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Woman On The Board, Question?
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5 posts in this topic

So I was diagnosed with Celiac mid Oct. this past year. Been on the diet since.

At the end of Nov. my period was a week late. After just recently breaking up with my boyfriend, worried myself sick that I was pregnant, eventhough the likelihood of that was low, we used a condom. I never kept the greatest track of my period before, but always had an idea of when it should come. I was so worried, I took two home preg. tests, both negative. Four days later, my period still had not showed. I went to my dr. where she gave me a blood preg. test. Negative. Two days later got my period. Ever since, my periods were on schedule again.

But now, my last period was Jan. 28th!!! I'm well over a week past due, and worried now that something is goin on. This time, thank god, theres not even a second guess in my mind that I'm pregnant, no sexual activity since my break up. However this doesn't seem normal. Is it the diet? I got tested at the same time for Celiac for anemia, and my iron levels were normal.

I tried finding posts on here in the archive that related. Unfortunately all I could find were posts talking about the girl's periods being irregular or absent before going gluten-free, not the other way around. So whats going on, now that I'm gluten-free and my periods are all screwy.

Any advice, words of comfort, similar experiences would be much appreciated. thanks.

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If you just went gluten free back in October, it may take a while to become regulatragain. Plus, if you're under any stress, that will cause it to be late as well (I just got mine after being 2 weeks late-and I'm usually regular!).

Good luck-

Nadia

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Accidental gluten ingestion is one of the few things that will cause me to be late in my cycle.

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I agree with what the other two have said. Stress, accidental ingestion of gluten, recovery from glutenous diet, they can all affect your cycle. Just a note: don't count on a condom to prevent pregnancy! My third child was conceived while a condom and the Today Sponge were being used!

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With me my period comes also later, when I accidentaly ingested gluten, but it depends on when in the cycle it happens. If it happens in the first view days, then the period mostly is in time. If it's in the last view days, the period comes later. Also stress can cause it to come later. And breaking up with your boyfriend sure was stress, too.

Hugs, Stef

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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