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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Scd Dedicated Section? - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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Scd Dedicated Section? For the benefit of those who are not getting better on gluten-free Rate Topic: -----

#1 User is offline   AliB 

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Posted 16 December 2008 - 12:10 PM

Hi Scott and all in charge of the forum.

We are gathering quite a following on the Specific Carbohydrate Diet. It is proving to be a lifeline for many who have not regained their health since going gluten-free, whether Celiac or GI.

A suggestion was made by someone who was having great difficulty ploughing through the almost 70 pages of the current SCD thread, about the possibility of having a dedicated SCD section?

Those of us who are on the diet could, of course, move over to an SCD website forum, but that would feel as though we are abandoning all those desperate ones who every day are constantly pleading for help.

We all just wish we could shout it from the rooftops - it does work, and so many are recovering and have recovered because of it. It fills the gap that the simply gluten-free diet doesn't for many. Ok, so maybe it doesn't work for all, and maybe not everyone will want to follow it for their own reasons - but just sometimes I wish we could put a banner at the top of every section for people to see before they post yet another plea.

I could spend all day every day on every section trying to give people the hope of the diet, but I just don't have the time, and it saddens me that I can't give everyone the hope, and the information. At least if there was a dedicated section 1) it would be easier to direct people to the answers when we can, and 2) curious ones could find it on their own.

Apart from that one current thread, there is nothing on the site to direct people to the SCD as a viable option for recovery. Plenty of gluten-free food (not SCD legal!) - but this forum exists for help and support.

Please, please can you consider this as an option. It would be fantastic. We are getting better, but thousands aren't.
Ali - 50 - struggled with what I now know to be GI symptoms and poor carb digestion for at least 35 years! Diabetic type II (1997). Mother undx Celiac - lifelong diabetic Type 1 & anemic (plus 1 stillborn and 10 miscarriages after me). Father definitely very GI.

Stopped gluten & dairy, Jan 08, but still other issues so dropped most carbs and sugar and have been following the Specific Carb Diet (SCD) since March 08. Recovery slow but steady and I can now eat a much broader range of foods especially raw which are good for my digestion and boost my energy level.

Not getting better? Try the SCD - it might just change your life.........
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#2 User is offline   happygirl 

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Posted 16 December 2008 - 03:47 PM

My guess is that since there is already a full section for other food intolerances and concerns related to that, and considering that this board already has a large amount of sections, Scott may not be willing to do this.

In addition, this is a forum for those dealing with the gluten free diet, and a separate section for each individual topic related to Celiac/gluten intolerance is not possible.
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#3 User is offline   AliB 

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Posted 16 December 2008 - 04:03 PM

Yes, I accept that, but, and it is a huge but, there are thousands on this site alone who are not getting better on just a gluten-free diet. They are constantly struggling - battling against horrendous other health issues and intolerances.

The SCD is a lifeline. It does work. It may not be an overnight miracle diet (although most see a good result within the first few weeks), but even if it takes months or even perhaps two or three years, it is better than the nothing at all that most have had to contend with.

I have been ill for 35 years - and for the first time in my life I understand what is happening to my body and what I can do about it to heal. I now know the best way to help my family with their health issues.

For people like me, there is little or no help from the Medical Profession and many of us have just had to muddle through one (often very expensive - if even affordable) alternative failure after another.

For some it may be as simple as gluten-free. For others it is a living nightmare.

The more people we can tell about the SCD, the more who may stand some chance of achieving a recovery.

There are a lot on here who seem to be straighforward 'Celiac', but there are an awful lot more who aren't.
Ali - 50 - struggled with what I now know to be GI symptoms and poor carb digestion for at least 35 years! Diabetic type II (1997). Mother undx Celiac - lifelong diabetic Type 1 & anemic (plus 1 stillborn and 10 miscarriages after me). Father definitely very GI.

Stopped gluten & dairy, Jan 08, but still other issues so dropped most carbs and sugar and have been following the Specific Carb Diet (SCD) since March 08. Recovery slow but steady and I can now eat a much broader range of foods especially raw which are good for my digestion and boost my energy level.

Not getting better? Try the SCD - it might just change your life.........
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#4 User is offline   admin 

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Posted 16 December 2008 - 05:08 PM

Hello AliB,

I think there are areas on this board where the SCD diet fits in well now, such as the Other Food Intolerance and Leaky Gut Issues forum, or the Celiac Disease - Post Diagnosis, Recovery/Treatment(s) forum. I have no doubt that the SCD diet has helped many people, however, there are other things that have helped celiacs who still have trouble after going gluten-free, such as enzymes, vitamins, etc., and unfortunately I can't create a forum for each of them. You can create other threads on the SCD diet (as long as they cover new topics), but if I did create such a forum I'm sure that others would contact me and want me to create forums on their alternative treatments or diets too. I'm sorry but I get enough complaints already that there are too many topics on this forum...I can't add more unless it really makes sense to do so.

Take care,
Scott

View PostAliB, on Dec 16 2008, 04:03 PM, said:

Yes, I accept that, but, and it is a huge but, there are thousands on this site alone who are not getting better on just a gluten-free diet. They are constantly struggling - battling against horrendous other health issues and intolerances.

The SCD is a lifeline. It does work. It may not be an overnight miracle diet (although most see a good result within the first few weeks), but even if it takes months or even perhaps two or three years, it is better than the nothing at all that most have had to contend with.

I have been ill for 35 years - and for the first time in my life I understand what is happening to my body and what I can do about it to heal. I now know the best way to help my family with their health issues.

For people like me, there is little or no help from the Medical Profession and many of us have just had to muddle through one (often very expensive - if even affordable) alternative failure after another.

For some it may be as simple as gluten-free. For others it is a living nightmare.

The more people we can tell about the SCD, the more who may stand some chance of achieving a recovery.

There are a lot on here who seem to be straighforward 'Celiac', but there are an awful lot more who aren't.

Scott Adams
Celiac.com - Celiac Disease Board Moderator
Founder Gluten-Free Mall
Founder Celiac.com
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#5 User is offline   AliB 

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Posted 17 December 2008 - 04:02 AM

Ok Scott, thanks - it was worth a try.

I just wish there was some easier way of getting it 'out there'.

If people don't know about it then they are not able to try it.

Ali.
Ali - 50 - struggled with what I now know to be GI symptoms and poor carb digestion for at least 35 years! Diabetic type II (1997). Mother undx Celiac - lifelong diabetic Type 1 & anemic (plus 1 stillborn and 10 miscarriages after me). Father definitely very GI.

Stopped gluten & dairy, Jan 08, but still other issues so dropped most carbs and sugar and have been following the Specific Carb Diet (SCD) since March 08. Recovery slow but steady and I can now eat a much broader range of foods especially raw which are good for my digestion and boost my energy level.

Not getting better? Try the SCD - it might just change your life.........
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#6 User is offline   admin 

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Posted 17 December 2008 - 09:09 PM

As long as there are popular threads on this topic on this board you are bringing attention to the SCD diet to others here. We have also published many articles on this topic on Celiac.com.

Take care,
Scott
Scott Adams
Celiac.com - Celiac Disease Board Moderator
Founder Gluten-Free Mall
Founder Celiac.com
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