Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Introducing Myself
0

6 posts in this topic

Hi there! My name is Nicole and I have 4 little girls. My second daughter who is 5 has celiac disease. She has Down syndrome too, and was diagnosed w/celiac disease about 2 years ago. She's a doll and handles her allergies like a champ! She'll ask, "Mom eat?" and if I say it has gluten she'll say "BLAH!". Too cute! Occasionally she'll try to get what her sisters have but most of the time she really understands and monitors her food herself. When we have had accidents the gluten is obviously really toxic.

She was asymptomatic and routinely tested because it is more common in kids w/DS.

Anway I came here to post recently to find out if anyone had used Juice Plus products for the kids who have celiac disease. They say it's gluten-free but they use fiber from barley and oats. So I wanted to search more before I give them to her. The company says they test the product and it shows 0 gluten, that the husk they use does not have gluten. Hmmmm? Anyone?

Thanks! Nicole~ mom to Darrah, 6 years, Tarenne 5 years w/celiac disease and Down syndrome, Marley, 2 1/2 years and Emery, almost 1! :)

0

Share this post


Link to post
Share on other sites


Ads by Google:

Nicole,

I was reading your post and although I don't have an answer for you about the Juice Plus I do have a question.

I also am new to this board. I have a son who was just diagnosed with celiac. He was also asymtimatic just a little short for his age. Anyway, no stomach problems whatsoever. You mentioned that your daughter was also asymtimatic but now when you have accidental slip-ups you can tell how bad it is for her. What did you mean by that? Are you saying that while eating gluten before she was gluten-free she got no stomach aches and now when she does eat it by accident she gets stomach aches or other symptoms?

This is something I am really worried about and have heard conficting things about whether or not this happens.

Thanks,

Roo

0

Share this post


Link to post
Share on other sites

I use Juice Plus with no problems... I was also told that it is gluten-free. My daughter, who does NOT have celiac (adopted) has improved 100% taking the vitamins. Every winter she is very sick and has a lot of chest congestion problems, etc. This year, after 9 months on Juice Plus, she has not been sick at all. Yeah!! Time will tell whether it is the JP or whether she is just able to fight it off better or had a good year. We'll see!!

0

Share this post


Link to post
Share on other sites

Roo, before diagnosis Tarenne for all intents and purposes had no symptoms of the disease. Now looking back I realize she was refusing some foods, and had loose, frothy stools, etc. But much of the signs can also be associated w/her extra chromosome. For instance a distended abdomen is also part of her having low tone. And many people with DS have digestion issues as well that don't have anything to do w/celiac disease.

Now when she gets gluten she has horrible diarrhea and it has almost a chemical smell, she even has vomitted before after ingestion, she'll say "Mom stomach ache, shot". So funny she equates shots with being well just from wellness visits.

I have read that once the body is cleansed of gluten it's reaction to introduction of gluten is more severe. I hope that helps! Nicole

0

Share this post


Link to post
Share on other sites

Kimberly, Thank you SO much! You don't know how much I appreciate your feedback. I'm going to give it to her and watch for signs. I'll let you know if she seems to be intolerant. HUGS to you! You made my day. Nicole

0

Share this post


Link to post
Share on other sites




You are MORE than welcome... I always feel like I take more from this site than I give.... feels nice when I can help. :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,501
  • Topics

  • Posts

    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
    • Going gluten free may be beneficial if you're among the roughly 10 percent of people who suffer from celiac disease, a genetic immune disorder, ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,416
    • Most Online
      1,763

    Newest Member
    djs2117
    Joined