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Choking On Food


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#1 Maggie1956

 
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Posted 16 March 2005 - 09:03 PM

I've been choking a lot when I eat. I don't think it is any particular food. It seems to get stuck as I try to swallow it.
I've always been a slow eater, but I am particularly slow the past couple of years. Not because of the fear of choking on food though. I just take a long while to chew and I guess I find it hard to swallow anything that's not completely mashed. :(

Meat just may be the hardest food for me to swallow. I really have a hard time with steak, so don't eat it too often.
Last night, it happened again, and really scared me. I was eating organic chicken drumsticks (pan fried in olive oil) with whole baby beans, sweet potato and Basmati rice.
I'm not sure if the rice is a problem for me. I get pain from normal white rice, so I don't eat it anymore.
I choked on a bite of the chicken, and had a hard time for a while before I could spit it out...sorry about the graphic details. :ph34r: ...but that's how it was, and often is.

My husband really doesn't know what to do what this happens, and so panics and bangs me on my back.. <_< where I hurt from fibromyalgia-type pain.

Does anyone know why I may be choking, and is this a common thing with celiac disease? Also, should I see a doctor about it?
My General Practicioner (GP) is the only doctor I see apart from if he refers me to a specialist. I feel that he isn't interested in my celiac disease problems, so I'm thinking of changing GPs.
Trouble is, as is probably the case with all of us, , my medical records are as long as both my arms put together. :(

Sorry this is so long. I know I'm having a whinge, but you guys are really all I've got to 'talk' to.
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SUNSHINE COAST, QUEENSLAND, AUSTRALIA

Maggie

Working towards wellness.
gluten-free (or trying to be) since December 1st 2004

positive blood test - Oct. 2004
positive biopsy -Nov. 2004

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#2 rmmadden

 
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Posted 17 March 2005 - 08:45 AM

Just guessing here but it could be a condition known as Barrets Esophagus. This condition is tied to GERD or Acid Reflux Disease and causes a narrowing of the Esophagus. I don't know what else you could do but continue to chew your food as well as possible.

Best of Luck
Cleveland Bob :)
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#3 lbsteenwyk

 
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Posted 17 March 2005 - 01:44 PM

This is probably not related to celiac disease. You could have an esophageal stricture or Barrets Esophagus, as the previous reply suggested. You probably need to have an EGD (endoscopy scope down your esophagus) to find out what is going on. The esophagus can be "stretched" to decrease your symptoms. They can do it when they do the EGD. Do you have a GI doctor that you see? He/she should be able to help you with this. If not, get a referral from your GP.
Good Luck! :)
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#4 mcalister14

 
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Posted 17 March 2005 - 08:18 PM

My husband, which has celiac disease, had the same problem. During his small intestine biopsy they were able to view his esophagus. They found he had GERD. For 3 months he took Prilosec which healed the serious damage. He feels so much better now. I also recommend getting a scope of your esophagus. It's a simple procedure. His GI Dr. informed us this is not related to celiac disease.

Have a good day,
Stacy
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IgG- 120(severe+)
IgA- 18(normal)
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#5 darlindeb25

 
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Posted 18 March 2005 - 02:39 AM

well maggie--here we go again---ME TOO---most of my life, more so as of the last several years---years ago i was told by the doctor that i was born with a malformed esphogas---i too choke on food--some foods more so then others---the worst food for me is some puddings, pineapple, bread, and meats-----my dad has the same problem and so does my sweetie at times---and--i dont believe it has anything to do with celiacs---deb
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Deb
Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

#6 pwalasik

 
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Posted 19 March 2005 - 04:54 PM

Hi Deb,
I agree with what everyone else posted regarding GER or GERD. Just wanted to fill you in on my personal experience with this topic as another option. My daughter (who has Celiac) had this same problem, until her tonsils were removed. Basically, they were so large, they obstructed her airway, making it difficult for food to travel to her esophagus. So, she choked...a lot. Another thought is if you ate gluten for many years before eliminating it from your diet (sorry my short term memory forgets how long you have been gluten-free). You may have dental problems that result in the inability to effectively chew your food throughly. So, you may be swallowing food that simply isn't digested enough to be swallowed, thus resulting in choking. I tend to have this problem because of soft teeth/ bad molars. However, I do not have Celiac. I know teeth issues go with celiac disease so the connection just came to mind. Obviously, this isn't the issue for Celiac's who have problems with soft foods, like the one's who described their problems with GER. I hope this adds another possible solution to your problem... Good Luck.
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#7 GFManiac

 
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Posted 30 April 2005 - 02:22 AM

I had this symptom for years! The first bite of each meal was always hard to get down and got so bad the last year that I would vomit a bit sometimes. This has completely resolved since going gluten-free for me. Sorry it hasn't done the same for you :(
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#8 anewsprue

 
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Posted 30 April 2005 - 04:15 AM

Hi, sorry to hear you are having such problems. I have have GERD and celiac disease. The last time I had an endoscopy the doc stretched my esophogus because I too was choking on everything. It did help for a while, but has returned so that I have trouble swallowing pills and even fluids. It does help if you take a drink of water before a bite of food, but I choke on that sometimes too. Wish there was an easy answer but I sure haven't found one. Good Luck to you!
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#9 cdford

 
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Posted 01 May 2005 - 01:03 AM

I have the swallowing problem but do not have GERD. My family watches me like a hawk when I eat because it can be such a problem. I have the neurological damage and the docs think that is the cause for me. It has gotten much better the longer I am gluten-free, though it still comes and goes some.
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Donna
South Georgia
9 yrs gluten-free
...also DH, fibromyalgia, neuropathy, osteopenia, hypothyroid...

After almost 10 years, I am doing soooo much better!

#10 GFManiac

 
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Posted 02 May 2005 - 04:02 AM

So, it seems like choking can be caused by either GERD or neurological damage. Does anyone have any good links on Celiac and neurological damage? I would like to understand why I used to choke on food. I never had heartburn or any other problems like that, so I'm leaning towards the latter. Thanks!
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#11 Dangerkitten

 
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Posted 02 May 2005 - 08:50 AM

I had the same problem for over a year. I went to a all time low weight of 113 lbs because I was so afraid to eat. I would wake up the morning after I had a cup of cocoa and burp up pure cocoa without stomach acid. When I told my doctor about this he said it was "physiologically impossible" and emotional and sent me to a Psychologist. Apparently this disorder was considered rare in women, and only really seen in older men. I don't seem to fit into most statistical norms though.

Luckilly I moved 100 miles away and got a correct diagnosis when my (new) rheumatologist sent me to an Ear Nose and Throat specialist. I had barium swallow which showed a Zenkers Diverticulum in my esophogus that was almost the size of my thumb. It's a pouch, which could hold large amounts of food, pills, vitamins and drink and would cut off my throat (and breathing) when it filled up and caught the edge of another peice of food. I can't tell you how many choking instances I had.

The pouch was surgically removed and sewn up and eventually I healed. The damage to my health was massive, because my previously undiagnosed autoimmune issues went haywire.

I hope you find out what is bothering you, because I can really empathise with the whole matter. Best of luck on finding out the cause.
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#12 cdford

 
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Posted 03 May 2005 - 01:15 AM

I can't remember right now where I finally found some really good info on the neurological damage and the muscle spasms. When my brain works again, I'll try to remember to check and post the info here. Right now I am just having one of those days...well, weeks.
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Donna
South Georgia
9 yrs gluten-free
...also DH, fibromyalgia, neuropathy, osteopenia, hypothyroid...

After almost 10 years, I am doing soooo much better!

#13 GFManiac

 
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Posted 14 March 2006 - 02:12 AM

I need to revive this forum to see if anyone else suffers from this. I had problems choking on food (mostly meat) for years, particularly the ones before I was diagnosed with Celiac. This would happen almost every day. After I started the gluten-free diet, this symptom disappeared completely. I didn't have any episodes for over a year. WELL, now I am pregnant and the symptom is back (along with a couple other things like restless leg syndrome, etc). I don't have any other GI symptoms. My only thought is that it might be related to lack of nutrients in some fashion. I know that when you are pregnant the baby basically hogs all your vitamins, leading to muscle cramps, etc. Could this choking be due to that too?
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#14 ravenwoodglass

 
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Posted 14 March 2006 - 03:43 PM

I need to revive this forum to see if anyone else suffers from this. I had problems choking on food (mostly meat) for years, particularly the ones before I was diagnosed with Celiac. This would happen almost every day. After I started the gluten-free diet, this symptom disappeared completely. I didn't have any episodes for over a year. WELL, now I am pregnant and the symptom is back (along with a couple other things like restless leg syndrome, etc). I don't have any other GI symptoms. My only thought is that it might be related to lack of nutrients in some fashion. I know that when you are pregnant the baby basically hogs all your vitamins, leading to muscle cramps, etc. Could this choking be due to that too?



Are you taking prenatal vitamins and if so are you sure they are gluten-free?
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#15 plantime

 
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Posted 14 March 2006 - 03:59 PM

Pregnancy puts an immense pressure on the stomach and esophagus. I had trouble with eating each time I was pregnant because of it. It could be the revival of your choking is only because of the pregnancy.
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Dessa

The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25




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