I had the endescope with biopsy after being gluten free for over two months and it also came back negative. That is why I decided to have the gene test (results below) and then did a pile of research on the genes that I have. Gluten sensitivity is the beginning of celiac disease and can cause many serious neurological problems with or without digestive issues. (I have gotten rid of Gerd completely since gluten free and still have lower colon problems) The gluten attacks the base of the brain when you are sensitive rather than celiac. My genes are the ones that usually cause gluten ataxia. Celiacs neurological problems are usually caused by Malabsorption of neutrients. My Allergist is the one who diagnosed me and then my MD finally believed I had a problem when I took the gene test into her along with my symptoms and many tests ruling out many other things that could have caused my problems. Many Doctors are unaware that you can have just as serious a problems when you are gluten sensitive as apposed to having a confirmation of celiac. They just think you have to be a "positive" on celiac test to be diagnosed with a gluten problem. If your Doctor does this, you need a new one that has researched enough to know about this. Many people that come back negative for celiac are told to go ahead and eat the stuff not knowing it can still cause you a lifetime of health problems and auto-immune diseases that could have been avoided.
I bought the book and read almost the whole thing last night. Very interesting. Thanks for the suggestion.
I am curious... if your test came back negative, did you simply decide to go gluten free yourself? Or did you have further testing? Or did your doctor say you might simply be gluten sensitive? I have a fear that I'll get a negative test result and the doc will tell me it's all in my head!
If you know by the diet that you are having problems with gluten, for heavens sake, don't worry about a diagnosis, just stop eating it to save yourself. But I understand wanting a diagnosis, because I pushed for one myself.
Another thing is that it appears you can only get the "tax deduction" for food if it is a "Celiac" diagnosis only! Now thats just not fair! I spend a lot more on food now.
I notice that other countries are doing a lot more research and are more up to date on the sensitive issue. There is a lot of info on line if you google gluten sesitive along with celiac. I find I have to educate my medical people all the time. It just isn't "out there" enough yet. I say above all, listen to your body! I am still trying to find an educated MD in Maine, haven't yet! My Allergist is the one who knows the most about it.