Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Introducing Myself
0

6 posts in this topic

Hi there! My name is Nicole and I have 4 little girls. My second daughter who is 5 has celiac disease. She has Down syndrome too, and was diagnosed w/celiac disease about 2 years ago. She's a doll and handles her allergies like a champ! She'll ask, "Mom eat?" and if I say it has gluten she'll say "BLAH!". Too cute! Occasionally she'll try to get what her sisters have but most of the time she really understands and monitors her food herself. When we have had accidents the gluten is obviously really toxic.

She was asymptomatic and routinely tested because it is more common in kids w/DS.

Anway I came here to post recently to find out if anyone had used Juice Plus products for the kids who have celiac disease. They say it's gluten-free but they use fiber from barley and oats. So I wanted to search more before I give them to her. The company says they test the product and it shows 0 gluten, that the husk they use does not have gluten. Hmmmm? Anyone?

Thanks! Nicole~ mom to Darrah, 6 years, Tarenne 5 years w/celiac disease and Down syndrome, Marley, 2 1/2 years and Emery, almost 1! :)

0

Share this post


Link to post
Share on other sites


Ads by Google:

Nicole,

I was reading your post and although I don't have an answer for you about the Juice Plus I do have a question.

I also am new to this board. I have a son who was just diagnosed with celiac. He was also asymtimatic just a little short for his age. Anyway, no stomach problems whatsoever. You mentioned that your daughter was also asymtimatic but now when you have accidental slip-ups you can tell how bad it is for her. What did you mean by that? Are you saying that while eating gluten before she was gluten-free she got no stomach aches and now when she does eat it by accident she gets stomach aches or other symptoms?

This is something I am really worried about and have heard conficting things about whether or not this happens.

Thanks,

Roo

0

Share this post


Link to post
Share on other sites

I use Juice Plus with no problems... I was also told that it is gluten-free. My daughter, who does NOT have celiac (adopted) has improved 100% taking the vitamins. Every winter she is very sick and has a lot of chest congestion problems, etc. This year, after 9 months on Juice Plus, she has not been sick at all. Yeah!! Time will tell whether it is the JP or whether she is just able to fight it off better or had a good year. We'll see!!

0

Share this post


Link to post
Share on other sites

Roo, before diagnosis Tarenne for all intents and purposes had no symptoms of the disease. Now looking back I realize she was refusing some foods, and had loose, frothy stools, etc. But much of the signs can also be associated w/her extra chromosome. For instance a distended abdomen is also part of her having low tone. And many people with DS have digestion issues as well that don't have anything to do w/celiac disease.

Now when she gets gluten she has horrible diarrhea and it has almost a chemical smell, she even has vomitted before after ingestion, she'll say "Mom stomach ache, shot". So funny she equates shots with being well just from wellness visits.

I have read that once the body is cleansed of gluten it's reaction to introduction of gluten is more severe. I hope that helps! Nicole

0

Share this post


Link to post
Share on other sites

Kimberly, Thank you SO much! You don't know how much I appreciate your feedback. I'm going to give it to her and watch for signs. I'll let you know if she seems to be intolerant. HUGS to you! You made my day. Nicole

0

Share this post


Link to post
Share on other sites




You are MORE than welcome... I always feel like I take more from this site than I give.... feels nice when I can help. :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,125
    • Total Posts
      919,503
  • Topics

  • Posts

    • I havent used it, not much of a baker tbh, but this one looks good: http://alittleinsanity.com/gluten-free-pie-crust-recipe/
    • As you say, there's no test, it's diagnosed by exclusion, so there's no metrics to check to assess compliance other than anecdotal response to symptoms. Conversely, I've not seen anything that says that NCGI can resolved or be cured either.  This paper gives a good summation.  Basically, there's not much research period! That is changing though, I think there's research underway which could help give answers.
    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,162
    • Most Online
      1,763

    Newest Member
    razzle5150
    Joined