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Cough As A Reaction?

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Amber M

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Posted 14 January 2009 - 04:40 PM

I bought the book and read almost the whole thing last night. Very interesting. Thanks for the suggestion.

I am curious... if your test came back negative, did you simply decide to go gluten free yourself? Or did you have further testing? Or did your doctor say you might simply be gluten sensitive? I have a fear that I'll get a negative test result and the doc will tell me it's all in my head!

I had the endescope with biopsy after being gluten free for over two months and it also came back negative. That is why I decided to have the gene test (results below) and then did a pile of research on the genes that I have. Gluten sensitivity is the beginning of celiac disease and can cause many serious neurological problems with or without digestive issues. (I have gotten rid of Gerd completely since gluten free and still have lower colon problems) The gluten attacks the base of the brain when you are sensitive rather than celiac. My genes are the ones that usually cause gluten ataxia. Celiacs neurological problems are usually caused by Malabsorption of neutrients. My Allergist is the one who diagnosed me and then my MD finally believed I had a problem when I took the gene test into her along with my symptoms and many tests ruling out many other things that could have caused my problems. Many Doctors are unaware that you can have just as serious a problems when you are gluten sensitive as apposed to having a confirmation of celiac. They just think you have to be a "positive" on celiac test to be diagnosed with a gluten problem. If your Doctor does this, you need a new one that has researched enough to know about this. Many people that come back negative for celiac are told to go ahead and eat the stuff not knowing it can still cause you a lifetime of health problems and auto-immune diseases that could have been avoided.
If you know by the diet that you are having problems with gluten, for heavens sake, don't worry about a diagnosis, just stop eating it to save yourself. But I understand wanting a diagnosis, because I pushed for one myself.
Another thing is that it appears you can only get the "tax deduction" for food if it is a "Celiac" diagnosis only! Now thats just not fair! I spend a lot more on food now.
I notice that other countries are doing a lot more research and are more up to date on the sensitive issue. There is a lot of info on line if you google gluten sesitive along with celiac. I find I have to educate my medical people all the time. It just isn't "out there" enough yet. I say above all, listen to your body! I am still trying to find an educated MD in Maine, haven't yet! My Allergist is the one who knows the most about it.
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Amber Martin
Gluten Free since Mid July 2008 (except a few slips)
Soy Free for over 30 years, Corn free Jan. 2009
Allergic to Clams, legumes, Soy, Pine Pollen
Still can't digest all grains (except brown rice), processed sugar
Gene Test: HLA-DQB1-Allele 1 0301
HLA-DQB1-Allele 2 0603 (genes from both parents)
Serologic equivalent HLA-DQ 3,1 (subtype 7,6)
Imulogical Gluten Sensitivity
Gluten Ataxia
Tested negative for Celiac on Blood Test after being gluten free
Tested negative for Celiac on Single Biopsy-upper intest. after being gluten free for 3 months

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Christina B

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Posted 19 October 2009 - 09:21 AM

It was actually acute and chronic bronchitis that made my doctor suggest celia disease. Once I went off gluten (and dairy, I seem to have issues there as well) I gradually felt better, lost the constant bronchitis and even the intermitant coughing. Three years later, I'm about 98% gluten-free and dairy free, but when I eat something that constains either, I get a itchy dry cough and sometimes a mild sore throat before the lethargy hits. These all fade as long as I don't touch anything else. If I continue to eat bad food or eat a very large amount, I will get very very sick with first a cough, then a cold with a sore throat and have to take precautions to not let it develop into bronchitis.

I just ate something with a bit of farina in it and I'm getting an itchy cough already... serves me right for trying farina out...
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Posted 16 February 2010 - 02:16 PM

This is so strange. I know know that I have celiac disease or at least am gluten-sensitive. When my sibling was diagnosed with celiac disease, I had to switch to a gluten-free diet to make things easier on my mom. I lived gluten-free for a year and then I had to go to a boarding school where I was back on gluten again. I developed a chronic cough that only stopped when I was sleeping. I can't remember if it was wet or dry, but it was with me ALL DAY LONG. I had it for one year.

I then returned to my mom and she immediately put me on a gluten-free diet again. The cough went away in one week.

In the years after that, I did go back to eating gluten without the cough returning -- but I always cough after meals. I will see if it goes away when I return to a gluten-free diet.
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Posted 16 February 2010 - 02:25 PM

I had a dry cough and asthma-like symptoms. They've gone away after 2 weeks on the diet.

Same here! Two weeks and its gone, I'm amazed at how quickly this diet seems to be working for me :)
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Posted 11 May 2013 - 02:57 PM

My mother and I both coughed for decades.  I was told that I had chronic bronchitis, reactive airway disease, exercise induced asthma, allergies, etc.  We were both seen by allergists in different states who tested us for seasonal allergies.  We both continued to suffer and found little relief from steroids and inhalers.  And, when one of us would get sick, it would turn into bronchitis with severe coughing fits.  I gave up gluten for other health reasons and viola...my 20+ year productive cough disappeared overnight!  My mom gave it a try and her cough disappeared as well.  Her cough was so persistent that she did it in her sleep.  My dad says he is getting the best nights sleep he has had in decades.  My husband is in the military and I have lived in 10 different locations over the years.  I have seen countless doctors across the country and in Europe.  No one considered a food allergy or gluten as the reason for my cough.  We are so glad that we finally have an answer...and our husbands are glad too :)

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Diagnosis: Systemic Lupus Erythematosus (2001); Rheumatoid Arthritis (2011); Sjogren's Syndrome; Raynaud's (Mixed Connective Tissue Disease)

Symptoms: Joint pain and bone erosion; nerve pain; hair loss; mouth sores; chronic fatigue; circulation issues (blue feet)

Drugs Failed: Plaquenil, Methotrexate, Leflunomide, Humira, Orencia, Allergic reaction to Actemra, Prednisone currently only working at very high doses so no longer an option

Current Drugs: Xeljanz, Doxycycline 100 mg 2x day 

Other health issues: Undiagnosed problem with gluten (asthma/bronchitis); possible thyroid issue

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