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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Pms And Other Hormone Issues
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5 posts in this topic

I have been looking for any information about this but only found contrary results. I am curious if other women find they have hormone issues with celiac disease/because of celiac disease that include PMS, bad cramps, heavy menstrual periods and extreme crankiness around "that time". I have read much info about people *not* having periods (ahhhh, what a blessing!) and having infertility issues (I had a miscarriage once when I was only about one month pregnant 16 years ago but haven't tried to have children since) but most of the info I read doesn't address my symptoms/issues.

I was on the pill for 13 years and stopped taking it 4 years ago as my hormones were getting more and more imbalanced. I used progesterone cream for a couple of years and then added Chaste Tree Berry supplements and that weaned me off the cream. Both supplements have helped me somewhat but recently I've been suspecting the Chaste Tree Berry supplement I take might have gluten (modified cellulose gum) and I can't get the company to respond to me to help me find out so I have been trying another weaker brand and the last two cycles for me have been very uncomfortable.

It makes sense to me that being deficient in nutrients would throw off the hormonal balance but what surprises me is that I haven't seen these symptoms described as a possible result of celiac disease. So I'm wondering if they have anything to do with it at all.

Does anyone else have any kind of experiences like this?

Thanks

Stephanie

gluten-free for 4 months now... sending in my Entero Lab test today.

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A deficiency in a number of vitamins and minerals can affect the menstrual cycle - in many ways. B vitamins, and calcium, in particular, I believe, can be a factor. (I take extra of both, because of this.) As for why it's not listed as a symptom... probably because it's been too difficult for doctors to connect, since these things occur independently of celiac quite frequently as well.

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Thanks for the response.

I definitely take a B complex and cal/mag/zinc to help out with these things. I'm just baffled though. I thought I'd found a miracle when I first tried progesterone cream - it helped so much. But I'd like to find a solution that allows my body to start doing its job better, not rely on a supplement for the rest of my life.

Vitex Agnus (Chast Tree Berry) is supposed to stimulate your body to make more of the apropriate hormones. I have all the symptoms of having too little progesterone production on my own or way too much estrogen and I know that is linked to liver activity, which mine seems to be fine on the charts (lab tests always look great) but I have many symptoms of liver congestion.

I know having food intolerances and digestive problems are hard on the liver and/or can be made worse because of sluggish liver function so I try also to take supplements to help my liver (milk thistle, turmeric, raddish and beet juice, dandelion) and find that when I am more diligent I feel better, have more energy, etc. I have been thrown by the question as to whether or not my Vitex Agnus supplement as well as two liver combo supplements (Stone Free and Bupleurum Liver Cleanse by Planetary Formulas) all contain modified cellulose gum, all made by the same company, and I have not been able to find out if they are gluten free. I have called and emailed and left messages and no reply. I'm frustrated by this and can't seem to find equivalent supplements yet to take instead.

Anyway, I appreciate your response.

Stephanie

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I had these problems *before* going gluten-free, but they cleared up after I quit eating wheat. I think there must have been a connection, because I was having heavy periods and really bad pms before, these were symptoms that showed up about the same time other problems (rashes and bad gi symptoms, etc.) started causing trouble. I'd never had PMS before, but it was an issue for the 3 years before I went gluten-free. It's only been 2 months, but both months I noticed lighter bleeding and no pms! Yea! Hopefully this will keep up.

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That's actually what I'd hoped would happen for me. Maybe I'm not giving myself enough time. Or maybe I'm getting enough gluten sneaking back into my diet somehow that I'm not aware of. I'm really looking forward to getting my results from Entero Lab. I just sent in my kit today.

I can't think of where I'd still be getting gluten, though.

Stephanie

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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