Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Please Help Me Help My Mom!


GF avenger

Recommended Posts

GF avenger Apprentice

Hello folks

I recently discovered my gluten intolerance (not celiac, was off wheat for too long for the test to be accurate) and have been doing lots of reading. I strongly believe that my mom's family is nearly all symptomatic, and my mom most of all. Last week she was removed from her home and taken to the local psych ward for her latest and greatest yet manic episode, with the hope of adjusting her meds and returning her to her semblance of normal.

The good news is that I've spoken to a doctor there who thought that a gluten free diet might be a good idea, even in the absence of a positive TTG or endoscopy. What I'm asking you all is if you know where or how I might get ahold of good and possibly peer-reviewed research about the non-gastrointestinal effects of gluten, so that I can convince him to keep her on the diet, during and after this latest 'vacation.'

She has a slew of stuff going on - she's bipolar, has MS, lupus, hypothryoid, Reynaud's, previously had breast cancer, etc. She's 58, and has been my 'ward', and living in a rest home for 5 years. The rest of the family is riddled with MS and schizophrenia. Clearly, gluten goes to our brains.

Thanks!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

Google "gluten" along with each of the neuro symptoms/diagnoses and the word "study" and studies should pop up.

You might also try contacting TLC's "Mystery Diagnosis" show (and show them whatever research you've uncovered)--maybe one of the doctors who has diagnosed previous cases for them might be interested in your mom's case.

Best of luck to you and your mom; it must be very, very difficult for you both.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

    2. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    3. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    4. - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    5. - mishyj posted a topic in Coping with Celiac Disease
      3

      Why?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,217
    • Most Online (within 30 mins)
      7,748

    saiam14
    Newest Member
    saiam14
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Aussienae
      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
    • mishyj
      My daughter has celiac disease and has had for a long time. She fell loses strictly gluten-free diet and recently got rid of all cutting boards in any gluten in her house at all. She just had a stool test and it came back showing of gigantic response to gluten in her diet. What could be going on since she doesn't eat any gluten and is very careful about any kind of hidden glue? Help!
×
×
  • Create New...