Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Introduction & Hello
0

7 posts in this topic

Hi, My name is Wendy. I have a 9 year old daughter, Grace, who was diagnosed in September last year with Celiac Disease after bloods and biopsy both returned strong positive with alot of intestinal damage.

We live in New Zealand, and I am looking forward to learning from other parents of celiac kids. All our family have been tested and So far Grace is the only Celiac out of 5 of us. She is coping well with the change in diet and thriving wonderfully. gone from 25% in height to 50% + in 6 months.

Look forward to getting to know you all.

Wendy

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi Wendy welcome to the board :) There are alot of great people here!

My 8 year-old daughter and I are both Celiac's and have been gluten-free since Sept 03. At first my daughter struggled with gluten-free diet and would cheat while at school but the last time she did it hit her pretty hard, she woke up the next morning with a fever, diarrhea, nausea and abdominal pain, it was awful! I sat her down and explained this disease to her and she has not cheated since :D

Again welcome to the board!

0

Share this post


Link to post
Share on other sites

Hi Wendy,

My daughter (age 7) and I have been gluten-free for 3 years. Our biggest news lately is that one of my daughter's classmates was diagnosed with celiac - two celiac kids in a class of 11!

Celiac.com has just posted the summary of a new UK study that found celiac prevelance to be 1% in 7 year children in the UK. I know think that having celiac budies for our children is possible for all of us! Ironically, my daughter's friend had virtually no symptoms (just mild tummy aches), and his mom pressed for a celiac blood test just because she knew we had it and was, like so many of us, just very worried about her child. When will doctors realize that everyone should be tested, regardless of symptoms? sigh.

Laurie

0

Share this post


Link to post
Share on other sites

I was diagnosed with celiac disease when I was 20 months and last week was my Diagnosis day of 12 years :) because I was so little I don't remember what gluten tastes like, which is a plus for me :) my Celiac friends say. 12 years ago the way to diagnosis it was biopsy showing intestional damage and then rebiopsy 1 year later to show improvment and the a challenge biopsy(eat wheat for 2 months and then another biopsy to show more damage) my parents refused to do the 3rd biopsy challenge. They didn't want to make me so sick again just to tell them that they were right. If anyone needs help with helping their children with the diet I can help...

MOlly

0

Share this post


Link to post
Share on other sites

What a great post Molly, Thankyou.

We have decided that Grace wont have another biopsy for quiet sometime as the first one was so obviously positive of Intestinal damage. She will have bloods retested in 12 months (18months after diagnosis).

I am lucky that she was so easily diagnoses and we don't need to have continual testing wtc.

I will be sure to ask you any questions Molly, it is a wonderful offer from you and so nice to have the opinion and perspective of a younger celiac.

Wendy :D

0

Share this post


Link to post
Share on other sites




Wendy, it sounds as though you and Grace are taking the diagnosis in a very positive way. Feeling healthy helps us feel more positive as well, I believe, so I am happy that you found this message board and are now part of our group.

Molly, I am so thrilled to see your offer of helping other Celiac youngsters with their diets! That is such a nice offer from you. My grandson (10 months) and I are the only diagnosed Celiacs in our family, but we are in the process of having other family members tested right now, so time will tell.

Best wishes to you both. Welda

0

Share this post


Link to post
Share on other sites

Hi Wendy. There is a good book out for Children on Celiac, which you may not be aware of:

Eating Gluten Free with Emily, by Bonnie Kruszka (actually available in the bookstore of this site, and I would imagine available in bookstores near you?) which I thought was very good for kids.

Good luck.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,636
    • Total Posts
      921,534
  • Topics

  • Posts

    • I have 2 insurance policies, one with my husband's company and one through mine. I also stretch out the more major work into the next year, so I can make the most use of my benefits. So, a dental implant for me takes about a year for me to complete.  I have the post put in at the end of one year and the tooth made about 6 months later. Honestly, the insurance company probably hates me because I max out my benefits every year. You do what ya gotta do!  I still have to pay for some of the work out of pocket but about 75% gets covered. If you pay cash for procedures then they usually charge a lower price. Haggle with the dentist over price. They like getting cash.
    • Did your doctor check for SIBO, H. pylori, ulcers, etc. when he was obtaining biopsies to check for celiac disease?  
    • Oh, and as I mentioned in my own post on pain, xanax. I swear. I tried it just to deal with the occasional panic I had at weird scary symptoms and clueless doctors. I am not a fan of long term use. But I recently found that .25 mg seems to aid with the neuropathic pain. It does not go away, but it helps. 
    • It does sound like a Glutening and you are just a few months into the diet.  It might help if you read our Newbie 101 thread under the "Coping" section.   Here is some information about rice milk: https://www.verywell.com/is-rice-dream-gluten-free-562354 Many, many celiacs are often lactose intolerant temorarily or permanently if you are naturally genetically inclined.  When I am glutened, I lose the ability to digest lactose for a while.   Salad?  Great but it can be rough on a sore gut!  Think soups, stews, easy-to-digest foods that you prepare yourself until you feel better.  Did your folks give you salad after a bout of flu?  Or did you stick with jello and broth?  I am intolerant still after three years to garlic and onions (the lactose resolved, thankfully).  You have a leaky gut (Google zonulin and Dr. Fasano who is a leading celiac researcher to verify that this is true) and that means you can become intolerant to anything (hopefully, just temporarily).   If you are 100% sure that you have had no access to gluten....did you eat out lately?.....then see your doctor.  Remember, celiac disease symptoms can change.  And here is the biggie.....it can take weeks, months or years to heal from celiac disease.  Two months in is nothing, really.  Why?  It takes time to figure out the diet and time for antibodies to come down.  celiac disease is an autoimmune disorder triggerEd by gluten.  once triggered it can go on and on damaging your gut especially with repeated glutenings (accidental or through cross contamination). I hope you feel better soon!  
    • I concur! I literally feel your pain as well. Like, at the moment, lol. Did you have an endo to see inflammation or damage? I am close to begging my GI for carafate or something to coat and protect. How about testing your antibodies to see if they are still rising? I read somewhere here rice milk may not be a good option.  Folks here have also suggested to me to stick with whole foods. Limit processed. Especially stuff that is not certified gluten-free, like chex. I think small amounts of gluten are in processed foids and can add up. I too reacted to lettuce the other day like I was ingesting glass. My sibling  had a food sensitivity panel done and it came back positive for a few things he had been eating a lot of. He can now eat them, but had to cut them out of his diet. Lettuce is probably on mine.  I have been drinking carrot and pomegranate juice,  dandelion root tea with hiney, aloe water, lots of squash, fish. Mild, no garlic, no onions or hot sauce. No coffee. It sucks.  Inflammation can tick off other organs, you mention a "Pain below". Not exactly sure which side, but certainly call your doc Monday. Sooner if the pain increases.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,639
    • Most Online
      3,093

    Newest Member
    NickyW_UK
    Joined