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Benefiber


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7 replies to this topic

#1 darlindeb25

 
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Posted 22 October 2008 - 01:48 AM

Yesterday, I received a container of Benefiber in the mail. I find it questionable. The only ingredient listed is "wheat dextrin." It states it is sugar free, sodium free, and gluten free. It states there is less than 10ppm of gluten, so it's gluten free.

I will not try it. I feel if it has one ingredient, which is a wheat product, then how can it be safe. I also react to the tiniest amount of wheat. I was just wondering if anyone does use this?
  • 0
Deb
Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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#2 ksymonds84

 
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Posted 22 October 2008 - 07:14 AM

Yesterday, I received a container of Benefiber in the mail. I find it questionable. The only ingredient listed is "wheat dextrin." It states it is sugar free, sodium free, and gluten free. It states there is less than 10ppm of gluten, so it's gluten free.

I will not try it. I feel if it has one ingredient, which is a wheat product, then how can it be safe. I also react to the tiniest amount of wheat. I was just wondering if anyone does use this?


When trying to choose a fiber supplement, I went to the benefiber website. I can't remember where on the site but it does disclaim that even though the gluten is less than 10ppm they recommend that a celiac NOT use their product. It was at the bottom of one their pages, maybe the ingredient one?
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Kathy

Gluten free 3/08
Negative blood work/positive endoscopy
Fructose Malabsorption
Soy free

#3 darlindeb25

 
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Posted 22 October 2008 - 03:19 PM

Thank you Kathy. I have no idea why this was sent to me, but I have no intention of using it.

Thank you for replying.
  • 0
Deb
Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

#4 Mtndog

 
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Posted 22 October 2008 - 04:14 PM

I got the sample too and threw it out because I was annoyed that it claimed that gluten-free meant less than 10 ppm.
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***************************
Beverly

Gluten free since 2005

In the midst of winter, I found there was within me an invincible summer.
Albert Careb


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#5 darlindeb25

 
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Posted 23 October 2008 - 01:49 AM

I just went to their website, and this is their disclaimer, also listed as their last question in the FAQ:

http://www.benefiber...lth/index.shtml

16. Does the new ingredient, Wheat Dextrin, have any ill effects on people who experience wheat allergies or wheat intolerance?

Benefiber® (N) Powder which contains less than 10 ppm of gluten, is considered 'gluten-free', based on the Codex Alimentarius Commission's proposed definition of less than 20 ppm. However, people who experience gluten intolerance should not consume any products, including Benefiber®, that contain any level of gluten unless otherwise directed by their doctor.


  • 0
Deb
Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

#6 silly-ack

 
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Posted 16 November 2008 - 05:17 PM

My doctor told me to take Benefiber and I love it. I've never had a problem with it. Anything labelled "gluten-free" should be safe enough for pretty much anyone, so I recommend it.
  • 0
Katie

Diagnosed and Gluten free since Sept. 13, 2008.

"It's not about where you are now, but where you are going."

#7 debmidge

 
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Posted 17 November 2008 - 03:27 AM

The really sad part about this whole Benefiber thing is that before they
reformulated it a couple of years ago, it was Gluten Free and had no
wheat starch at all. I have written and called Novartis Consumer and
told them that the new ingredients are problemic for celiacs. We now get
those samples too probably because I've written to them - see how well
they listen?
"Hi we won't use your new product due to gluten issues"
reply "Here, have a sample!"
  • 0
Husband has Celiac Disease and
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006
It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

#8 ravenwoodglass

 
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Posted 17 November 2008 - 03:37 AM

My doctor told me to take Benefiber and I love it. I've never had a problem with it. Anything labelled "gluten-free" should be safe enough for pretty much anyone, so I recommend it.


Unfortunatlely doctors are not as up on what is safe for celiacs as would be desired. I would go with Benefibers own warning, repeated here with the important part for us in bold. There is a world of fiber out there that is safe and is easy to get, tasty to consume and has no gluten grains.

16. Does the new ingredient, Wheat Dextrin, have any ill effects on people who experience wheat allergies or wheat intolerance?

Benefiber® (N) Powder which contains less than 10 ppm of gluten, is considered 'gluten-free', based on the Codex Alimentarius Commission's proposed definition of less than 20 ppm. However, people who experience gluten intolerance should not consume any products, including Benefiber®, that contain any level of gluten unless otherwise directed by their doctor.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)




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