Introduction & Hello
Posted 19 February 2004 - 05:18 PM
We live in New Zealand, and I am looking forward to learning from other parents of celiac kids. All our family have been tested and So far Grace is the only Celiac out of 5 of us. She is coping well with the change in diet and thriving wonderfully. gone from 25% in height to 50% + in 6 months.
Look forward to getting to know you all.
Posted 19 February 2004 - 08:14 PM
My 8 year-old daughter and I are both Celiac's and have been gluten-free since Sept 03. At first my daughter struggled with gluten-free diet and would cheat while at school but the last time she did it hit her pretty hard, she woke up the next morning with a fever, diarrhea, nausea and abdominal pain, it was awful! I sat her down and explained this disease to her and she has not cheated since
Again welcome to the board!
Posted 20 February 2004 - 05:44 PM
My daughter (age 7) and I have been gluten-free for 3 years. Our biggest news lately is that one of my daughter's classmates was diagnosed with celiac - two celiac kids in a class of 11!
Celiac.com has just posted the summary of a new UK study that found celiac prevelance to be 1% in 7 year children in the UK. I know think that having celiac budies for our children is possible for all of us! Ironically, my daughter's friend had virtually no symptoms (just mild tummy aches), and his mom pressed for a celiac blood test just because she knew we had it and was, like so many of us, just very worried about her child. When will doctors realize that everyone should be tested, regardless of symptoms? sigh.
Posted 21 February 2004 - 07:45 AM
Posted 21 February 2004 - 06:35 PM
We have decided that Grace wont have another biopsy for quiet sometime as the first one was so obviously positive of Intestinal damage. She will have bloods retested in 12 months (18months after diagnosis).
I am lucky that she was so easily diagnoses and we don't need to have continual testing wtc.
I will be sure to ask you any questions Molly, it is a wonderful offer from you and so nice to have the opinion and perspective of a younger celiac.
Posted 22 February 2004 - 07:43 AM
Molly, I am so thrilled to see your offer of helping other Celiac youngsters with their diets! That is such a nice offer from you. My grandson (10 months) and I are the only diagnosed Celiacs in our family, but we are in the process of having other family members tested right now, so time will tell.
Best wishes to you both. Welda
Posted 22 February 2004 - 07:47 AM
Eating Gluten Free with Emily, by Bonnie Kruszka (actually available in the bookstore of this site, and I would imagine available in bookstores near you?) which I thought was very good for kids.
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