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silk Contributor

A+....which explains my tendency to be an over-achiever :lol: I think we have determined that Celiac does not discriminate!

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aeraen Apprentice

Is anyone tabulating these responses :blink: We could do medical science a real favor here :D

Anyway, I'm another A+ (don't I wish I could have said that back in my school days!). And another Heinz 57 (mostly German/Danish, with a smattering of Irish, Scottish, Austrian and Slavic).

B's certainly seem to be in the minority.

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silk Contributor

Is anyone tabulating these responses :blink: We could do medical science a real favor here :D

Anyway, I'm another A+ (don't I wish I could have said that back in my school days!). And another Heinz 57 (mostly German/Danish, with a smattering of Irish, Scottish, Austrian and Slavic).

B's certainly seem to be in the minority.

I'm pretty sure we are related somehow...I mean, like we both have mothers, right? Just kidding, but we do share the same blood type and your heritage is almost identical to mine..except that there is some french in mine as well and the traditional 'my great,great, great grandmother was a cherokee princess' schtick! LOL

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GlutenFreeNewB Rookie

O+ Scottish/Irish - red hair, green eyes

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Korwyn Explorer

O+

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aeraen Apprentice

I'm pretty sure we are related somehow...I mean, like we both have mothers, right? Just kidding, but we do share the same blood type and your heritage is almost identical to mine..except that there is some french in mine as well and the traditional 'my great,great, great grandmother was a cherokee princess' schtick! LOL

Well, I would love to be able to claim that I am part of a family that can produce babies as beautiful as the one in your avi.

Actually, you just reminded me that there is also some French Canadian back there, too. And my sister used to claim some indian blood when she was a kid... but that was just because she had dark hair and skin, while I was a white-haired blondie.

Of course none of my heritage is unusual for the the city I was born in. I believe half the inhabitants could claim the same heritage, all in various percentages :)

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bigbird16 Apprentice

A+ (yay for overachievers!) mousey hair that shines goldish/reddish in the sun, green eyes, Euromutt (mostly German with a healthy dose of Scottish, Irish, English, and Nordic thrown in).

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silk Contributor

So far I see a number of green-eyed, reddish brown haired celiacs here, which describes me as well.

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silk Contributor

Well, I would love to be able to claim that I am part of a family that can produce babies as beautiful as the one in your avi.

Thank you! That is my newest granddaughter.

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Debbie48 Rookie

A+ here.

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    • plumbago
      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
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      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
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