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Still Coping...

3 posts in this topic

Hey everyone,

It's been awhile since I posted. I'm still trying my best to be gluten-free as often as possible. But it is so hard right now. As I stated in another message, my mother has been diagnosed with colon cancer and I am worried about her. She has started Chemo. and radiation, and she is very fatigued. My seizures are happening like crazy...I'm just stressed. But anyway, enough about all of that...

I got an A this term for my class! I'm afraid that I haven't been that good at being gluten-free though...and gosh, my bowels are showing it too! :rolleyes:

I MAINLY wanted to tell you all hey! :P So, ya'll take care! -Julie


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Hey, you are celiac and eating gluten? I hate to say the obvious but that is a very very bad idea, maybe you get away with it for a little bit but it just is not worth it I promise you. Best thing you could do to help your Mom right now is stay healthy and stay gluten-free. Take care I hope you and your Mom get better.


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It can be hard but once you get off of it and see how much better you do it really isn't that hard to avoid it.

Think about the risks of cancers, diabetes, and other serious things....that scares me to death and that should scare you away from gluten.

Think about your health worth risking for a piece of pizza?

You will not like the consequences in the long's a very bad idea to stay on gluten.

Hope you and your mom feel better soon :D


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    • I have to tell you that, about 3 years ago, I went to the International Celiac Disease Symposium.  The coffee cross-reactive myth was discussed as we were all consuming vast quantities of Starbucks coffee provided by the Sheraton.  Needless to say, it was good for a laugh.    
    • Yeah, I looked for real scientific studies on gluten cross activity and couldn't find any. I did read something about barely being found in instant coffee--so who knows.
    • Gluten Cross-reactive foods is some sort of odd internet myth.  It started with a company that wanted to sell bogus medical tests.  They have even admitted that the coffee thing isn't true - they used gluten contaminated instant coffee.  However, you have to look at the small print in a lot of nonsense in a large binder of stuff to find that fact.  I did it with one of their company reps.. anyway....   If coffee bothers you, it may just be that it is hard on your system.  Maybe you can get it back after some healing.  And it doesn't sound like you had much protein that week.   edit - just looked at the ingredients- that isn't just coffee - who knows what part of it bothered you?  ingredients on GMO Dark Roast Coffee, Chlorogenic Acid, Garcinia Cambogia 95%,Phaseolamin, Cassiolamine Green Tea 100:1 Extract, Ginseng 100:1 Extract, L-Carnitine with Chromium.
    • Thanks for pointing that out. I just learned about things that are cross reactive with gluten--that have a similar protein structure and the body reacts as if it is a gluten protein: the list of cross reactors includes: Eggs, coffee most other grains corn, potato, rice, yeast, chocolate coffee, corn, butter soy, eggplant, bell pepper and chili pepper and tomatoes. Son of a !!!! This explains a lot. I would be faithfully gluten-free and still have DH flare ups when I certain things. So I just ate sprouted rice with beans, fruit and oolong tea--and I was fine. Then last week I tried this weight loss coffee called SlimRoast which worked UNBELIVABLE (LOST 3 POUNDS IN 2 DAYS) I was eating potato soup with lots of chili paste and soon I noticed I was depressed, I couldn't focus and began to feel that crawling flesh thing I get when I know I have been glutened.  I did more research on how I could love my body and read about glutamine: "Glutamine is also a critical part of our digestive system. It is the primary nutrient for the cells of the intestinal lining where it helps regulate cellular reproduction. Through this mechanism, glutamine helps prevent and rebuild a leaky gut which is common in people with inflammatory and auto-immune conditions. For this reason glutamine supplementation has been shown to be very effective in individuals with ulcerative colitis, CELIAC DISEASE, Crohn's disease, & irritable bowel syndrome." So now have removed everything but the sprouted rice, back on fruit and beans and have added those things that are high in glutamine. Since I eat plant based I can't get glutamine from meat so lots of raw spinach beets parsley cabbage celery kale brussel sprouts and especially red cabbage --in salads and smoothies. So hopefully I am on the mend--miss my weight loss coffee but its not worth getting sick over.     
    • I got the link fine but if I recall correctly I am a member of Medscape - I believe I just plain signed up for it - I know there isn't any fee for anything I sign up for otherwise I think very long and very hard whether it's going to be worth my money or not.
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