I Wrote To Oprah Too
Posted 17 March 2005 - 07:45 AM
It is a disease that is even more prevalent in America than diabetes yet most people have never heard of it. Celiac disease has been shown to affect an estimated 1 out of every 130 Americans. Still, only 1 in every 4,700 patients leaves the doctor's office with this diagnosis.
You may have gotten food poisoning from salmonella or spoiled food, but for someone with celiac disease this reaction can happen every single time they ingest anything with wheat flour in it. That includes cookies, cake, pizza crust, ice cream cones, and even many things you might not suspect like almost all soups. Gluten is the poisonous protein found in wheat flour, and also barley and rye.
I am a 27-year-old celiac, diagnosed two years ago, but I have suffered with a laundry list of symptoms for nearly half of my life. My goal is to someday soon be able to say "Iím a celiac" to a waitress at a restaurant and have it make as much sense as if I'd said "I'm a diabetic." This would be in opposition with the current-day situation: people look at me like I'm from Jupiter and askÖ "A silly yak?"
Celiac disease is grossly undiagnosed in this country, primarily because most of our doctors learned that nontropical sprue (as they like to call it) is a rare condition that presents itself in infants with classical life-threatening symptoms. In actuality, the symptoms often disappear in children only to return again in adulthood with various symptoms that mimic many other conditions, making it very difficult to pin down an accurate diagnosis.
Once the diagnosis is made, the effects of the disease can be extinguished usually within three weeks after beginning a 100% gluten-free diet, depending on the amount of damage done. So, a timely diagnosis is critical, because after years of damage to the intestines, many serious complications may have arisen including: infertility, osteoporosis and intestinal cancer (unfortunately this is the very short list).
gluten-free since July 2003
Baby boy (Nathan) born Feb 2nd 2006
Posted 17 March 2005 - 10:31 AM
Posted 17 March 2005 - 12:27 PM
Posted 17 March 2005 - 12:33 PM
A few weeks back I wrote to the food network about doing a show on Gluten-Free cooking. Specifically, I emailed the Emeril Live show as I like to watch it and other Food Network shows. I said pretty much the same thing that 1 out-of 133 American's has Celiac but yet most people are clueless. I asked them for some good bread recipe's and other "Tasty Gluten Free" choices.
Let's keep our fingers crossed!
Endoscopy & Blood Work Positive.....
gluten-free Since December 2004.....
Soy Intolerant August 2007......
Posted 17 March 2005 - 12:45 PM
Posted 17 March 2005 - 12:52 PM
Posted 17 March 2005 - 01:09 PM
I hope that your Oprah letter works. We had a huge letter writing campaign to her about 2 years ago. Nothing ever came of it Maybe if people keep writing it will eventually make a difference OR she will get sick enough of us and put us on a show
Gluten Free since 12-31-2002!!
Posted 17 March 2005 - 01:24 PM
The Food Network would be great too, but there would need to be a cook who knew something about gluten-free cooking. I'd be disappointed to have a show cook gluten-free foods that are already safe, like veggies and meats.
anti-body negative, self diagnosed, Gluten free since March 2001. Two sons (8) also have celiac. Antibody and biopsy positive. I love to cook and after much much experimentation can now get by pretty well!
Posted 17 March 2005 - 01:45 PM
Posted 18 March 2005 - 07:31 AM
I would love to see Oprah, or Montel, cover Celiac. Both are capable of a responsible show with a major impact.
Posted 18 March 2005 - 08:08 AM
I also noticed that when Greg replied to his brother and law about the gluten-free cake and wanting to be able to have a piece too,
Greg was holding a can of beer (budweiser it appeared to be)!!
So, I guess they are trying but still do not have all the facts of our disease pinned!
Diagnosed Celiac in Feb 2004
Posted 18 March 2005 - 09:34 AM
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