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Help! Strong Reaction To Breathing In Flour Dust!
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8 posts in this topic

I am in need of some thoughts and suggestions please for a scary reaction!

Two of my daughters and myself were diagnosed with Celiac (positive blood test and

biopsy - flat villi) two years ago. Three more of my daughters developed GI and stomach

issues and were all diagnosed with Celiac and Casein Intolerance (Enterolab) in the last 4

months. We all have strong reactions when we accidently ingest gluten.

Unfortunately, my oldest daughter, in college training to be a Registered Dietician, has

accidently been exposed to wheat flour dust in her food labs class three times in the last

month. Each time she has had a much stronger reaction. She is wearing a mask and leaving

the room when warned. But for the future, I need to visit with people who

have experienced a strong reaction to inhaled gluten. My daughter is very scared at how

much stronger her reaction has been each time. We need to know if anyone else has

experienced a strong reaction to inhaled gluten and what they are doing to make it

through a glutening. We also need to know just how bad this can become. She is doing all

she can to avoid any further inhalations, but it is bound to happen again somewhere,

sometime and she is scared. It is as if she has been drugged.

Within 5-10 min. of someone forgetting and opening up a container of wheat flour in the

same room she is in she begins to develop a fuzzy mind, becomes quite agitated,

disoriented, starts breathing very shallow, confused, with the confusion and anxiety

lasting between 45 min. to 2 hours and then hits a low that makes her almost fall asleep

standing up.

Then she feels a euphoric high where colors are greatly enhanced, everything is detached

which lasts about half a day.

Then she has a terrible headache, is very shaky, weak muscles, confused, very anxious,

cannot think straight - mixes up dates, cannot multi-task, can't focus to study, etc. (this

girl is extremely organized and never experiences anxiety, so this is very out of character).

This crash lasts about a half day to a day and she cannot sleep during this time due to

terrible confusion and anxiety.

After another day, this all resolves completely and she is back to her very organized,

studious self until she is accidently exposed to wheat flour dust again. This is all so very

strange and scary.

Have any of you experienced any of this or heard of such a reaction? Please share your

thoughts and experience! Thank you so much!

Marie

gosfam@shaw.ca

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I get a very strong reaction to inhaling flour also. From what you've said here your daughter may also have an allergy to wheat as well. Some of those symptoms sound a lot more like an allergy. The worsening of reactions could also be a result of chronic exposure. Many people can tolerate a small amount but if they are exposed to it over a few days or weeks it overloads their system. Your daughter should also discuss this with school administrators to see if there are any alternatives. I hope this helps!

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I also have a very strong reaction to inhalation if wheat flours. Almost passed out while walking though a kitchen in Europe this summer. Since I lecture at the local culinary school, I had to change my schedule to wait 2 days until after the baking class.

A good quality mask that can prevent inhalation of fine particulate like pollen helps a lot.

In the last four years i've had this problem less than 10 times. The first few times it got worse but using the mask when I have to be in other kitchens, staying totally out of bakeries and preventing anyone (my wife!0 form bringing flour into the house has helped a lot.

When I was exposed like your daughter, I had similar problems with confusion and breathing and was very sleepy.

It's not good for the teacher to fall asleep in class! Unfortunately, perhaps, I did not get the euphoric high :D

I wish her luck in avoiding further exposure -- I know its not fun!

Ken

I am in need of some thoughts and suggestions please for a scary reaction!

Two of my daughters and myself were diagnosed with Celiac (positive blood test and

biopsy - flat villi) two years ago. Three more of my daughters developed GI and stomach

issues and were all diagnosed with Celiac and Casein Intolerance (Enterolab) in the last 4

months. We all have strong reactions when we accidently ingest gluten.

Unfortunately, my oldest daughter, in college training to be a Registered Dietician, has

accidently been exposed to wheat flour dust in her food labs class three times in the last

month. Each time she has had a much stronger reaction. She is wearing a mask and leaving

the room when warned. But for the future, I need to visit with people who

have experienced a strong reaction to inhaled gluten. My daughter is very scared at how

much stronger her reaction has been each time. We need to know if anyone else has

experienced a strong reaction to inhaled gluten and what they are doing to make it

through a glutening. We also need to know just how bad this can become. She is doing all

she can to avoid any further inhalations, but it is bound to happen again somewhere,

sometime and she is scared. It is as if she has been drugged.

Within 5-10 min. of someone forgetting and opening up a container of wheat flour in the

same room she is in she begins to develop a fuzzy mind, becomes quite agitated,

disoriented, starts breathing very shallow, confused, with the confusion and anxiety

lasting between 45 min. to 2 hours and then hits a low that makes her almost fall asleep

standing up.

Then she feels a euphoric high where colors are greatly enhanced, everything is detached

which lasts about half a day.

Then she has a terrible headache, is very shaky, weak muscles, confused, very anxious,

cannot think straight - mixes up dates, cannot multi-task, can't focus to study, etc. (this

girl is extremely organized and never experiences anxiety, so this is very out of character).

This crash lasts about a half day to a day and she cannot sleep during this time due to

terrible confusion and anxiety.

After another day, this all resolves completely and she is back to her very organized,

studious self until she is accidently exposed to wheat flour dust again. This is all so very

strange and scary.

Have any of you experienced any of this or heard of such a reaction? Please share your

thoughts and experience! Thank you so much!

Marie

gosfam@shaw.ca

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I react to inhaled flour but very differently. It was maybe 3 months after going gluten free. I was throwing out the flour. I was very careful and not aware of breathing any. I wasn't sick until the next morning which is usual for me. Then I had GI symptoms, severe depression, fatigue, confusion, etc. which lasted 3 weeks. I think the flour was traveling down to my stomach from my nasal passages for a long time. A normal gluten reaction for me lasts more like one week. My celiac son has gotten medical excuses from cooking class. It would be nice to have more celiac dieticians, but how can that be if they need to be exposed to flour to become dieticians? Bio K helps me recover. Maybe immediate nasal lavage would help. There is a video on-line about that.

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Hi Janet,

Thank you so much for your response and idea. I wonder if I can find a doctor that is knowledgeable about this? It is so scary for her. If you come up with any other ideas, please let me know.

With appreciation,

Marie ;-)

I get a very strong reaction to inhaling flour also. From what you've said here your daughter may also have an allergy to wheat as well. Some of those symptoms sound a lot more like an allergy. The worsening of reactions could also be a result of chronic exposure. Many people can tolerate a small amount but if they are exposed to it over a few days or weeks it overloads their system. Your daughter should also discuss this with school administrators to see if there are any alternatives. I hope this helps!
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Ken,

I sure appreciate you taking the time to share your thoughts. It will make her feel better knowing she is not the only one with such a severe reaction. This has been very scary for her. Mostly the thought of wondering how much worse it can become ... I wonder if I could find a knowledgeable doctor ... thank you again!

With appreciation,

Marie ;-)

I also have a very strong reaction to inhalation if wheat flours. Almost passed out while walking though a kitchen in Europe this summer. Since I lecture at the local culinary school, I had to change my schedule to wait 2 days until after the baking class.

A good quality mask that can prevent inhalation of fine particulate like pollen helps a lot.

In the last four years i've had this problem less than 10 times. The first few times it got worse but using the mask when I have to be in other kitchens, staying totally out of bakeries and preventing anyone (my wife!0 form bringing flour into the house has helped a lot.

When I was exposed like your daughter, I had similar problems with confusion and breathing and was very sleepy.

It's not good for the teacher to fall asleep in class! Unfortunately, perhaps, I did not get the euphoric high :D

I wish her luck in avoiding further exposure -- I know its not fun!

Ken

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Motherof6,

Wow! What a reaction! Ken and everyone gave good advice. I hope she can persevere, because we need more celiac-knowledgeable/friendly dieticians!

She probably needs to wear a respirator at all times in these types of kitchen/classrooms. They sell face-mask respirators for use in asbestos removal or for use with bad chemical fumes

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This was so kind and helpful of you to respond with your experience. I have passed this on to my daughter. At least she won't think she is going crazy knowing that there are a few others that have experienced these kinds of symptoms to inhaled gluten. Now we need to figure out how to lessen the severity of the symptoms when she is accidently exposed. Although she will wear a mask and leave the room when warned, it really is only a matter of time when she will be exposed to gluten dust in the air somewhere. Thank you for your suggestions! If you think of anything else, please let me know. This is scary for her. Thank you!

With appreciation,

Marie ;-)

I react to inhaled flour but very differently. It was maybe 3 months after going gluten free. I was throwing out the flour. I was very careful and not aware of breathing any. I wasn't sick until the next morning which is usual for me. Then I had GI symptoms, severe depression, fatigue, confusion, etc. which lasted 3 weeks. I think the flour was traveling down to my stomach from my nasal passages for a long time. A normal gluten reaction for me lasts more like one week. My celiac son has gotten medical excuses from cooking class. It would be nice to have more celiac dieticians, but how can that be if they need to be exposed to flour to become dieticians? Bio K helps me recover. Maybe immediate nasal lavage would help. There is a video on-line about that.
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    • Hi Aly and welcome You may want to repost this in a new thread, that way more people will see it and can advise you.  I think you would be much better off getting the celiac test now, if you stay off gluten you will need to go back on it and that can be much harder. That said, loads of your symptoms look like they could be gluten related.  I had a persistent 'trapped nerve' for instance under my eye which would twitch like crazy. Since I went gluten-free doesn't happen any more.  Best of luck! Matt
    • Your scalp sounds like seborrheic dermatitis. I have that and although its better after going gluten-free its very persistent. The dermatologist recommended Nizoral shampoo for it and it does help. I think dairy has a big part to play with skin problems, for me at least. 
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
    • Just found this site today. Did you ever find one? I was diagnosed this year and I live on Oahu.
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
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