Celiac Treatment After Age 55
Posted 07 March 2005 - 09:09 AM
Particularly helpful has been the information I received from my doctor's office on celiac disease and all the web sites, including this one. In the meantime, I was able to purchase all 5 books by Bette Hagman and one by Carol Fenster which I found very helpful in terms of coping and learning to cook with the new flours, etc. I must say that in 3 months' time I have learned quite a bit. In the meantime, I think my body is readjusting to the new diet. Sometimes I experience some cramps but then they go away. Hopefully I will be able to handle this diet in the future.
My doctor recommends another blood test after 6 months, and another endoscopy after two years to evaluate the situation. I trust my doctor and think I am in good hands.
I would like to hear from other latent diagnosed cases and their experiences and maybe you can share some recipes or important information.
Posted 07 March 2005 - 11:33 AM
Had no symptoms until August last year when I began having diarrhea that I could not stop and then splotches on my arms and legs, weight loss, and vomiting. I also have Diabetes Type 1 and now wonder if the two diseases are somehow contributory to one another. I was diagnosed with Diabetes 1 when I was 21 years old.
The diet does take a lot of preparation, I think, because none of the gluten-free breads that are sold in the store are any good. I have learned to bake my own bread and cookies. Never was a big bread-eater before, but I have found I really like the taste of these special flour breads. (I also use Bette Hagmans bread and desert recipe books). I never spent much time baking before, but now I find that a LOT of time is required so that I don't miss the wheat food so much. I think that switching to this new diet is a lot easier, though, than I thought it would be.
Well, my internist is concerned that I am still anemic so I have now scheduled an endoscopy and colonoscopy with my gastroenterologist. I guess this will be the official confirmation of the Celiac diagnosis, though my health improved rapidly after going gluten-free.
So many things to learn and still going through changes! But you know I have gone from completely ignorant about Celiac to somewhat knowlegeable (and still learning)..... kind of like buying a new car.... I didn't see so many of my brand until I started driving one.
Best of Luck! Deb
Posted 07 March 2005 - 11:53 AM
I was finally diagnosed at age 42 after a total hysterectomy due to continual bleeding. It turns out that one's body needs vitamin K to clot the blood. But no one tested for deficienies. After the surgery I continued to loose weight until I was down to 89 pounds when my family doctor decided to do the blood tests. Keep in mind, Celiac disease is still considered rare, 16 years ago it was considered one out of every 10,000. So he was ahead of his time trying such rare testing. Had he not, I don't think I would have survived. As it was, I already had arthritis, anaemia, and severe bruising problems where my poor husband was getting accused of beating me. I have since been diagnosed with costocontritis and flangitis as well, but have gained weight, and I'm much healthier over all. Although iron pills are a daily thing, and will likely always be, as well as other supplements.
Even after all these years it is still a frustrating disease, although I am very glad to have Celiac disease, rather than a lot of others I can think of At least we can do something about it. Accidental contamination is something that's difficult to control and sometimes impossible to track.
I'm so glad you got some good information from your doctor's office. Things have really improved ( I know, sometimes it doesn't seem like it). There are a great deal more products out there now than what there used to be. At the time I was diagnosed there was only one kind of bread on the market ( even the crows wouldn't eat it) and very few flours etc. Now there are even cook books, and you can buy ready made in the store instead of sending to one or two places in Canada and wait for it in the mail. Oh yes ... I almost forgot ... the very most important tool to Celiac disease is now right at our finger tips! THE COMPUTER! That opened a whole new world for me when we finally got single lines in and I could get a computer! Yes, we were still on party lines out here until 1996.
Posted 07 March 2005 - 03:38 PM
Long Island, NY
Double DQ1, subtype 6
We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!
Posted 11 March 2005 - 01:28 PM
Type 1 Diabetes is one of the long-term problems associated with undiagnosed Celiac Disease.
I also have Diabetes Type 1 and now wonder if the two diseases are somehow contributory to one another. I was diagnosed with Diabetes 1 when I was 21 years old.
EDIT: Here's an article that shows a link between celiac and diabetes: http://www.ncbi.nlm....t_uids=15161778
Edited by Coulter, 11 March 2005 - 01:33 PM.
Posted 11 March 2005 - 08:05 PM
I was diagnosed at age 62. I had problems with allergies all my life, mostly environmental. I had a thyroidectomy in the year 2000 and almost died as a result of the anesthesia, spent 4 post-op days in Intensive Care. After that I developed
more severe allergies, especially in my eyes, my allergist "gave up on me, said he
wasn't able to help me. I wish I had known then what I know now, he should have done a celiac panel according to what I have read. To make a long story short, my symptoms worsened, I got abdominal cramping and bloating and after many, many tests was dx with acid reflux and a positive IGA blood test. My GI doc told me to try a gluten-free diet, which I did and it made me feel better. Now a year later he wants me to go back on gluten and dairy because I tested neg for the celiac gene.???
Needless to say no one will ever get me to go back on gluten, I react terribly still.
I can live without THE diagnosis, I never want to be that sick again!
If I can help you in anyway please let me know..
The one resolution, which was in my mind long before it took the form of a resolution, is the key-note of my life. It is this,always to regard as mere impertinences of fate the handicaps which were placed on my life almost at the beginning. I resolved that they should not crush or dwarf my soul, but rather be made to blossom, like Aaron's rod, with flowers-Helen Keller
Judy- Gluten Intolerant
Posted 12 March 2005 - 07:06 AM
Posted 15 March 2005 - 07:09 AM
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