, but lived for 30 years in the New Hope, PA, area in Bucks County... pretty up there!

I miss Giant and their awesome gluten-free selections, but find I can get almost anything gluten-free I need ordering thru Amazon, thank goodness... not a lot of gluten-free stuff here in AR.

Maggiano's in KOP has a gluten-free menu and the peeps there were SO nice about accommodating me! Try it!

Link to comment
Share on other sites
Chuck8268 Rookie
I live in southeastern York County, PA.

beautiful Bedfford county here

Link to comment
Share on other sites
  • 3 weeks later...
glutenfreegal Newbie

hi! I am from PA! right outside philly...Montgomery county!!

Link to comment
Share on other sites
Chuck8268 Rookie
I'm near Altoona. Anyone else?

somerset/bedford here

Link to comment
Share on other sites
  • 1 month later...
TownieHeather Newbie

State College here :) A non-student, but I'm 25 so I guess I'm still in that age range.

Link to comment
Share on other sites
Tigercat17 Enthusiast
Luvmycats

Sorrry , I guess I missed this section when I was checking in!

Yes, we are the only active group here in Butler. I get people from the tri-state area.

We are having a gluten-free luncheon at Uno"s in Cranberry Twp on July 11,09 at 12:30 sharp. Uno's will have their new extended menu by then. ALso in Oct we will be having a gluten-free seminar in Cranberry Twp at the Marriott North.

I'll send you a pm with my phone number if you want to talk more.

blessings

mamaw

Hi Mamaw,

I'm very intested interested in your group. I live in very near to Pittsburgh. Could you send me some information? I've been diagnosed with celiac just five weeks ago & I'd love to meet other people who know a lot about this disease. It would be so nice to have someone to talk to that understand. :)

Thanks!

Link to comment
Share on other sites
Harley0000 Rookie
Any other Celiacs live in Pa? I live just outside of Philadelphia..

Hey

I am from NY, a couple of hours from Phila. How long have you had Celiacs? I am very newly diagnosed....like last week. :(

Nancy

Link to comment
Share on other sites
Harley0000 Rookie
Hi Mamaw,

I'm very intested interested in your group. I live in very near to Pittsburgh. Could you send me some information? I've been diagnosed with celiac just five weeks ago & I'd love to meet other people who know a lot about this disease. It would be so nice to have someone to talk to that understand. :)

Thanks!

Hello There!

I am from NY and was just recently diagnosed with Celiacs last week. There is SOO much info out there, but it is mind boggling. I also would like to chat with people who are going through the same thing. I am really struggling....

Nanc

Link to comment
Share on other sites
mamaw Community Regular

Tigercat17

Would you like to join some of our group on Nov 8,09 at 3;30 for gluten-free dining ? You & yours are more than welcome.. I just need to know how many are coming so I can give a person count to the restaurant.

I mentor new people often..... We also buy gluten-free foods in bulk & its alot cheaper & also we get the best of the best.....

At present we can't meet monthly because of the remodeling going on at the church we use so we have been getting together with dining experiences... If you send me a pm with your regular e-mail I will give you my contact phone number but I don't publish it on here!

In the past at meetings we have done all kinds of fun things,gluten-free cooking demos, alot of sampling, updates on gluten-free foods, whats good whats not, mainstream gluten-free products, current events & much more. In 2 1/2 years we have never had a meeting where as gluten-free food samples were not shared by all to take home! We have a nice group of people all age groups from children to adults & seniors....

Harley0000

You are invited as well! Where in Ny are you? Also if you want help via the phone I will also help you . Just send me a pm for my contact number & you can reach me with your questions...or pm me with your questions.

I stay up with current info & use only reliable resources.

My pet peeve is people who spread info around & have nothing to back it back with! Hear-say is not the way to go. Misinformation is worse than no information.......

blessings

mamaw

Link to comment
Share on other sites
  • 1 month later...
Lanie940 Newbie
Bucks County, here!

Lehigh County here

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.



  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,069
    • Most Online (within 30 mins)
      7,748

    angie78
    Newest Member
    angie78
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fluka66
      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...