Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Help! Strong Reaction To Breathing In Flour Dust!
0

8 posts in this topic

I am in need of some thoughts and suggestions please for a scary reaction!

Two of my daughters and myself were diagnosed with Celiac (positive blood test and

biopsy - flat villi) two years ago. Three more of my daughters developed GI and stomach

issues and were all diagnosed with Celiac and Casein Intolerance (Enterolab) in the last 4

months. We all have strong reactions when we accidently ingest gluten.

Unfortunately, my oldest daughter, in college training to be a Registered Dietician, has

accidently been exposed to wheat flour dust in her food labs class three times in the last

month. Each time she has had a much stronger reaction. She is wearing a mask and leaving

the room when warned. But for the future, I need to visit with people who

have experienced a strong reaction to inhaled gluten. My daughter is very scared at how

much stronger her reaction has been each time. We need to know if anyone else has

experienced a strong reaction to inhaled gluten and what they are doing to make it

through a glutening. We also need to know just how bad this can become. She is doing all

she can to avoid any further inhalations, but it is bound to happen again somewhere,

sometime and she is scared. It is as if she has been drugged.

Within 5-10 min. of someone forgetting and opening up a container of wheat flour in the

same room she is in she begins to develop a fuzzy mind, becomes quite agitated,

disoriented, starts breathing very shallow, confused, with the confusion and anxiety

lasting between 45 min. to 2 hours and then hits a low that makes her almost fall asleep

standing up.

Then she feels a euphoric high where colors are greatly enhanced, everything is detached

which lasts about half a day.

Then she has a terrible headache, is very shaky, weak muscles, confused, very anxious,

cannot think straight - mixes up dates, cannot multi-task, can't focus to study, etc. (this

girl is extremely organized and never experiences anxiety, so this is very out of character).

This crash lasts about a half day to a day and she cannot sleep during this time due to

terrible confusion and anxiety.

After another day, this all resolves completely and she is back to her very organized,

studious self until she is accidently exposed to wheat flour dust again. This is all so very

strange and scary.

Have any of you experienced any of this or heard of such a reaction? Please share your

thoughts and experience! Thank you so much!

Marie

gosfam@shaw.ca

0

Share this post


Link to post
Share on other sites


Ads by Google:

I get a very strong reaction to inhaling flour also. From what you've said here your daughter may also have an allergy to wheat as well. Some of those symptoms sound a lot more like an allergy. The worsening of reactions could also be a result of chronic exposure. Many people can tolerate a small amount but if they are exposed to it over a few days or weeks it overloads their system. Your daughter should also discuss this with school administrators to see if there are any alternatives. I hope this helps!

0

Share this post


Link to post
Share on other sites

I also have a very strong reaction to inhalation if wheat flours. Almost passed out while walking though a kitchen in Europe this summer. Since I lecture at the local culinary school, I had to change my schedule to wait 2 days until after the baking class.

A good quality mask that can prevent inhalation of fine particulate like pollen helps a lot.

In the last four years i've had this problem less than 10 times. The first few times it got worse but using the mask when I have to be in other kitchens, staying totally out of bakeries and preventing anyone (my wife!0 form bringing flour into the house has helped a lot.

When I was exposed like your daughter, I had similar problems with confusion and breathing and was very sleepy.

It's not good for the teacher to fall asleep in class! Unfortunately, perhaps, I did not get the euphoric high :D

I wish her luck in avoiding further exposure -- I know its not fun!

Ken

I am in need of some thoughts and suggestions please for a scary reaction!

Two of my daughters and myself were diagnosed with Celiac (positive blood test and

biopsy - flat villi) two years ago. Three more of my daughters developed GI and stomach

issues and were all diagnosed with Celiac and Casein Intolerance (Enterolab) in the last 4

months. We all have strong reactions when we accidently ingest gluten.

Unfortunately, my oldest daughter, in college training to be a Registered Dietician, has

accidently been exposed to wheat flour dust in her food labs class three times in the last

month. Each time she has had a much stronger reaction. She is wearing a mask and leaving

the room when warned. But for the future, I need to visit with people who

have experienced a strong reaction to inhaled gluten. My daughter is very scared at how

much stronger her reaction has been each time. We need to know if anyone else has

experienced a strong reaction to inhaled gluten and what they are doing to make it

through a glutening. We also need to know just how bad this can become. She is doing all

she can to avoid any further inhalations, but it is bound to happen again somewhere,

sometime and she is scared. It is as if she has been drugged.

Within 5-10 min. of someone forgetting and opening up a container of wheat flour in the

same room she is in she begins to develop a fuzzy mind, becomes quite agitated,

disoriented, starts breathing very shallow, confused, with the confusion and anxiety

lasting between 45 min. to 2 hours and then hits a low that makes her almost fall asleep

standing up.

Then she feels a euphoric high where colors are greatly enhanced, everything is detached

which lasts about half a day.

Then she has a terrible headache, is very shaky, weak muscles, confused, very anxious,

cannot think straight - mixes up dates, cannot multi-task, can't focus to study, etc. (this

girl is extremely organized and never experiences anxiety, so this is very out of character).

This crash lasts about a half day to a day and she cannot sleep during this time due to

terrible confusion and anxiety.

After another day, this all resolves completely and she is back to her very organized,

studious self until she is accidently exposed to wheat flour dust again. This is all so very

strange and scary.

Have any of you experienced any of this or heard of such a reaction? Please share your

thoughts and experience! Thank you so much!

Marie

gosfam@shaw.ca

0

Share this post


Link to post
Share on other sites

I react to inhaled flour but very differently. It was maybe 3 months after going gluten free. I was throwing out the flour. I was very careful and not aware of breathing any. I wasn't sick until the next morning which is usual for me. Then I had GI symptoms, severe depression, fatigue, confusion, etc. which lasted 3 weeks. I think the flour was traveling down to my stomach from my nasal passages for a long time. A normal gluten reaction for me lasts more like one week. My celiac son has gotten medical excuses from cooking class. It would be nice to have more celiac dieticians, but how can that be if they need to be exposed to flour to become dieticians? Bio K helps me recover. Maybe immediate nasal lavage would help. There is a video on-line about that.

0

Share this post


Link to post
Share on other sites

Hi Janet,

Thank you so much for your response and idea. I wonder if I can find a doctor that is knowledgeable about this? It is so scary for her. If you come up with any other ideas, please let me know.

With appreciation,

Marie ;-)

I get a very strong reaction to inhaling flour also. From what you've said here your daughter may also have an allergy to wheat as well. Some of those symptoms sound a lot more like an allergy. The worsening of reactions could also be a result of chronic exposure. Many people can tolerate a small amount but if they are exposed to it over a few days or weeks it overloads their system. Your daughter should also discuss this with school administrators to see if there are any alternatives. I hope this helps!
0

Share this post


Link to post
Share on other sites




Ken,

I sure appreciate you taking the time to share your thoughts. It will make her feel better knowing she is not the only one with such a severe reaction. This has been very scary for her. Mostly the thought of wondering how much worse it can become ... I wonder if I could find a knowledgeable doctor ... thank you again!

With appreciation,

Marie ;-)

I also have a very strong reaction to inhalation if wheat flours. Almost passed out while walking though a kitchen in Europe this summer. Since I lecture at the local culinary school, I had to change my schedule to wait 2 days until after the baking class.

A good quality mask that can prevent inhalation of fine particulate like pollen helps a lot.

In the last four years i've had this problem less than 10 times. The first few times it got worse but using the mask when I have to be in other kitchens, staying totally out of bakeries and preventing anyone (my wife!0 form bringing flour into the house has helped a lot.

When I was exposed like your daughter, I had similar problems with confusion and breathing and was very sleepy.

It's not good for the teacher to fall asleep in class! Unfortunately, perhaps, I did not get the euphoric high :D

I wish her luck in avoiding further exposure -- I know its not fun!

Ken

0

Share this post


Link to post
Share on other sites

Motherof6,

Wow! What a reaction! Ken and everyone gave good advice. I hope she can persevere, because we need more celiac-knowledgeable/friendly dieticians!

She probably needs to wear a respirator at all times in these types of kitchen/classrooms. They sell face-mask respirators for use in asbestos removal or for use with bad chemical fumes

0

Share this post


Link to post
Share on other sites

This was so kind and helpful of you to respond with your experience. I have passed this on to my daughter. At least she won't think she is going crazy knowing that there are a few others that have experienced these kinds of symptoms to inhaled gluten. Now we need to figure out how to lessen the severity of the symptoms when she is accidently exposed. Although she will wear a mask and leave the room when warned, it really is only a matter of time when she will be exposed to gluten dust in the air somewhere. Thank you for your suggestions! If you think of anything else, please let me know. This is scary for her. Thank you!

With appreciation,

Marie ;-)

I react to inhaled flour but very differently. It was maybe 3 months after going gluten free. I was throwing out the flour. I was very careful and not aware of breathing any. I wasn't sick until the next morning which is usual for me. Then I had GI symptoms, severe depression, fatigue, confusion, etc. which lasted 3 weeks. I think the flour was traveling down to my stomach from my nasal passages for a long time. A normal gluten reaction for me lasts more like one week. My celiac son has gotten medical excuses from cooking class. It would be nice to have more celiac dieticians, but how can that be if they need to be exposed to flour to become dieticians? Bio K helps me recover. Maybe immediate nasal lavage would help. There is a video on-line about that.
0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,628
    • Total Posts
      918,394
  • Topics

  • Posts

    • A good diet for avoiding type 2 diabetes
      Thanks so much, gluten-free,  in my hypchondriacal panic I saw that website!  It is good to have an endorsement from a celiac.   I remember seeing quite a few reassuring stories in it along the lines that you describe. Funny isn't as because I now feel far less inclined to eat large amounts of carbohydrate now I have cut back a bit.   It seems the more sugar I ate, the more I wanted to eat.  
    • Celiac.com: Gluten-free not always the way to go
      When people with Celiac Disease eat gluten, their body mounts an immune response that attacks the small intestine and leads to damage to the villi, ... View the full article
    • Newly diagnosed and totally overwhelmed
      It is overwhelming at first but step by step you will begin to find food you like - new naturally gluten free 'clean' food you have never tried before, or gluten free substitutes that taste  almost as good or just as good as the food you miss.   Someone told me one just get used to gluten free bread in the end.  But there are some on the market that are so convincing now they have even fooled my gluten eating family.   (On the subject of bread, one useful tip someone gave me early on is if one toasts gluten free bread it tastes much better.  Others may disagree but I think it does - but you will need your own gluten free toaster.... )   I am also finding that as time goes on there seems to be more and more on offer for us in the shops.  The annoying thing here in the UK is one supermarket does superb ready meals for example, another does great gluten free bread, and another sells delicious gluten free Worcestershire Sauce, but it is hard to find one that sells everything you need under one roof at times.   I don't know if it is like that where you live but if it is like this you will get wise to it and end up getting used to stocking up when the opportunity presents itself. Eating out is often challenging but after not eating out for a while when I was healing I have now found a few restaurants, and a couple are chains, that I can trust.     Lastly, it is always good to have some gluten free snacks - fruits, nuts, bars etc, at the ready when the hunger pangs strike and there is nothing there for you.  I still forget and today went to a museum with my son and had to watch him in the cafe eat his cheese and ham toastie and all I had was a cup of tea!   
    • amalgam dental fillings - remove or not?
      Yes, I meant mercury not lead, thank you for the correction. That's what happens when I stay on the computer until late at night.  The symptoms I have now resemble my gluten reaction and I know it's almost impossible that I would be getting glutened. I remember someone here mentioning that he/she had amalgam fillings removed and it helped, but that was few years back. That's why I posted it here. 
    • Newly diagnosed and totally overwhelmed
      akohlman--I am exactly 1 month from being diagnosed and still going through cleaning out of all the gluten foods from my life. I have really bad Dermatitis Herpetiformis but other wise I had no reason to think I had something like Celiac Disease. That being said, I TOTALLY understand. For me... its hard to be sick and not feel sick if that makes sense.....   I'm going to make the changes. I'm going to live a gluten-free life but like you... I STILL am devastated. I'm overweight... so obviously I don't have a healthy relationship with food, LOL, so I'm DYING at the idea of never eating Pizza Hut, Chili's Pasta, Red Lobster Pasta, McDonalds, etc. I don't care what anyone says.... that is a HUGE adjustment for me and I'm still reeling from the "loss".   That being sad.... I have 3 children and a husband depending on me and I'll do all I can to lengthen my lifespan so.... Here is to new journeys.   YOU ARE NOT ALONE in your sadness!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,718
    • Most Online
      1,763

    Newest Member
    Flora Simpson
    Joined