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"Super Sensitive" Celiacs.....


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#76 Jestgar

 
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Posted 19 January 2009 - 08:38 AM

... and get me to a point where I have many more good days than bad.

sorry you still have bad days, but thanks for saying this.

I made a conscious decision not to go for a walk today because I've been feeling so fatigued the last few days. I was starting to get a bit mopey about it, and you reminded me that it will pass...
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#77 MaryJones2

 
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Posted 19 January 2009 - 09:03 AM

Right now I'm using only almond flour (NOT BRM, I get it online from a place called Honeyville). Of course I have every other flour you can imagine in my cabinet. I still use potato starch or potato flour if I'm cooking something that has a sauce, or for the occasional breading that I do.

As for bread, I rarely have it, but I've made this one once. I used a pan that was too big, but it tasted great! So, I bought a smaller pan and I'm going to make it again this week. I'm trying to get the proportions right to make a bigger loaf.

http://www.chow.com/recipes/13579


Yum. I'll try that. I have so many flours too and rarely use them. Tapioca is my breading flour. I've been making Namaste bread using a cast iron loaf pan and it's really good. I am going to buy a bread machine and try that because my husband has decided that he prefers gluten-free bread and I can eat a loaf a day.
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#78 jerseyangel

 
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Posted 19 January 2009 - 09:39 AM

I made a conscious decision not to go for a walk today because I've been feeling so fatigued the last few days. I was starting to get a bit mopey about it, and you reminded me that it will pass...

Aw Jess....it really will :)

It took me a long time to not panic when I had a setback or a bad day. The old anxiety would take over, and I think what I was really worried about was that I'd suddenly be back to 'square one'. I have to remind myself to take a look back and realize how far I've come and how much better I am compared to before I knew what was wrong.

It's a real process, though, and it takes such a toll on us. Bet you're out there pounding the pavement before you know it
:D
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Patti


"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

#79 GFinDC

 
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Posted 19 January 2009 - 10:28 AM

Well, back on the oats...

This one is just for fun.

Poison Oats Cereal video
Blurb: 7.5 minutes long
:A great new Poison Oats Cereal that you can give to your baby's your children and even your dog! Its made from all natural poison oaks...i mean Pwoiuson Oats, with a "T"...because k's are lame"


OK, about contamination though. I am thinking that the contamination issue with oats is mostly related to wheat flour dust that might be present in the processing facility. I think the wheat grain itself in whole form is very different looking from the oats grains. So it would be visible if you are using whole oats vs the kind that are cut up in little bits, (steel cut oats). Generally I eat the oats that are not cut up myself, so the presence of wheat grains in them would be something I'd see, as they look very different. Wheat flour though would not be visible so it would be best to get the oats from dedicated processing facilities vs those that also process wheat flour. Bob's Red Mill does have a dedicated gluten-free facility they use, and they sell gluten-free oats.
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#80 lizard00

 
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Posted 19 January 2009 - 10:55 AM

It took me a long time to not panic when I had a setback or a bad day. The old anxiety would take over, and I think what I was really worried about was that I'd suddenly be back to 'square one'. I have to remind myself to take a look back and realize how far I've come and how much better I am compared to before I knew what was wrong.


Patti, you have been at this a few years longer than I, but I can relate to that. I went through a really bad phase where I found myself really, really, dare I say depressed, that I still wasn't where I thought I should be. But then I had to remind myself that even though I didn't realize it at the time, I was really sick, and now I'm not.

I think most of us here don't dwell on the bad days, which is good. Sometimes, though, it's nice to know that I'm not the odd man out and still having an occasional bad day.
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Be yourself, everyone else is taken.
Oscar Wilde

Gluten free November 2007
IgA Deficient, Neg Bloodwork, Double DQ2 Positive
Dietary and Genetic Diagnosis June 2, 2008
Soy free Jan 09

#81 Kaycee

 
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Posted 19 January 2009 - 12:24 PM

I think most of us here don't dwell on the bad days, which is good. Sometimes, though, it's nice to know that I'm not the odd man out and still having an occasional bad day.


Bad days, and I try not to dwell on them, but I did feel like the odd one out to start with.

It seemed to take me forever to get to where I am now, three years later. But I still feel I haven't quite got to where I want to be. I have had glimpses of what I want to be, bright and bubbly, but invariably I'm still stuck in my cocoon, and not as outgoing as I feel I should be. I'm very careful, and I get glutened occasionally, but more often than I would like.

The lucky ones can go onto a gluten free diet and from day one their symptoms are gone and they appear to be fine. That upset me the first few months. I tried very hard to be gluten-free, I made mistakes, and at times I had made mistakes when I couldn't even track back to where I had been glutened. I felt like a failure and I must have been doing the diet wrong and making big mistakes, as I just wasn't getting anywhere fast for a good year. I have given away soy and I just try to eat simply and healthily. When eating like this it is easy to track down the offending culprit. It makes a big difference, but there is still something I am missing. Corn?

The next thing I will have to do, is convert my whole house to a gluten-free zone. That is a big wish that is not going to happen anytime soon.

Cathy
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#82 lizard00

 
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Posted 19 January 2009 - 07:55 PM

Bad days, and I try not to dwell on them, but I did feel like the odd one out to start with.

It seemed to take me forever to get to where I am now, three years later. But I still feel I haven't quite got to where I want to be. I have had glimpses of what I want to be, bright and bubbly, but invariably I'm still stuck in my cocoon, and not as outgoing as I feel I should be. I'm very careful, and I get glutened occasionally, but more often than I would like.

The lucky ones can go onto a gluten free diet and from day one their symptoms are gone and they appear to be fine. That upset me the first few months. I tried very hard to be gluten-free, I made mistakes, and at times I had made mistakes when I couldn't even track back to where I had been glutened. I felt like a failure and I must have been doing the diet wrong and making big mistakes, as I just wasn't getting anywhere fast for a good year. I have given away soy and I just try to eat simply and healthily. When eating like this it is easy to track down the offending culprit. It makes a big difference, but there is still something I am missing. Corn?

The next thing I will have to do, is convert my whole house to a gluten-free zone. That is a big wish that is not going to happen anytime soon.

Cathy


I'm so sorry to hear that you're still struggling. Have you cut out dairy, too? I find that I can do very, very little grains. That might be worth a try for you. Have you had your vit/min levels checked? I started taking vitamin D a few days ago and I'm starting to feel like I have more energy.

But strictly speaking from food, I cannot eat dairy or soy without feeling it. I eat rice occasionally, and if I do, I can only eat it once in a short time frame, so I don't eat the leftovers. I've only cut out corn a week ago, so I can't really make a conclusion yet. But it's looking like I'll have to limit that if not do away with it altogether.

It took me awhile to come to grips with this, feeling like I'm taking even more out of my diet. But in the end, it's really not. I don't have a shortage of things to eat.
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Be yourself, everyone else is taken.
Oscar Wilde

Gluten free November 2007
IgA Deficient, Neg Bloodwork, Double DQ2 Positive
Dietary and Genetic Diagnosis June 2, 2008
Soy free Jan 09

#83 Kaycee

 
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Posted 19 January 2009 - 10:24 PM

Lizard, thanks for your reply.

In the beginning, about 4 months into the gluten-free diet, I did eliminated three further things in my diet, it didn't seem to make much change. So I added dairy back, then a while later peanuts, and then finally soy. I found soy is the one that I have had most problems with, symptoms very similar to gluten, so I avoid that as much as possible. I did not cut out corn/maize as I didn't want to go there, I thought it would be quite hard as most alternatives have corn in them. But I think I am ready to go there. What difference would cutting out one more grain make, with the type of food I eat, it would be simple to keep track of that as well. Then I'm left wondering, hey, I've got a truck full of food in my pantry with corn/maize in it. Do I wait till I've finished them, or throw them out. Times are tough, so I might just have to finish what I have first.

Cathy
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#84 mushroom

 
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Posted 20 January 2009 - 12:59 AM

It does get to be a dilemma; what should I eat versus what can I not afford not to eat, and what is making the difference anyway. After gluten and soy, nearly all nightshades (occasional potato and a slice or two of tomato in a BLT), and most outright corn--not including corn syrup--my husband asked if I wanted some corn on the cob. I said just a very small piece, and only gnawed off a few kernels, and it didn't feel right. On the other hand I've eaten a few corn chips and a cracker and not had any problem. But then there come those sleepless nights and the palpitations out of nowhere, and you think, oh sheesh, where did that come from? I hate the thought of a food diary but it might be the only way. Why do there have to be so many things???
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"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

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Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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#85 marciab

 
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Posted 20 January 2009 - 08:03 AM

A few months ago, I had stool testing for food intolerances by Dianos-Techs and was glad I did. It showed that I getting gluten antibodies still and that I was allergic to egg whites. I'd been making my own mayo with eggs so this was a shock. I thought I was fine with them. It came back positive for candida and some kind of digestive immune system problem too ...

Genova is another lab that looks at food intolerances .. does Enterolab look at all that too ?

I've finally concluded that I feel better if I stick to the low carb Paleo diet / low oxalate. I was on this and was feeling much better but then around Thanksgiving, because I was feeling so good, I decided to play around with grains, etc .. Now I just have to undo this ... <_<
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Jan 1990 - Dx CFS/ME/FM (URI's, Ataxia, myoclonus, orthostatic hypotension, insomnia, brain fog, swollen lymph nodes, sore throat... ) Completely Disabled (housebound and bedridden at times)

2004 - Digestive pain all the time.

May 2004 - Hiatal hernia, erosive gastritis, gastroparesis (endoscopy)
August 2004 - Colon polyps, diverticulitus, internal hemorrhoids (colonoscopy)

No relief from Nexium, Prilosec, Protonix, Zelnorm, Miralax, Imodium, Lomotil ...
July 2005 - GP recommended WFDFSFEFCF + vegan (Also, anything that hurts free)
Immediately stopped needing naps and digestive pain reduced.

Sept 2005 - GFDFCFSFEF + chemical free - Immediately stopped feeling jittery / buzzing and digestive issues were much better.

June 2006 - Dx B12 and iron deficient. Started B12 injections and using cast iron pan.

August 2006 - MYOCLONUS GONE. (off Klonopin)
September 2006 - ATAXIA, INSOMNIA and Feeling like the floor was moving under my feet gone.

June 19, 2007 - Positive DQ2, Dx Celiac

October 2007 - Sleeping like a baby, waking up with energy, but still having fatigue/stamina issues

Nov 2007 - Started Paleo diet for chronic hypoglycemia

April 2008 - GTT normal. I'm no longer hypoglycemic. Started Low oxalate diet for kidney stones.

May 1, 2008 - Began salt loading for OI/NMH - noticed immediately muscle weakness was gone. I was sodium deficient but my labs don't reflect it. Still working on OI and PEM.

#86 lizard00

 
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Posted 21 January 2009 - 07:35 AM

Ok, it took me two days to decide to ask this question:

Do any of you successfully eat McDo's fries???? or Have any of you successfully eaten them?

My family was eating them the other night and I really wanted one. I didn't though, because I thought better of it. I really don't want this to become the "is it safe, is it not" debate... I just want to know of the "super sensitive", can any of you actually eat them?
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Be yourself, everyone else is taken.
Oscar Wilde

Gluten free November 2007
IgA Deficient, Neg Bloodwork, Double DQ2 Positive
Dietary and Genetic Diagnosis June 2, 2008
Soy free Jan 09

#87 jerseyangel

 
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Posted 21 January 2009 - 07:43 AM

:lol: Liz! I've wondered this very thing!

Bottom line--I'd love to try them but I'm scared. I was at a McD's recently.....we don't have small children anymore, but my husband wanted to pick up something to take home. I went in with him and stood right in front of where the man was making the fries. From a CC standpoint, it looked pretty good to me. He touched nothing with his gloved hand at all.

In the end, I chickened out.....but that smell.......one of these days I may say to heck with it and give 'em a try. :D
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Patti


"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

#88 ang1e0251

 
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Posted 21 January 2009 - 08:59 AM

In the beginning, I ate the fries, no problem. But then I found this forum and the great fry debate. I made the decision not to have them anymore. The reason is I've become more sensitive as time goes on and I just won't risk it. I've put that in my catagory with "made in a facility that also makes...." I just don't do it. My local place makes fries for me and I'm OK with them. Or I make them myself, that's it.
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#89 Kaycee

 
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Posted 21 January 2009 - 10:54 AM

McD's fries. I admit to eating them in the past. I haven't had any problems with them. I now have two sons working for them over the summer months, and they confirm that they only use the fryer for chips. On the NZ McD's website it says they may contain traces of gluten But I haven't had any for ages, and if I want chips I can make my own. Actually the worst thing that happened to me at McDonalds, and that was twice, was getting a bad re-action from their plain garden salad without croutons and without dressing. How would that happen? Maybe it was glutenous fingers handling the food. So much for going healthy!

Congratulations on your new President. We had it all over our tvs yesterday and it was incredible. My sons girlfriend from Virginia was glued to the tele from 5.30am onwards. Aparently your president is 5 days younger or older than our prime minister, and they both were elected into office within three days of each other.

Cathy
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#90 jerseyangel

 
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Posted 21 January 2009 - 11:07 AM

Thanks Cathy :D
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Patti


"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev




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