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Celiac.com Celiac Disease & Gluten-Free Diet Forum: New To Celiac And Having Heart Palps - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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New To Celiac And Having Heart Palps Rate Topic: -----

#1 User is offline   codyb87 

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Posted 18 January 2009 - 06:41 AM

I am having trouble sleeping as my heart seems to be keeping me up. Its like every time i try to completely fall asleep my heart will beat just a little quicker to keep me awake. Ive been dealing with anemia for years and now and a doctor I saw last says I show symptoms of celiac disease. I have never had sleep problems or disorders.

anyone getting the same problem? there seems to be many posts about this kind of stuff, although alot of them are never exactly what your experiencing yourself.
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#2 User is offline   flourgirl 

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Posted 18 January 2009 - 07:05 AM

Hi! I was having lots of heart palpitations, irregular/early beats. Started having problems long ago, but doctors kind of shrugged it off because they didn't have any clues, like "I don't know so it can't be too important". When I was very ill, before my diagnosis, I went through lots of tests including a monitor. In the end, it turned out mainly malabsorption issues and lack of nutrientsfrom Celiac.

I can say that now that I'm finally healing gut-wise, the heart issues are much less. I still don't sleep well, but I think that may be a whole other matter. I'm still looking for answers....it gets really confusing with Celiac....what is caused by it that may eventually resolve, and what is not caused by it and still needs attention. Good luck to you in finding answers.
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#3 User is offline   Amyleigh0007 

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Posted 18 January 2009 - 09:07 AM

My palpitations never woke me up but I can tell you about my experience. I began experiencing heart palpitations about 8 years ago (right after my son was born). I had to wear a heart monitor for 24 hours but they found nothing wrong. They continued off and on until I went gluten free about 6 months ago. Now, I can't remember the last time I had one.
Amy

1989: I am diagnosed with IBS.
3/08: 8-year-old son diagnosed with Celiac (blood test and biopsy) and allergies to corn, egg whites, soy, peanuts, walnuts, wheat, and clam.
6/08: My Celiac test is negative.
7/08: I go completely gluten free despite negative test and NO MORE IBS SYMPTOMS!!
7/09: My Enterolab gluten sensitivity gene testing results indicate I have one Celiac gene and one gluten sensitivity gene.
8/09: I am diagnosed with Celiac based on gene testing results and positive response to diet.
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#4 User is offline   MELINE 

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Posted 18 January 2009 - 09:15 AM

My heart palpitations are always because of food intolerance. Do you still eat dairy / casein?

Meline
Celiac September 2007

Graves disease June 2008

Candida overgrowth / started treatment November 2008
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#5 User is offline   codyb87 

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Posted 18 January 2009 - 12:01 PM

View PostMELINE, on Jan 18 2009, 10:15 AM, said:

My heart palpitations are always because of food intolerance. Do you still eat dairy / casein?

Meline


Yes I do eat dairy, and I dont even know what casein is! Im not technically diagnosed with celiac yet, but all signs seem to be pointing that way, I dont know if i should start cutting out glutten right away to be safe? I'm in a very demanding school program so any help or self treatement would be great asap! Also, Ive never experienced stomache aches or cramping in a long long time.
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#6 User is offline   mushroom 

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Posted 18 January 2009 - 12:51 PM

Yep, had that problem for 45 years before gluten-free. No medical professional was interested. Menopause along with that was living hell. Racing heart with heavy thumping; had to have valium to get to sleep. I still have it a little bit but nothing like it used to be. At this point, I am not thinking yet of avoiding any more foods. having quit gluten, lactose, corn, soy, nightshades.

Don't stop gluten until after you have been tested or you will likely invalidate your tests.
Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

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#7 User is offline   MELINE 

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Posted 18 January 2009 - 01:44 PM

oops....I thought you were already gluten free....So follow that advise that has already been posted, don't stop gluten before your test. Have you scheduled tests for celiac?


casein info: http://www.whfoods.c...=george&dbid=66


Heart palpitation due to food intolerance appears within 10-40 minutes after eating the "guilty" item. The trouble is that if you eat something complicated (for example ice cream) you will not be able to tell if it was the gluten, the sugar, the lactose, the arificial colours etc etc...


so....how hard is it for you to eat simple foods? and then see what happens within 10-40 minutes??

eat potatos only, and then eat chicken only, and then bread only .....Sounds hard.....?

The next best solution would be to get a test for food intolerances.

(assuming you've already checked your thyroid.....)


Heart palpitation is very often a sign that a food is not doing well in your body. But of course it could be so many other things. To tell you the truth my intolerances at the begining would only make my heart beat like crazy. No stomach pain / bloating. When my body decided that I am so stupid to keep ignoring the heart signs, it gave me extreme bloating so I could finally stop eating like a fool. :P :P
Meline
Celiac September 2007

Graves disease June 2008

Candida overgrowth / started treatment November 2008
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#8 User is offline   Mother of Jibril 

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Posted 18 January 2009 - 02:43 PM

View PostMELINE, on Jan 18 2009, 04:44 PM, said:

(assuming you've already checked your thyroid.....)


It would be a good idea to do this if you haven't already. TSH is inexpensive and easy to check (just a blood test). The normal range is 0.3 to 3.0. If your number is below that (let's say 0.1) that means you have hyperthyroidism. Graves' disease is a condition where your thyroid starts producing too many hormones, which speeds up your metabolism, heart rate, and raises your blood pressure. This can lead to palpitations. Some of the other signs are insomnia, anxiety, intolerance to heat (lots of sweating), and sometimes bulging eyes.

Like celiac disease, Graves' disease is an autoimmune disorder. Having one autoimmune disorder puts you at risk for others.
Gluten free 08/08
Son has IgE allergies to peanuts and corn
Hashimoto's, MCAD, pregnancy loss at 17 weeks
HLA-DQB1*0302 (celiac), HLA-DQB1*0301 (gluten sensitive)
Serological equivalent 3,3 (subtype 8,7)
Extensive family history of autoimmune disorders and related symptoms
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#9 User is offline   AliB 

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Posted 18 January 2009 - 04:53 PM

Coo, when my digestion got really bad I was getting palps a lot - one thing I noticed was I would get them about the same time late in the evening when sat at the PC. I would go very clammy with it too for a few minutes and sometimes feel a bit light-headed too, and wondered whether it might have had anything to do with when the last food I ate got to a certain point in my gut or something linked to it.

I was having a few squares of bitter choc and did wonder also if it might have been a soya reaction but I can't digest carbs very well at all so I am sure that didn't help.

Improved a little on gluten-free, dairy-free and I rarely, if ever get it now since cutting out the carbs.
Ali - 50 - struggled with what I now know to be GI symptoms and poor carb digestion for at least 35 years! Diabetic type II (1997). Mother undx Celiac - lifelong diabetic Type 1 & anemic (plus 1 stillborn and 10 miscarriages after me). Father definitely very GI.

Stopped gluten & dairy, Jan 08, but still other issues so dropped most carbs and sugar and have been following the Specific Carb Diet (SCD) since March 08. Recovery slow but steady and I can now eat a much broader range of foods especially raw which are good for my digestion and boost my energy level.

Not getting better? Try the SCD - it might just change your life.........
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#10 User is offline   caek_is_a_lie 

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Posted 18 January 2009 - 05:49 PM

My heart used to skip a lot right before I was diagnosed. I was having a lot of PVC's. They did a thyroid test and had me wear a monitor for a week. My thyroid was low, but the Dr. didn't read the results right and told me I was "right in the middle of normal." They diagnosed me with a heart arrhythmia but never told me, and kept telling me I was just overly sensitive and to try and not think about it. Then I was diagnosed hypothyroid and gluten intolerant by a naturopath and haven't had a problem since I went gluten-free and started taking thyroid meds. When I see the regular Dr., they're still clueless and say "oh that's great you figured that all out on your own." (yeah because going there did NOTHING for me, and I had to do all your work for you, jerks.) Doctors suck, imho. <_<
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#11 User is offline   codyb87 

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Posted 18 January 2009 - 08:03 PM

Wow this is an amazing amount of help in one day thankyou all. I am seeing my hemotologist on tuesday but until then i seem to keep eating things that make my heart react the same way as noted at the beggining of this thread.

Is there anything I can do to calm the feeling down until I get the proper tests and diagnoses? As long as I can sleep I feel I can put up with the disscomfort for now.

Also yes i will be mentioning thyroid as well to be checked becuase that sounds alot like what Im going through.
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#12 User is offline   MELINE 

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Posted 18 January 2009 - 09:30 PM

.......Whenever I have a food intolerance pboblem or I am glutened, I try the water..I mean I drink plenty of water to get rid of the toxins.

When you eat something that you are intolerant to, your body recognizes it as toxin (and it is reacting wit several ways, one of them could be heart palpitation). So one way to stop the unpleasant effects is to detox. I do that by drinking a lot of water.


All that assuming that your problem is due to food intolerance.


Meline
Celiac September 2007

Graves disease June 2008

Candida overgrowth / started treatment November 2008
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#13 User is offline   ENF 

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Posted 19 January 2009 - 10:28 AM

If you don't do this already, I would recommend taking fish oil supplements, or eating fish several times a week. This seems to keep my mitral valve prolapse and other valve problems from bothering me too much.

I saw two hematologists, before my Celiac diagnosis, and neither one even mentioned Celiac. They just gave me Rx's for iron because of severe anemia. My ferritin level was zero.
Celiac diagnosis from positive blood work & endoscope (2005)

Serologic equivalent: HLA-DQ 2,3 Subtype 2,8 (double Celiac genes)
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#14 User is offline   GlutenGalAZ 

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Posted 19 January 2009 - 11:26 AM

View Postcodyb87, on Jan 18 2009, 07:41 AM, said:

I am having trouble sleeping as my heart seems to be keeping me up. Its like every time i try to completely fall asleep my heart will beat just a little quicker to keep me awake. Ive been dealing with anemia for years and now and a doctor I saw last says I show symptoms of celiac disease. I have never had sleep problems or disorders.

anyone getting the same problem? there seems to be many posts about this kind of stuff, although alot of them are never exactly what your experiencing yourself.


Do you take any cold medicine before you go to bed? Some medicines like Sudafed for example will make your heart rate increase (decongestants -- if you have any type of heart problems).
I know during the busy season at work I sometimes eat gluten free frozen things a lot that I buy at the store or things that may have grease in them...If I eat this way too many days in a row or too often I will get heart palps again. But since I have been on the gluten free diet and not eating crummy type foods they have pretty much gone away - I still get them once in a while but not as often as I use to. When they start up I just try to relax and drink lots of water, if it is from something I ate then sometimes it helps lesson it.
I take medicine to keep my heart rate down but have noticed a great change in how I feel with that since being completely gluten free. It is amazing how many things are linked to gluten.

Hope you figure things out and feel better soon

Edit: I would keep a food journal if you can. This way you can keep track of what you are eating and make notes on how you are feeling. I have noticed that my heart rate will increase with certain green foods and tomato sauces. I also have problems with MSG. Just a thought.
Rebecca

Partial Gluten Free March 2007
Completely Gluten Free February 2008
Tapioca Starch/Flour Free April 2008
No MSG July 2008
Cut out Nitrates//Nitrites January 2009
Problems with Tomatoes and Potatoes -- Cut out Nightshades Aug '09
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#15 User is offline   codyb87 

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Posted 19 January 2009 - 12:56 PM

Wow the whole detox with water thing really helps. I actually slept last night thank god! The food journal thing is a good idea and Im starting one but Im having a lot of problems figuring out what all has gluten and what doesnt. It seems to be that I either have to constantly check ingredients and refer to charts on the internet to see if its safe, or just go with what ever ive figured out already that doesnt hurt me.

I had an all natural granola bar today with rolled oats, honey and nuts and it gave me problems. it was literally the healthiest thing I could have picked at my school consession stand lol. But I guess I have to understand that eating only healthy stuff doesnt mean gluten free.

The main thing im concerned about is that I havnt been technically diagnosed with celiac yet, and ive only noticed these heart palps and soreness after eating for 2 days now. If I do get tests done for celiac, then they wont be done and worked out for quite a long time, not sure how to handle all this in the mean time.

also I dont take cold medicine before bed or any medicine for that matter. Ive never been much of a pill taker.
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