Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Itching


tinstar

Recommended Posts

tinstar Newbie

Hi

I recently have gotten very sick. I have a rash all over my body that the Dr thought was scabies. (I work with the nursing homes) they took skin biopsy and it is not. They do not have any idea about what it could be so I decided to research it my self. About 3 yrs ago I thought that maybe I had an allergy but they came back with primary billary chorsis. I also have Graves and Hashimotos for years since I was in my 20's. I am now 58. I cannot stand this itching. It started after a diet I have been on. It is lots of soy and protien and I get a shot of B12+ some other stuff every week. The itching started on the bottom of my feet and palms of my hands. I also could not breath standing up I felt like I had to bend over or sit down then I felt better. My body felt shaky inside but my Dr gave me all kinds of tests and said the heart and lungs and 02 stats were just fine. I was looking at rashes on the internet and saw this DH and it looks like mine. They wanted to send me to a dermatoligst but I do not have insurance that will pay. Any ideas for me? I should ask her for a blood test but what do I call it? Thanks for help

Link to comment
Share on other sites
  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

if you think it's DH, it can be biopsied for a celiac DX. Check out the article (accessed from the homepage) that outlines the proper way to do the test. Take your pictures into the dr with you so you can show why you believe it's DH. A picture is worth a thousand words! I think I would approach my family dr first as you may need a referral.

Good luck!

Link to comment
Share on other sites
SGWhiskers Collaborator

I don't know much about DH. I do know that Primary Billiary Cirrosis is highly associated with Celiac. Open Original Shared Link You need to have your doc test your blood for Celiac, especially since you think you have DH. I hope the Cirrosis is progressing slowly for you.

Serologic Tests

EMA (Immunoglobulin A anti-endomysium antibodies)

AGA (IgA anti-gliadin antibodies)

AGG (IgG anti-gliadin antibodies)

tTGA (IgA anti-tissue transglutaminase)

Total IGA should also be tested because 2-3% of Celiacs are negative for IGA, and it can cause false negatives.

Take care.

Link to comment
Share on other sites
ZsaZsa Newbie

I have been Hightly allergic to Soy (Any form of soy)......for over a decade!.......I discovered the soy allergy long before I even figured out the Celiac problem......AND the Soy CAUSED SEVERE ITCHING!!! Soy is in practically everything in one form or another.....so, If it's the culprit......you'll have to be even more vigilant in trying to avoid not only Gluten.....but soy forms also! I had the Dh rash for years on my legs......and After deleting the soy, the rash started going away, layer by layer..........then ONLY after deleting Gluten from my diet........the rash I'd had for years, and years......gradually dissapated. Anytime I come in contact with soy, my head fingers and face will severely itch and become inflamed! ........Just my 2 cents worth.

Link to comment
Share on other sites
  • 3 weeks later...
mrmachinist Newbie

I would agree with the recomendation to get away from soy, the media "kool-aid" drinkers try to tell you soy is a miracle food, but the truth is it is one of the worst things you can eat.

Link to comment
Share on other sites
mushroom Proficient

Add me to the list of soy itchers. It drove me cracy.

Link to comment
Share on other sites
MyMississippi Enthusiast

A diet with "lots of soy" is not a healthy diet. In fact, " lots of " anything tends to make us sick. We need variety and MODERATION in our diets---- mostly vegs and lean protein (not from soy).

My two cents worth.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results

    2. - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

    3. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    4. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    5. - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,221
    • Most Online (within 30 mins)
      7,748

    lortaine
    Newest Member
    lortaine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
×
×
  • Create New...