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I Wrote To Oprah Too


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11 replies to this topic

#1 mcle8232

 
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Posted 17 March 2005 - 07:45 AM

There is a limit of 2,000 characters so I wrote this letter in 1,942 characters (including spaces) :D

It is a disease that is even more prevalent in America than diabetes yet most people have never heard of it. Celiac disease has been shown to affect an estimated 1 out of every 130 Americans. Still, only 1 in every 4,700 patients leaves the doctor's office with this diagnosis.

You may have gotten food poisoning from salmonella or spoiled food, but for someone with celiac disease this reaction can happen every single time they ingest anything with wheat flour in it. That includes cookies, cake, pizza crust, ice cream cones, and even many things you might not suspect like almost all soups. Gluten is the poisonous protein found in wheat flour, and also barley and rye.

I am a 27-year-old celiac, diagnosed two years ago, but I have suffered with a laundry list of symptoms for nearly half of my life. My goal is to someday soon be able to say "Iím a celiac" to a waitress at a restaurant and have it make as much sense as if I'd said "I'm a diabetic." This would be in opposition with the current-day situation: people look at me like I'm from Jupiter and askÖ "A silly yak?"

Celiac disease is grossly undiagnosed in this country, primarily because most of our doctors learned that nontropical sprue (as they like to call it) is a rare condition that presents itself in infants with classical life-threatening symptoms. In actuality, the symptoms often disappear in children only to return again in adulthood with various symptoms that mimic many other conditions, making it very difficult to pin down an accurate diagnosis.

Once the diagnosis is made, the effects of the disease can be extinguished usually within three weeks after beginning a 100% gluten-free diet, depending on the amount of damage done. So, a timely diagnosis is critical, because after years of damage to the intestines, many serious complications may have arisen including: infertility, osteoporosis and intestinal cancer (unfortunately this is the very short list).
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Megan
confirmed celiac
bloodwork/endoscopy positive
gluten-free since July 2003

Baby boy (Nathan) born Feb 2nd 2006

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#2 minibabe

 
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Posted 17 March 2005 - 10:31 AM

that would be absolutly amazing if we could be Oprah to do a show on this. it would bring the awareness level up and people would possibily understand alot me. Good luck! :)
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#3 celiac3270

 
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Posted 17 March 2005 - 12:27 PM

Thank you for writing...that would be amazing if she did a show on it--with all the viewers and influence she has...wow...keep us posted if anything comes of it!
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#4 rmmadden

 
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Posted 17 March 2005 - 12:33 PM

Excellent letter! Let's hope it sparks some interest/publicity on celiac disease.

A few weeks back I wrote to the food network about doing a show on Gluten-Free cooking. Specifically, I emailed the Emeril Live show as I like to watch it and other Food Network shows. I said pretty much the same thing that 1 out-of 133 American's has Celiac but yet most people are clueless. I asked them for some good bread recipe's and other "Tasty Gluten Free" choices.

Let's keep our fingers crossed!

Cleveland Bob :)
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"Dreams Are What The Future Is Made Of"

Endoscopy & Blood Work Positive.....
gluten-free Since December 2004.....
Soy Intolerant August 2007......

#5 Guest_barbara3675_*

 
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Posted 17 March 2005 - 12:45 PM

On "Yes, Dear" last night, in the opening segment, the brother-in-law said to Greg "you took gluten-free carrot cake without nuts to the office" and Greg said "that is because I wanted to be able to eat some too" It is good to hear glueten-free being mentioned in the natural course of things. We are headed in the right direction here folks. However, if the QUEEN of television did a show on it, that would be supreme. If you hear that she is going to do one, please let me know, because I am working at that time and I would have to make special arrangements to tape it. Thanks....Barbara
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#6 bmorrow

 
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Posted 17 March 2005 - 12:52 PM

Great letter! I hope that Oprah will become interested in learning about Celiac and decide to do a show. That would increase the public's knowledge and awareness of it faster than anything.
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#7 angel_jd1

 
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Posted 17 March 2005 - 01:09 PM

That's hillarious that "yes dear" said that on their show, a year or so ago they made fun of gluten intollerance. They had a play date with a child who was gluten intollerant and didn't want to go because of that. I'm almost certain it was Yes Dear. Maybe someone else can help me remember for sure.

I hope that your Oprah letter works. We had a huge letter writing campaign to her about 2 years ago. Nothing ever came of it :( Maybe if people keep writing it will eventually make a difference OR she will get sick enough of us and put us on a show :lol:

Good luck!!

-Jessica :rolleyes:
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Jessica
Gluten Free since 12-31-2002!!
Kansas

#8 Deby

 
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Posted 17 March 2005 - 01:24 PM

Wow, Oprah's show would be great. Good luck.

The Food Network would be great too, but there would need to be a cook who knew something about gluten-free cooking. I'd be disappointed to have a show cook gluten-free foods that are already safe, like veggies and meats.
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Monica
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anti-body negative, self diagnosed, Gluten free since March 2001. Two sons (8) also have celiac. Antibody and biopsy positive. I love to cook and after much much experimentation can now get by pretty well!

#9 celiac3270

 
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Posted 17 March 2005 - 01:45 PM

Wow...all of this was really interesting to read :) (Yes, Dear, The Food Network, a previous Oprah letter-writing spree...). I never got to take part in the last letter spree....if this one letter (with very good statistics included), doesn't do anything, maybe we should organize another! Write letters every year until we get Celiac Disease on the show! :lol:
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#10 mommida

 
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Posted 18 March 2005 - 07:31 AM

I just wrote to Montel. He may be more sympathetic for Celiacs because of the M.S. Did I read somewhere that a gluten free diet was suggested for M.S.?

I would love to see Oprah, or Montel, cover Celiac. Both are capable of a responsible show with a major impact.

Laura
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Michigan

#11 megzmc3611

 
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Posted 18 March 2005 - 08:08 AM

I saw the episode of Yes Dear this week!
I also noticed that when Greg replied to his brother and law about the gluten-free cake and wanting to be able to have a piece too,
Greg was holding a can of beer (budweiser it appeared to be)!!
So, I guess they are trying but still do not have all the facts of our disease pinned! :)
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Megan
Diagnosed Celiac in Feb 2004
Boston, MA

#12 jcgirl

 
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Posted 18 March 2005 - 09:34 AM

Last night on a re-run of King of Queens, Carrie was wearing a shirt that said Gluten Free with some other writing under it but it was to small to make out. Shows like the Good Morning American and Today would also be great options to get the word, espcially sense many people have them on while getting ready in the morning.
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