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Feeling Malnourished
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Hi guys,

I went to a new dr yesterday. She's an MD but practices Naturopathy and Homeopathy. We had a 2 hour consult and I told her how I have been feeling. She said that I am suffering from malnutrition which is why I have the rapid heart rate, fatigue and muscle pain. She feels that it can be a magnesium deficiency. She put me on some vitamins but I have to tell you that my gut is soooooooo irritated today from them. She also suggested that I eat some nuts as protein and although walnuts and pecans were NOT one of the allergy foods on my YORK food allergy test....I reacted to them yesterday and today! I immediately felt sick from them. I also made bread today.....successfully for the first time!! Yeah! but after eating some of it I started to get bloated and feel ill as well. So, I pulled out my YORK allergy testing again and found that potatoes are one of the allergy foods. Last week I had a sweet potatoe and was sick all day from it. One of the ingredients of the bread mix was potatoe starch....hhmmmmmmm.

The dr told me that I am reacting to a lot of foods but with time as my gut heals I will be able to eat more foods. Has anyone out there had this experience. She also said that I am probably her worst celiac case with all my other intolerances and health problems.

This weekend I felt sooooooooo hungry and ate continuously but never felt nourished! I haven't been able to sleep because the rapid heart rate is keeping me up and the muscle pain is just so debilitating. I feel exhausted and although I am pushing and trying to be well I keep hitting roadblocks with my diet and the foods that I attempt to eat. I think it is just too soon to add new foods.

I started vitamins last night but after taking them again this morning my gut just started to feel irritated again. I know that I need supplements but my gut is so raw now that I am not sure it is a good idea to continue. I am seeing my GI tomorrow and telling him what has been going on. I only saw him once and he seemed OK...he's the one who referred me to another celiac pt for help with diet. Thurdsay I am seeing my old dr in NY and will probably have her put me back on vitamin infusions just until I get stronger. Any thoughts? anyone else getting vitamin infusions? has anyone had problems with feeling malnourished and getting palpatations and fatigue? Would love to know how you handled it.

Thanks for all your help,

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I started getting sick several months ago and have been gluten-free now for 4 weeks.

I couldn't take vitamins without it tearing my stomach up. But I now that I need the extra nutrients because of my weight loss. So I tried a smaller one - I found Schiff Vegetarian Multiple that is gluten-free to be ok. I would need to take two of them daily, but I only take one right now. I also do some liquid B vitamins. I couldn't take calcuim either - which I know I need. So I tried Coral Cacium, and it is easier on my stomach. So much bothers my stomach right now that I get really confused on what to eat. I can't eat soy, eggs, potatoes, meat, sugar, dairy and gluten. That leaves a lot of veggies - cooked and raw. Starchy foods like potatoes really bother me. I have to be careful not to eat too much rice and corn. I still have stomach trouble at times. Try soaking the nuts in water for several hours before you eat them. Sometimes that helps. There are times that I'm like you - feel soooo hungry. But other times I feel so full, bloated and constipated that I can't eat anything. I've lost a lot of weight and everyone comments on how thin I am. But what do I eat? I'm getting better each day, but it's a struggle. Anyone else have some suggestions?

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Are you taking any sort of probiotics or good bacteria to help your gut heal?

I never had the real difficulty eating (except for a short while) but I definitely had the agonzing muscle pain. I'm not sure your stomach would handle Advil but that's what I took.

richard

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    • That's great to hear you are feeling better Nightsky.  I really think when our GI systems are in distress already that it doesn't take much to set off symptoms.  Once I eliminated the other foods that cause me symptoms that helped a lot too.  And added some extra vitamin D to my diet and selenium. Many of us have developed reactions to other foods besides gluten and need to avoid them to keep symptoms at bay.  For me nightshades, carrots, soy, dairy, and celery all cause symptoms.  It took me awhile to figure out all those food culprits, but it made a big difference getting them out of my diet. But we are all individuals, and our bodies react individually.  So you may or may not have additional food intolerances develop. Celiac is one of those life journey things and we learn as we go.  Just keep the bottle of aspirin handy!
    • I know that Lea & Perrins Worcestershire Sauce  in the US is gluten free, I also know that in Canada it is NOT. This is a very reliable site: http://www.glutenfreedietitian.com/vinegar/ But it is in the US. I'm agast that the Irish Celiac Society says malt vinegar is gluten free.  I wouldn't use it. No sense taking any chance at all.
    • You should never have cut out gluten until you had the biopsy done. It's much worse to have to go back on after you've been off gluten for a while. There's no way I could ever do the gluten challenge after being off gluten for even a month because my reactions got so dramatically worse.  Stress definately can trigger celiac- before I was diagnosed - it got the worst after surgery and after a stressful time planning my daughters wedding. 
    • Hi not diagnosed celiac, Welcome to the forum! Your doctor should be sent to remedial celiac disease training.  Since that probably won't happen, I suggest you find a new doctor.  He doesn't know what he's doing when it comes to diagnosing celiac disease. You should not have gone gluten-free before completing all celiac disease testing.  The testing for celiac disease depends on the immune reaction being active.  Removing gluten before testing removes the antigen that causes the immune system to react, and lowers the chances of getting a correct test result dramatically.  The University of Chicago celiac disease center recommends: ******************************************** http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ Prior to blood testing we recommend 12 weeks of eating gluten. Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten. In the case of a severe reaction to gluten, a medical professional may opt to shorten the 12-week challenge and move immediately to an endoscopic biopsy. May, 2013 ******************************************** So you will need to go back to eating gluten before your endoscopy.  That may cause worse symptoms than before when you were eating gluten.  So it would have been better to do all testing before going gluten-free. Can you search for a celiac disease support group in your area?  They exist in many parts of the USA and world.  They can be a good place to get a knowledgeable doctor recommendation.  There is also a doctors subsection of this forum where you can search to see if any doctors in your area were recommended.
    • Hi All, I'm new to this and very confused! I have Lea & Perrins WC sauce, it lists it's first ingredient as Malt Vinegar.  I have the Coeliac Society of Ireland Food List 2015 here, and it says "All Vinegars are Gluten Free including Malt Vinegar." Doesn't that mean that L&P Worcestershire sauce is safe?   Their website states " Lea & Perrins® Worcestershire Sauce is cholesterol free, fat free, preservative free, gluten free and has 80% less sodium than soy sauce. " I'm cooking for my coeliac niece, can't afford to make a mistake!
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