At What Age?
Posted 20 February 2004 - 12:32 PM
- is it genetic?
- can someone develop it later in life (im 23 and was just diagnosed a few days ago), does this mean ive had it my whole life? up until a few months ago i never had any stomach or GI issues.
but reading some of your stories here have really calmed my nerves. when i first found out about celiac, i almost broke into tears. all my favorite foods were on the "Bad" list.
but seeing how some of you have moved on past this and are leading great healty lives, its given me alot of courage. thank you
Posted 20 February 2004 - 04:29 PM
I am 23 too, and was diagnosed 6 weeks ago. Looking back, I think it was lurking in me since i was 14 ( I got some parasites traveling) and then it got a lot worse over the last year, but seamed "just a worse version of normal" and then I got the flu and all hell broke loose. I guess what I am saying, and I base this on reading this board and every book I can find, is that our bodies express this disease in a million different ways. My sister has it and never really had digestive problems. and she's 32! ( she just gets really dumb what she eats wheat.) I have heard other peope who didn't develop it unitl their 40's.
I know I have been going through a mourning process. I was fortunate to not really like bread or pasta, ever. but I still have moments oh, I can't ever have a powdered donut again. It IS a genetic disease that seams to be more common among women. what I have read says about a 3 to 1 ratio women to men. ( Won't you be a lucky guy at a support group meeting...)
good luck. I know as a newbie I have found this board to be a life line, and an incredibly valuable source of info. I hope you do to. Good luck finding foods you love. there's lots out there for us.
Posted 20 February 2004 - 05:05 PM
the age thing is what really bugs me. i mean... there was to be some kind of trigger. but im no scientist, so who knows.
well, good luck to you to. wishing only the best for you, and for the whole message board.
Posted 20 February 2004 - 10:45 PM
I wasn't diagnosed until the age of 61, I've had GI and neurological
symtoms which were attributed to gerd and allergies for about 10 years.
I really started getting really sick after what was supposed to be a one night stay
in the hospital for a simple left thyroidectomy for a benign tumor, turning into
four days in the ICU. I had a bronchospasm in the recovery room, my body filled up with fluid and I almost died. After that my mother had a slight stroke and I
brought her to my home for two years. The doctor thought the stress from
these things happening probably" triggered" the immune system to go on high
alert and I really began having bigtime problems. What I'm trying to say is that
it isn't a matter of " age ", I think it is the amount of stress we have in our lives,
and how we handle it..
gluten-free since 11/03, neg biopsy, IGA elevated
Posted 21 February 2004 - 09:00 AM
Posted 21 February 2004 - 06:19 PM
I'm 46, and was diagnosed about a month ago. My GE noticed "prominent villi" (he later stated that he should have said, "damaged") when he was looking around my gut, trying to figure out if my chronic heartburn was doing any longterm damage. He sent me for the blood tests, and they came back quite positive. He said, somewhat accusingly, "I don't know why you don't have symptoms. You should!" So, now I'm trying to change my diet, heck, my whole life (and that of my family) because of something the doctor noticed by chance? I tell my friends that I'm past the denial stage, and well into the anger stage now.
My mother, on the other hand, has had the classic symptoms all of my life. I spent much of my childhood trying to find bathrooms in a hurry for her, and standing guard outside while she made disgusting noises and smells in there. I'm trying to convince her to get tested, but she's resisting. I think she doesn't want to deal with the disruption to her eating habits, if she finds out she has it. One of the other ladies in the retirement community makes a big deal of having it, and talks incessantly about it, and she is afraid she'd have to be like that.
I can relate. Part of my job is taking committees out for nice meals (rough life!), and in the past month, the wheat issue has come up in every one of them. I don't want to talk about it, but I can't help talking about it. Anyone else? Add that to shellfish (and living on the coast) and nightshade (tomatoes, eggplant, bell peppers) allergies, and restaurant eating gets pretty challenging. I figured steak should be ok (so much for my semi-vegetarian preference), but the last one I got had a (wonderful) sauce on it. Guess there's no avoiding grilling the waiter (hmm, now there's a visual image.... ).
Ok, that's enough whining for now. I do feel better, though. Thanks for being there.
Posted 21 February 2004 - 06:44 PM
A person can carry the celiac gene yet not develop the disease. It is not know what can trigger a person to develop Celiac Disease.
Some schools of though are attributing it to the increase of Grains in the human diet over years and that we now eat alot more than previous generations. I tend to agree with this.
Grace was diagnosed at 9 years but in hindsight (ahh a wonderful thing, LOL) I feel she has been Celiac since she was a baby.
I have had our whole family tested after Graces diagnosis and so far no-one else has Celiac disease. However I am mindful of the possible signs and will have myself and others in the family retestd as needed. Because one of us could develop it further down the track.
I hope this helps.
Posted 23 February 2004 - 01:31 AM
From what I read and heard from other Celiacs, the age of 20 is very susceptible of showing this disease in its true severity.
Posted 02 March 2004 - 12:15 AM
Now I'm 59, have a 10 month old grandson who was recently diagnosed Celiac, and my sister was also diagnosed just this week (Shirley, I haven't shared with you lately, but we are now testing as many family members as possible--hurray!).
My grandson and I are also allergic to all milk and dairy, and my list includes allergies to casein, whey, egg whites, and yeast (as well as butter, milk chocolate, and anything else containing milk derivatives).
I am so blessed to be at this stage of life. Being Celiac means I adhere to a strict, nutritious diet, and I am quite healthy now. My grandson is now taking his first steps walking, and I am able to be there to see him do it. The world is a good place to be. Best wishes. Welda
Posted 02 March 2004 - 07:22 AM
Posted 02 March 2004 - 10:02 AM
Posted 03 March 2004 - 10:20 AM
I also have had depression off and on since my teens, and just felt crappy a lot. I also had problems with irritability. As a child I had a lot of nosebleeds, and some Celiacs are starting to wonder if it is related to celiac disease, as half of Celiacs polled on the Delphi forum voted that they had frequent nosebleeds as a child and teen. I think my birth mother may be a Celiac too, because she always gets stomach aches. (I am adopted.) I haven't called to tell her though.
I read that celiac disease usually activates in children when they are 2 yrs old, or as adults in the 30's and 40's, or it is maybe brought on by stress, surgery, or illness.
Posted 03 March 2004 - 10:49 PM
I hope this finds you feeling better. I agree with you about voting. I sent my ballot off by absentee vote about 10 days ago. Yes, Dakota is taking a few steps now. All the testing has been done by Enterolab, and my sister learned this week that she does have Celiac. Thanks for the reply, and I will picture you in good health! Welda
Posted 07 March 2004 - 06:10 AM
I was diagnosed only 3 years ago aged 57 but I had been ill for over 30 years.
It was thought recently (after research in Bristol UK on 7 year old children) that, because about 1 in 100 of their sample had blood tests which indicate celiac disease- the same as for adults, the condition may start in childhood but often is not diagnosed until we are adults.
My symptoms were anaemia, mouth ulcers, tiredness, thyroid problems.
I also found out I had osteopenia (low bone density) through a DEXA scan.
If you are recently diagnosed please see:
Posted 13 March 2004 - 02:38 AM
Looking back now to my early 20s there were plenty of signs of celiac disease especially when I drank beer-check that too much beer The symptoms(GI/constant colds/flus and fatigue) would come and go at first but eventually overwhelmed my system to the point where everything I ate would cause severe stomach pains and a constant need to have a BM.
I was too embarrassed to go see my Doc and tell him that I had trouble controlling my BM. So I waited till I was very sick, I thought I had a stomach virus(never heard of celiac disease). At first I was told I had Irritable Bowel then 2 weeks later when I dropped 12 lbs he tested for celiac disease and here I am.
Now 34 33 lbs lighter,1/2 in shorter, and a nice case of ostiopenia. Paying the price for not seeing my Doc sooner although my GI said they probably wouldn't pick up on it until it got as bad as it did.
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