Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

First Visit With Doctor Next Week


My3B's

Recommended Posts

My3B's Rookie

I am going to the doctor next week to ask to be tested for Celiac Disease. I have been complaining about fatigue and joint pain for many years. Diagnosed as hypothyroid and have been on thyroid replacement for 6 years. I had problems with infertility, pervious IBS symptoms which have returned and worsened, migraines which haver also returned and worsened, depression, mood swings and irritabiltiy and now take an antidepressive med (have been assuming I am perimenopausal.) I am prediabetic and suffer from asthma and any time I need to go on steroids my sugars go through the roof. I have terrible gas and every couple days have crampy loose stools and have had a couple accidents because I suddenly had to go and did not make it to the bathroom. How embarrasing and I am only 40. In the past I have been left feeling like I am a hypchondriac and many symptoms have been chocked up to I am a working mom who works the night shift. I have gained alot of weight and generally feel miserable.

Interestingly enough I am heading down this road not for my symptoms but for my kids. My youngest has symptoms of add/adhd and is having some trouble in kindegarten. I was reaearching diet alternatives to dealing with add and came upon gluten free and gluten/casein free diets as a treatment.. He is only showing the emotional symptoms but his sister is 7 1/2 and she has had slow growth and has been seen by a pediatric endicronologist and has been tested with growth hormone challenges etc but still remains a very slow grower. She also has occasional emotional issues (referred to as her drama queen days) and she has intermittent abd. cramps and diarrhea which has been diagnosed as toddler diarrhea.....umm she's almost 8.....also she and I both have that bumpy acne type skin condition that some people describe on the back of their arms. I remember when she started with it last year I was thinking "She's only 6, she should not have my bad skin already!" anyway given the totality of the situation I am suspicious of Celiac disease.

Thanks to this forum I feel confident I can request the right tests be done for accurate diagnosis and I am pushing for the official diagnosis because with the kids it will be very important to get the official diagnosis in terms of services and legal issues regarding school lunches etc. Another thing I learned from this forum. That is why I am going first to hopefully make it easier for the kids to be diagnosed.

So although I am not hoping for Celiac disease I am kinda looking forward to an actual diagnosis that points to something other than I am crazy. I think in the end even if Celiac disease is not the problem I am going to try a gluten free diet for at least me and my son with the add. Of course not until all the testing is done completely, another thing I have learned from this forum.

SO thanks to everyone here, I feel I have learned a great deal to get started down this road.

Alicia and the 3 B's

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
.

So although I am not hoping for Celiac disease I am kinda looking forward to an actual diagnosis that points to something other than I am crazy. I think in the end even if Celiac disease is not the problem I am going to try a gluten free diet for at least me and my son with the add. Of course not until all the testing is done completely, another thing I have learned from this forum.

SO thanks to everyone here, I feel I have learned a great deal to get started down this road.

Alicia and the 3 B's

Tests are not always accurate on young people and there are even false negatives with testing adults. Your plan to try the diet after testing is a good one but I would just do it with all of them. It is not going to hurt kids that don't need to be gluten-free to be so for a bit and it will help a lot with stress levels if you don't have to cook one meal for one child and another for the other 2. Almost anything that has gluten can be made gluten-free and you would help avoid sibling 'issues' that way. It sounds like your DD needs it just as much as your DS.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,036
    • Most Online (within 30 mins)
      7,748

    Davidt4667801z
    Newest Member
    Davidt4667801z
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Katiec123
      @RMJ it makes sense as it’s something I’ve experienced more than once. Currently 24 weeks and baby is doing well! Will be seeking more medical advice today 
    • Manaan2
      Thank you! This is great information and perfect timing because we have our first appointment for a second opinion tomorrow.  
    • trents
      Bright blood in the stool would indicate bleeding down at the lower end in the colorectal area as opposed to the small bowel below the stomach where celiac manifests damage to the villous lining. Are these blood stools persistent? It's not unusual for this to happen once in a while to most anyone when a small surface vessel breaks, kind of like a nose bleed. As Scott Adams said, you must continue to consume regular amounts of gluten if the specialist will be doing additional testing for celiac disease, which could include an endoscopy with biopsy of the small bowel lining.
    • Bev in Milw
      Checkouts gluten-free recipes at twww.redstaryeast.com We tried a bread machine years ago and weren’t happy with results. Bread machines have pre-set rise & bake times.  Unfortunately, the program doesn’t adjust to slight differences when measuring, relative humidity or temperature of ingredients & in kitchens.  Lots of efforts for ONE odd- sized loaf that hard to cut into useable slices.  College-aged son found best use for bread machine was as heavy duty mixer that ‘kept dust in the box.’  He would pre-measure ingredients for 2-3 loaves & use machine mix up individual batches.      Since gluten-free bread needs  to rise only once, each recipe of dough went into a loaf pan. Pans sat counter to rise—time dependent of temp in kitchen. Then, baked in oven until he, not machine, decided it was done.     Took ~10 min extra up front to measure & mix additions but adds nothing to rise & bake times.     Loaves are great for slicing (Slice extra before freezing!). One mess to clean up, saves time & energy since you need to bake  as is half as often (If  you plan to bake lots more than bread, opt for KitchenAid/ heavy duty mixer instead.  Cover with dish towel to capture dust!)     Personally, I’m sure I had as a kid since I’ve never been a fan  of bread. .  Have been wrapping corn tortillas around things for 40+ years.  Can still get a dozen 12-pks of tortillas for same or less than price as 1 load of gluten-free bread. PLUS. the tortillas have more nutrients!         
    • CelestialScribe
      Welcome to the forum. You are lucky because in Korean food, many classic meals such as bibimbap without sauce, barbecue meats and some kinds of soups generally do not have gluten. But it is a good idea to confirm with the restaurant workers for safety reasons. Regarding certain locations, I enjoy going to places such as Plant in Seoul and Sprout in Busan. Moreover, using applications like HappyCow or TripAdvisor can assist you to discover additional choices in the regions you plan to visit. One big tip: it is good to know some important Korean sentences, for example 'I cannot eat gluten' (geulluteuneul meogeul su eopseoyo)  or 'Does this have gluten?' (igeoe neun geulluteuni deureo innayo?) because they can be very helpful. If you are considering getting a local guide, I'd suggest this one https://gowithguide.com/korea They were very helpful when I needed to find places with gluten-free food options because they provide tours tailored to your preferences. Good luck with your travels! 🍻
×
×
  • Create New...