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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gliadin Antibody (iga)
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I'M THE PARENT OF A 22 YR. OLD WHO WAS DIAGNOSED 9 MONTHS AGO W/CELIAC AND IT WAS RECOMMENDED I HAVE A BLOOD TEST DONE. I DON'T KNOW IF HAVING A 19 H FOR GLIADIN ANTIBODY (IGA) IS WITHIN THE NORMAL RANGE. CAN SOMEONE LET ME KNOW BEFORE I HAVE TO CALL DR.'S OFFICE. THANKS.

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The normal range for the IgA is less than 18....at 19, you're....iffy about having celiac. You're right outside the normal range--and may or may not have it. But you're correct--you should be tested if anyone in your family has celiac disease. Has your doctor run any other tests? Having a positive AGA IgA makes you less likely to have celiac disease, provided that the EMA IgA and the AGA IgG are negative...has your doctor run either of those other tests? Otherwise, you don't really know whether you have it or not. Positive/negative results for the other tests could give us a better idea.

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Thank you celiac3270 for the info. My IGG was 7, which is in the normal range. I don't have any symptoms but my daughter is having a follow up visit w/her gastro dr. next month and I'll ask for his opinion. Thanks again.

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I was happy to see that I am not the only one with questions about these tests!!! I posted yesterday with questions and although I still don't have answers about these tests, I am soooooooooooooo thankful for the sweet responses that I received! I was already eating pretty much gluten free before my tests (didn't know I needed to be eating gluten!) Anyway, My #'s are IgA 14 - IgG 41 - and another one that was 2. All my doctor said was that he believed I had celiac disease. Not anything about the #'s As I said in the other posting, my daughter is arguing about that diagnosis! Can anyone help me? I am eating gluten-free and feel so much better than I have EVER felt in my life, so I will stay gluten-free!

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I have found that even though I do not have celiac disease I am following the diet pretty much with my son. I have lost weight. BECAUSE.... if you are eating gluten-free you are probably not eating alot of processed foods, which is healthier for everyone. Also, you are probably not eating as much "white stuff" which is sugar, flour, and starch, (as in cookies, cakes, etc.) which is not good for anyone.

Keep doing it if it feels good. The only bad thing about it is, if you normally get your fiber from whole grain bread and cereal, you may have to increase your fiber intake somewhere else.

GOOD LUCK.

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    • Blood results - odd
      My results were similar – Low ferritin but normal B12. Although my ferritin levels were low, my Iron serum levels were normal. So might be worth getting your iron levels checked out to see if you have any deficiency in Iron. Also I was deficient in Vitamin D, which is perhaps more of a problem in England rather than the US - Our milk isn’t supplemented with vit D and we obviously have less sunshine.
    • How do you know what's causing what?
      Hi Kam, If you are going to continue the celiac testing with an endoscopy, you need to keep eating gluten until it's done. It can be hard for vegetarians to keep their vitamin D levels up.   This Vitamin D  Council link has some good info on ways to boost your levels. https://www.vitamindcouncil.org/about-vitamin-d/
    • Blood results - odd
      Your ferritin was very low!  My result was a 2 when I was diagnosed.    I hard a hard time breathing and the fatigue was awful due to low hemoglobin levels.  But after going gluten free and taking iron for a few months, I quickly recovered from iron-deficiency anemia.  I still have hemologobin levels that are slightly below range due to Thalassemia which is genetic and my body has adjusted for it.   My B12 and folate levels are  super high.  My B12 is over 2000!  Yeah, I googled and ruled out cancers, etc.  Looks like some of us do not process man-made B12 often included in supplements.  I opted for natural sources of B-12 and folate and my levels have come down a bit.   Let us know your results.  Read the Newbie 101 section under "Coping" within this forum for tips.   Be patient.  It can take months, to years to feel good.  But it will happen!    
    • How do you know what's causing what?
      Welcome to the forum!   Well.....in theory you should be able to heal within a few months (grow new villi, etc.).  The reality is that it takes so much longer -- like a year or two (I kid you not!)  Why?  celiac disease can damage more than just the gut.  Depending on what was damaged (nerves, bones, etc) can impact healing time.  The gluten-free diet has a very steep learning curve.  It's not just giving up gluten.  It's avoiding cross contamination.  Becoming an expert in reading labels.  Learning to avoid foods processed on shared lines in a facility.  Then there are intolerances that most celiacs develop.  The most common ones is lactose.  Why?  The villi tips release the enzymes to digest lactose.  No villi tips?  Then you can not digest lactose.  Often this is temporary, but if you are one of the many adults in this world, you might already be lactose intolerant or might become so as you age.   Other intolerances that members often report include corn or soy.   Some celiacs react to oats, even gluten free.  So avoid oats for six months.  So, try cutting out dairy for a few days and see how you feel.  Then add in those items that have the least lactose:  hard cheese, butter, yogurt and see how you feel.   Avoid eating out for six months until you have seen some improvement.   Read our Newbie 101 thread under coping for more ideas!  Hope you feel better soon.   
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