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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Mother With Celiac And Anemia, Reactions To Iron? - Celiac.com Celiac Disease & Gluten-Free Diet Forum
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Mother With Celiac And Anemia, Reactions To Iron?
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Posted 08 January 2009 - 06:43 PM
Hello everyone! My name is Jean, and I'm a daughter to a wonderful woman recently diagnosed with celiac. We've been gluten-free for some time now, and it's helped tremendously with her health. My mother also has lupus, MS, and anemia, so we were very surprised when the lack of gluten in her diet made things so much better.
However, for the first time since she's gone gluten free, she's gone back to taking iron pills for her anemia. Each time she's taken them, however, she's felt shaky, agitated, off-balance, and very tired. She's tried to look this up online, but hasn't found anything to do with celiacs and anemia. So I thought I would try here. 
Does anyone here deal with anemia AND celiac disease, tried taking iron pills or supplements, and wound up with any reactions like these? Any and all help would be greatly appreciated. Also, as I'm very new to the board (signed up the other day in the hopes of helping my mom) I'm hoping I'm placing this in the right thread, and if I'm not, which one should this belong in?
Thank you so much in advance,
~Jean
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Posted 08 January 2009 - 06:55 PM
Welcome. I had iron and B12 anemia when I was first diagnosed as a celiac too .. While I don't remember exactly how those iron pills affected me, I did have to stop them. I used a cast iron pan and ate rare beef and buffalo to get my iron back up. If it's too low a doctor can order iron IV's, but my doc thought the risk involved with these was too great overall.
Edited to add ... I reacted to the prescription ones my doc ordered too ..
Jan 1990 - Dx CFS/ME/FM (URI's, Ataxia, myoclonus, orthostatic hypotension, insomnia, brain fog, swollen lymph nodes, sore throat... ) Completely Disabled (housebound and bedridden at times)
2004 - Digestive pain all the time.
May 2004 - Hiatal hernia, erosive gastritis, gastroparesis (endoscopy)
August 2004 - Colon polyps, diverticulitus, internal hemorrhoids (colonoscopy)
No relief from Nexium, Prilosec, Protonix, Zelnorm, Miralax, Imodium, Lomotil ...
July 2005 - GP recommended WFDFSFEFCF + vegan (Also, anything that hurts free)
Immediately stopped needing naps and digestive pain reduced.
Sept 2005 - GFDFCFSFEF + chemical free - Immediately stopped feeling jittery / buzzing and digestive issues were much better.
June 2006 - Dx B12 and iron deficient. Started B12 injections and using cast iron pan.
August 2006 - MYOCLONUS GONE. (off Klonopin)
September 2006 - ATAXIA, INSOMNIA and Feeling like the floor was moving under my feet gone.
June 19, 2007 - Positive DQ2, Dx Celiac
October 2007 - Sleeping like a baby, waking up with energy, but still having fatigue/stamina issues
Nov 2007 - Started Paleo diet for chronic hypoglycemia
April 2008 - GTT normal. I'm no longer hypoglycemic. Started Low oxalate diet for kidney stones.
May 1, 2008 - Began salt loading for OI/NMH - noticed immediately muscle weakness was gone. I was sodium deficient but my labs don't reflect it. Still working on OI and PEM.
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Posted 08 January 2009 - 07:01 PM
Have you tried different brands? It might be a filler in the pills.
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Posted 09 January 2009 - 09:07 AM
Pernicious Anemia has a connection to Celiac Disease. She should be tested.
Michigan
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Posted 11 January 2009 - 01:29 PM
I would check and make sure the iron she's taking doesn't have gluten hidden in the filler. When I first went gluten-free I was taking Floradix and had no idea it had wheat in it until a friend told me. Now I take New Chapter iron which is gluten-free. I also just found out that Country Life Vitamins are all gluten-free, so there is no risk of cross contamination.
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Posted 15 April 2009 - 05:57 AM
im very anemic. i tried supplements but they all gave me horrible GI problems so i get injections and have had no problems with them. feel a little "high" when i first get the shots but thats it.
dx PCOS (poly-cystic ovarian syndrome) winter 2008
dx Celiac March 12/09
Liz/26/Ottawa, Ontario, Canada
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Posted 16 April 2009 - 06:06 PM
Iron supplements are horrible for an already damaged digestive system. Stay away from them. Eat hamburger and steaks everyday with a glass of juice with vitamin C for a week or two. That should give you the boost you need.
Iron supplements cause bacterial overgrowth in the intestine, worsening GI problems.
Rheumatic fever at age 5 and again at age 6. Antibiotics for 6 years to prevent strep throat.
Anemia, Mono, Hepititis, Pernicious Anemia, Enlarged Heart, Osteopenia, Vitamin D deficiency, Ataxia, Digestive issues, reactive hypoglycemia, and on and on and on!
Following the SCD diet after gluten free didn't solve symptoms. Much better and getting back my life!
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