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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Starving/always Hungry - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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#1 User is offline   hermitgirl 

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Posted 22 January 2009 - 09:19 AM

So since my diagnosis in September, obviously I am way more careful about what I am putting into myself. My problem is I am always starving . No matter how much or how little or how often I am always hungry. When I eat, no matter how much I eat I am still hungry. I never even remotely feel "full" or close. I am already over my ideal weight, and am miserable just trying to not gain any more. In the process of getting my thyroid checked but really getting more frustrated than anything. I do exercise regularly, both weights and cardio. Any ideas?
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#2 User is offline   RiceGuy 

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Posted 22 January 2009 - 11:29 AM

Yes, I was always hungry too. Ravenous, in fact. I would literally stuff myself until I couldn't swallow another bite, and yet I was still hungry. It was very frustrating. So, I researched a few things, and concluded that I needed to improve nutrient absorption. Magnesium has helped me, as has a multivitamin. I also pureed all my food in the blender. The hunger persisted for nearly a year, but thankfully, has diminished to what appears to be fairly normal.

You may also find benefit from a digestive enzyme supplement. Other things which are said to help digestion include betaine HCL w/pepsin, and raw, unfiltered, unpasteurized, Apple Cider Vinegar.

In short, I think given a good healthy, nutrient-rich diet, and sufficient time, you will get there.

I know I'm not the only one who can relate to the constant hunger, so perhaps others will chime in too.

HTH
A spherical meteorite 10 km in diameter traveling at 20 km/s has the kinetic energy equal to the calories in 550,000,000,000,000,000 Twinkies.
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#3 User is offline   lovegrov 

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Posted 22 January 2009 - 11:42 AM

I was absolutely ravenous for months, even when I was gaining too much weight.

I have two theories about it. Neither one is based on any science I can show. First, I think our bodies are craving all the good nutrients we haven't gotten for years. Second, at least in my case, I was really used to eating tons of food without gaining weight.

richard
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#4 User is offline   ang1e0251 

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Posted 23 January 2009 - 12:53 PM

Man, when I'm hungry, I'm really hungry! Part for me, I think was, no matter what I ate I wasn't getting the vitamins I needed. I added the B12 and that really helped. Now I can feel full and satisfied if I get enough protein. The protein makes the difference for me. It can be meat, nuts, or cheeses. Those things satisfy me like no other. I can't have fresh dairy or I would add cottage cheese and yogurt to that list.
I try to keep those foods around me at all times to keep that hunger dog away. I also tend to hypoglycemic so I have to watch out for the low blood sugar crashes. Those foods keep me stable.
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#5 User is offline   rinne 

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Posted 23 January 2009 - 01:06 PM

I've had that kind of ravenous hunger too, the pattern seems to be I eat and eat for several days and gain weight but then I just can't keep eating so much and the weight drops off. I think when I am that hungry I should eat, what works best for me is lots of protein and vegies, some fruit and nuts. I don't eat processed foods.

What is your diet like?
A family with Celiac disease, two brothers and two sisters.

Lyme Disease, Diagnosis October 19, 2006

May 2006 - December 2008 Gluten and Dairy Free

December 2008, while seeing improvement on the gluten free diet, I did not recover and so in December of 2008 began the SCD and now have hope for recovery.
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#6 User is offline   hermitgirl 

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Posted 23 January 2009 - 06:37 PM

I eat a lot of protein,(meats, nuts and some dairy/soy) fruits and veggies. I do try to have a variety, but that isn't as easy as it sounds. My nutritionist is at a loss when she looks at my food logs. (which is why she keeps sending me for all these other tests) It doesn't matter how much protein or fiber is in a meal, I am still hungry. It is even worse the next day if I try to limit how much I eat the previous day.
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#7 User is offline   rinne 

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Posted 23 January 2009 - 07:16 PM

Since you were just diagnosed in September I wonder if your body just needs to do this. Were you thin before?

Your diet sounds healthy although I am not a fan of soy, I don't think we really understand what we are doing with it.

I think it is important to trust our bodies and if your body is telling you "feed me" then I would listen, really listen to what it is your body wants to eat. Your body is wanting nutrients, the question is what? Have you had your vitamin and mineral levels checked?
A family with Celiac disease, two brothers and two sisters.

Lyme Disease, Diagnosis October 19, 2006

May 2006 - December 2008 Gluten and Dairy Free

December 2008, while seeing improvement on the gluten free diet, I did not recover and so in December of 2008 began the SCD and now have hope for recovery.
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#8 User is offline   Bell 

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Posted 24 January 2009 - 12:29 AM

How much fat do you eat?

I think we need more than is generally thought, especially good quality organic animal fats, butter, coconut oil and olive oil. I find that the more fat i eat, the more satisfied I feel. And I can easily go all day on a good breakfast, whereas if I ate something low fat and/or carb heavy, i would have a real problem with low energy, both mental and physical. And it was always hard, even with eating chocolate and apparently energy-filled food to try and boost myself up

Animal fat is fantastically good for you - I buy organic stock bones from the butcher, add herbs and garlic etc and make a GORGEOUS tasty stock and keep the tasty layer of fat that settles as it cools. Coconut oil is great for your thyroid, and gives you bags of energy, butter is great for your heart despite the bad press it gets, plus it's just very lovely in everything.

The brain is full of cholesterol - we do need to feed it in order to keep mentally well.
It's great for your blood sugar levels,
Also, you will absorb the vitamins and minerals in your veggies much better if they are eaten with a little melted butter.
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#9 User is offline   rinne 

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Posted 24 January 2009 - 02:48 AM

Good points. :)

I know I craved fat, I ate spoonfuls of almond butter at one point but can't imagine eating that much of it now.
A family with Celiac disease, two brothers and two sisters.

Lyme Disease, Diagnosis October 19, 2006

May 2006 - December 2008 Gluten and Dairy Free

December 2008, while seeing improvement on the gluten free diet, I did not recover and so in December of 2008 began the SCD and now have hope for recovery.
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#10 User is offline   marciab 

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Posted 24 January 2009 - 06:51 AM

View Posthermitgirl, on Jan 22 2009, 12:19 PM, said:

So since my diagnosis in September, obviously I am way more careful about what I am putting into myself. My problem is I am always starving . No matter how much or how little or how often I am always hungry. When I eat, no matter how much I eat I am still hungry. I never even remotely feel "full" or close. I am already over my ideal weight, and am miserable just trying to not gain any more. In the process of getting my thyroid checked but really getting more frustrated than anything. I do exercise regularly, both weights and cardio. Any ideas?


It could also be a blood glucose problem.

http://diabetes.nidd...s/hypoglycemia/


Quote

What are the symptoms of hypoglycemia?

Hypoglycemia causes symptoms such as

hunger
shakiness
nervousness
sweating
dizziness or light-headedness
sleepiness
confusion
difficulty speaking
anxiety
weakness

Jan 1990 - Dx CFS/ME/FM (URI's, Ataxia, myoclonus, orthostatic hypotension, insomnia, brain fog, swollen lymph nodes, sore throat... ) Completely Disabled (housebound and bedridden at times)

2004 - Digestive pain all the time.

May 2004 - Hiatal hernia, erosive gastritis, gastroparesis (endoscopy)
August 2004 - Colon polyps, diverticulitus, internal hemorrhoids (colonoscopy)

No relief from Nexium, Prilosec, Protonix, Zelnorm, Miralax, Imodium, Lomotil ...
July 2005 - GP recommended WFDFSFEFCF + vegan (Also, anything that hurts free)
Immediately stopped needing naps and digestive pain reduced.

Sept 2005 - GFDFCFSFEF + chemical free - Immediately stopped feeling jittery / buzzing and digestive issues were much better.

June 2006 - Dx B12 and iron deficient. Started B12 injections and using cast iron pan.

August 2006 - MYOCLONUS GONE. (off Klonopin)
September 2006 - ATAXIA, INSOMNIA and Feeling like the floor was moving under my feet gone.

June 19, 2007 - Positive DQ2, Dx Celiac

October 2007 - Sleeping like a baby, waking up with energy, but still having fatigue/stamina issues

Nov 2007 - Started Paleo diet for chronic hypoglycemia

April 2008 - GTT normal. I'm no longer hypoglycemic. Started Low oxalate diet for kidney stones.

May 1, 2008 - Began salt loading for OI/NMH - noticed immediately muscle weakness was gone. I was sodium deficient but my labs don't reflect it. Still working on OI and PEM.
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#11 User is offline   WW340 

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Posted 24 January 2009 - 07:13 AM

I was constantly hungry when I first started the diet. In fact, I was beginning to think I just couldn't do the gluten free diet, because I felt like I was starving all the time. Once I increased my protein, mainly eggs, peanut butter, and chicken, the hunger went away. I eat 2 - 3 eggs almost everyday. My cholesterol is slightly elevated, but my doctor wants me to continue eating the way I am for now.


I gained about 10 pounds the first year on the diet and have just recently lost 5 of those by eliminating all carbs except for fruits and veggies.

I agree with the increased fat. My body is much happier now that I watch the carbs rather than the fat.
Positive Bloodwork January 2007
Positive Biopsy Feb. 2007
Gluten Free since January 2007

HLA-DQB1 Molecular analysis, Allele 1 0201
HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 2,3 (Subtype 2,9)
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#12 User is offline   Amy Gallagher 

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Posted 24 January 2009 - 07:23 AM

My fiance is the one with celiac disease, but I recently started eating gluten free with him. I can tell you that I'm starving too, and I don't even have digestion issues. Only when I bump up my protein intake...peanut butter, sushi, beef, do I feel remotely full.
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#13 User is offline   Jestgar 

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Posted 24 January 2009 - 07:25 AM

I was also starving for several months after quitting gluten. And I'm a lot over my "ideal weight". :P Your body is trying to heal from a horrendous experience. My approach was to eat as much as a wanted, but just choose healthy foods as much as possible. I actually lost weight while doing this, and once my hunger stabilized and I could make even better food choices, I lost more weight.

Focus on health over appearance right now. Yes, you might gain a bit, but once your body is back to healthy you can work on getting back to looking healthy as well.
"But then, in all honesty, if scientists don't play god, who will?"
- James Watson

My sources are unreliable, but their information is fascinating.
- Ashleigh Brilliant

Leap, and the net will appear.

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#14 User is offline   RiceGuy 

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Posted 24 January 2009 - 07:51 AM

I find it interesting that many report needing more protein. In contrast, I found that I had to cut proteins down for awhile, otherwise there'd be a lot of fluid retention in the extremities. Perhaps that's one reason I was hungry, but I was having such difficulty with the swelling as it was.

As for fats - yes, they are important. I really had to eat a bunch of it at first, because my body was draining all reserves. Obviously, you don't want trans-fats though.

It's always amazing how differently our bodies deal with Celiac.
A spherical meteorite 10 km in diameter traveling at 20 km/s has the kinetic energy equal to the calories in 550,000,000,000,000,000 Twinkies.
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#15 User is offline   hermitgirl 

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Posted 26 January 2009 - 04:36 AM

I was thin before this started. I have gained 30 pounds in the last 2 years, which is about how long ago that the symptoms started to show. 15 pounds ago my dr told me that I should not gain any more weight, as cholesterol and blood pressure where starting to go up. My last glucose tests all came back normal, I know that I was slightly anemic right before the diagnosis. That was one of the symptoms, but that literally seemed to happen in about a 6 month time frame. I went from being able to donate blood regularly to being turned down every time I would go due to iron levels. I think they are checking for some vitamin deficiencies with this last round of bloodwork. As far as the protein goes, even when I eat a lot of protein, it doesn't help curb the hunger. I do eat a lot of nuts (almonds, peanut butter) which my nutritionist tells me I need to cut back on. Lately I feel like I am a mouse in a cage on a wheel. Running and getting nowhere.
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