Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Cold Sores
0

9 posts in this topic

i woke up yesterday to feel my lip tingling...i've been getting cold sores for 10 years now so i knew what to do. i applied Abreva periodically all day only to discover the one cold sore turned into a cluster of them by nighttime. UGH! then i ran out of Abreva late last night so i'm off to get more.

does anyone else get cold sores and what do you use for them? my lip is burning and tingling and i feel like i'm talking funny so i don't move my mouth too much.

did i get glutened and this is how it's coming out? i don't feel feverish and i'm not overly stressed (i was 2 weeks ago but not so much anymore) so i'm not sure what else would have caused it. stress or too much sunlight usually triggers cold sores in me but since it's been about 2 degrees for the high temp, i haven't exactly been spending much time outside lately!

0

Share this post


Link to post
Share on other sites


Ads by Google:

A lot of people report mouth sores of one type or another. Sometimes from a glutening, other times from something else. If you haven't been getting them for awhile since going gluten-free, and haven't had anything new in your diet, skin/hair care products, etc, then I'd think it was gluten related. But if you're continuing to get sores at the same rate since gluten-free, then I'd be thinking there's something in your diet or skin/hair care products that is getting you.

0

Share this post


Link to post
Share on other sites

i usually get 3-4 cold sores on average per year. what's strange though is that i specifically remember purchasing Abreva last January so i know i had a cold sore this exact same time last year (before i was gluten free). the only thing different i've eaten lately is the new Strawberry Chex on Saturday morning. i hope i didn't get glutened from them because they're so good!

0

Share this post


Link to post
Share on other sites

my daughter was get 3 kinds of mouth sores

cold sores, sores in the corner of her mouth, and white sores in her mouth

the PA said the ones in the corner are from a bacteria/ yeast combo

the white sores in the mouth are associated with celiac, which my daughter does not have

the cold sores are herpes. I thought her sores may have been from gluten, I put her on a gluten free trial diet. I ended up getting her sore swabbed and it was positive for herpes.

I would suggest getting your sores tested.

0

Share this post


Link to post
Share on other sites

i know my sores are cold sores, as a form of herpes. when i had my first outbreak over 10 years ago, i had to go to the dentist and regular doctor because it was so bad. my lips were covered and then they spread to the insides of my mouth and even on my tongue. the doctors confirmed they were legit cold sores and prescribed Denavir (OTC Abreva wasn't on the market yet). it was horrible and thankfully i haven't had an outbreak nearly as bad. i wouldn't wish cold sores on my worst enemy.

0

Share this post


Link to post
Share on other sites




L-Lysine works awesome for me to hold off those cold sores. It is an amino acid and you can find it in the vitamin aisle at any store. Its way way cheaper than Abreva (which doesn't work for me anyway). I take two pills in the morning and two at night. Believe it or not its made my acne go away too.

I used to get cold sores when glutened all the time, and once in awhile just out of the blue. Lysine makes them way smaller and they don't scab over and heal faster for the rare times I get a cold sore now.

I should add that the bottle suggests taking one in the morning and one at night- I'm taking two now but am going to lower my dosage to what the bottle suggests. If you're taking any other meds, you might want to ask your doctor about Lysine but everything I've read says Lysine is safe.

0

Share this post


Link to post
Share on other sites

I dealt with cold sores for the last 15+ years myself! It's a terrible problem to have. Thankfully, since going gluten-free, I had one small one and that was all. The only thing I found that has ever helped me is a product called "Kanka". It numbs the area (temporarily) so at least I'd be able to get through a meal without so much pain. My cold sore that I'm getting over happened a few days after I got glutened. Coincidence? In my opinion, no way.

Hope you find some relief and that you don't experience any more!

*lee-lee* - I didn't think the strawberry chex were gluten-free. I might be wrong but as far as I knew only the plain rice chex are gluten-free. I hope I'm wrong for your sake!

ETA: My cold sores are always inside the mouth, never on my lips so Kanka may not work for coldsores on the actual lip

0

Share this post


Link to post
Share on other sites
I dealt with cold sores for the last 15+ years myself! It's a terrible problem to have. Thankfully, since going gluten-free, I had one small one and that was all. The only thing I found that has ever helped me is a product called "Kanka". It numbs the area (temporarily) so at least I'd be able to get through a meal without so much pain. My cold sore that I'm getting over happened a few days after I got glutened. Coincidence? In my opinion, no way.

Hope you find some relief and that you don't experience any more!

*lee-lee* - I didn't think the strawberry chex were gluten-free. I might be wrong but as far as I knew only the plain rice chex are gluten-free. I hope I'm wrong for your sake!

ETA: My cold sores are always inside the mouth, never on my lips so Kanka may not work for coldsores on the actual lip

I used to get them all the time...big and bad! I just got one the other day, first in a long time. Valtrex and Abreva work great. Valtrex stops mine almost instantly and what is left I simply keep Abreva on it 24/7. I would definately have your Dr get you a rx for Valtrex 1gm, you take two the instant you feel one coming on. I dont mind them anymore because it wipes it out.

0

Share this post


Link to post
Share on other sites

I've been getting cold sores since I was 4. I get them on my nose, around my eye, on my lip, and even once in my eyeball! I have had a lot of success with avoiding foids with a high arginine/lysine ratio. This means avoiding foods like nuts, peas, and caramel coloring (plus lots more) as a general rule, but even more so when my system is stressed out. If I do feel one coming on (like right now :( ), I break out the lysine and take 3,000 mg 3-4 times a day. Often that keeps them at bay. I usually take 1,000 mg a day for prevention. Good luck!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,357
    • Total Posts
      920,528
  • Topics

  • Posts

    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)  
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
    • I had a biopsy done (2 samples, 1 on a lesion and 1 next to lesions), and also more bloodwork done. All came back negative. However, I only had been eating gluten for 2 weeks prior, and it took a week of gluten for lesions to reappear. I also used a topical steroid off and on (1x a week approximately) for a month or so before testing. The dermatologist told me to stay off gluten though, and said she wants to do more allergy testing (her next open testing appt is in 6 months!!). I know I'm not the DR, but I dont think it's allergies...without a doubt, my skin begins clearing about 2 weeks post gluten-free diet...this is without changing anything else in my lifestyle. And when i had to go back on gluten before my biopsy, it took about a week, but did reappear. Now, about 2 weeks post biopsy and gluten-free, it had begun clearing until i worked outside all day in heat, humidity,  sweat etc and it has definitely irritated all the places that were healing (not new breakouts, just aggravating what was going away!). All that being said, i have a friend who is an MD( who's hobby is to attend conferences on skin conditions!), and she has told me that without a doubt, I have celiac/DH.  I think I just feel like I need test results and paperwork to show for it...especially to show family members who are unsupportive (gross understatement!) of the extreme changes I've had to make!
    • Sorry ! I have never cruised before.  Just wanting to follow your topic.  Good luck! Have a great,  safe vacation.  
    • Hi there, I hope you're all having a good day! I'll be heading on a week-long Carnival cruise shortly and had a few questions: -What is the tipping protocol? I've prepaid gratuities, but feel like the food request will warrant something extra. Should I tip the headwaiter? Hostess? Regular waiter? Chef? Those cooking at, say, the sandwich or pasta bars? If so, how much is appropriate, and should I tip at the beginning of the cruise, the end, or split it up? -It looks like the main dining room will be closed during lunch hours on most days. Any recommendations on safe bets for midday meals? I'll be on the Carnival Sunshine, for what that's worth. Thank you so much for any information you can share!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,432
    • Most Online
      1,763

    Newest Member
    rbeckler60
    Joined