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Please Help Me Help My Mom!

GF avenger

By GF avenger
in Related Issues & Disorders

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GF avenger Apprentice
GF avenger
Posted

Hello folks

I recently discovered my gluten intolerance (not celiac, was off wheat for too long for the test to be accurate) and have been doing lots of reading. I strongly believe that my mom's family is nearly all symptomatic, and my mom most of all. Last week she was removed from her home and taken to the local psych ward for her latest and greatest yet manic episode, with the hope of adjusting her meds and returning her to her semblance of normal.

The good news is that I've spoken to a doctor there who thought that a gluten free diet might be a good idea, even in the absence of a positive TTG or endoscopy. What I'm asking you all is if you know where or how I might get ahold of good and possibly peer-reviewed research about the non-gastrointestinal effects of gluten, so that I can convince him to keep her on the diet, during and after this latest 'vacation.'

She has a slew of stuff going on - she's bipolar, has MS, lupus, hypothryoid, Reynaud's, previously had breast cancer, etc. She's 58, and has been my 'ward', and living in a rest home for 5 years. The rest of the family is riddled with MS and schizophrenia. Clearly, gluten goes to our brains.

Thanks!

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Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Google "gluten" along with each of the neuro symptoms/diagnoses and the word "study" and studies should pop up.

You might also try contacting TLC's "Mystery Diagnosis" show (and show them whatever research you've uncovered)--maybe one of the doctors who has diagnosed previous cases for them might be interested in your mom's case.

Best of luck to you and your mom; it must be very, very difficult for you both.

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