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Stomach Burning
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My stomach has been burning for over a year. My family Dr. said it was IBS or GERD. I finally saw a gastro Dr. recently and had a colonoscopy, stomach scope, CT scan, and bloodwork done. I do know that I have IBS for sure. I have not had the celiac blood test done yet, but the Dr. said it looked like I might have celiac from the scope. But he didn't really know. I have tried carafate, protonix, nexium, levbid, zantac and nothing stops the burning in my stomach. I have read and looked on the internet but all I can find about stomach burning is GERD. My burning is in the pit of my stomach like it is on fire and I can't get it put out. It is not up high like GERD. I have been on the gluten free diet for a few days so I can't really tell if that is it yet or not. Although, it seems like things with caramel coloring make my stomach bunr worse. so celaic may be what I have. Does anyone else's stomach burn like mine does?

Thanks

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I get mild to severe pain in my upper abdominal region (just about where the stomach is). I have been gluten free for a year and this symtom just started about 3 months ago. My GI doc says I have IBS (in addition to celiac) which causes pain in that area. However, I am also being tested for diabetes and pancreatic insufficiency (pancreatitis) which can also cause pain in that aera.

I am currently having other symptoms in addition to that pain though.

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Is a stomach scope the same as an endoscopy? Have they checked you for an ulcer in the small intestine, where villi are also inspected?

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Yes, an endoscopy. And, yes the Dr. said it looked to be a little irritated or whatever. He wasn't sure this was what it was though. But on the celiac diet, my stomach doesn't seem to burn as bad. Can you tell if some things bother you almost immediately after you eat them? What are your sypmtoms when you know you've eaten gluten?

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I'm new to this list and have never posted - just lerking and learning what I can. Been dealing with Celiac for 3 years now and only diagnosed in November 04. I know exactly how you feel, this is what I feel when exposed, but what does help me with the burning stomach is to take L-Glutamine powder, one scoop in the morning and one scoop at night - mixed in any liquid drink. This helps to coat and heal the stomach and helps to seal up the fissures that might be present to allow gastric content to leak out. Then I also take Quercitin (buy at health food store) and take one pill 3 times a day. This is herbal and helps your body deal with the reaction to gluten that is going on. Takes a few days, but has always calmed my stomach down to either a more tolerable level or makes the pain go away completely.

I had a recent flare up this week where the pain was unbelievable, worst outbreak I've had in a month or so. Started the L-Glutamine and Quercitin on Tuesday and the pain is gone today. Although L-Glutamine sounds like gluten, it isn't, my doctor prescribed it - but you can buy it at health food stores, the pharmacy OTC or on line. A little pricey, but well worth it for me to keep on hand.

Hope this works for you like it does me.

Leslie

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Celiac can cause the burning that you are having. Once you get off gluten your symptoms will get less and less if it is a celiac problem. Considering it is getting better when you are off gluten I would suspect that the more you are off of gluten the better it will get. If I accidentally have gluten I get pain in my stomach on and off for like 2 weeks. I would try taking enzymes with your food. This may help to minimize your pain after eating. Also probiotics are good too. I take these supplements and more and they have definately helped. If I can help you let me know :D

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Thanks for all the input. Since I am new to this diet, I am learning a lot from this forum.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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