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Probable Cd? Many Questions
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Hello, This is my first post. I'm glad to find this place, although I am not yet officially diagnosed.

My doctor recently sent me for a number of blood tests, some of which related to celiac disease. I picked up the results at the lab, but don't have a follow up with doc for several weeks.

After looking at the results, I gleaned that I might have celiac disease and so have started looking around the web for more info.

Here are the test results that I'm wondering about:

Gliadin AB IGG - 11 (ref: 0-19)

Gliadin AB IGA - 98 (ref: 0-19)

Am I correct in assuming that the positive IGA means I likely have celiac disease?

I really don't have obvious GI symptoms....but I do have another autoimmune disorder (Hashimoto's thyroiditis) as well as osteoporosis and probably fibromyalgia.

Is it always necessary to have to have a biopsy? If I'm correctly understanding what I've read, it seems that the positive IGA is a pretty big clue. I'm perfectly willing to proceed with gluten-free lifestyle without a biopsy....but perhaps there are compelling reasons to have one anyway.....Can anyone clarify that for me?

Also, should I continue eating as always till I get a chance to discuss with my doc and/or have biopsy? If I'm likely to have celiac disease, I am inclined to jump right in and begin eating gluten-free to get on the road to healing. But (back to the biopsy question) maybe getting started now would mess up possible future tests.

Out of curiousity, I dipped my toe in the gluten-free lifestyle for the past two days, and am a bit concerned to find that I feel worse, if anything. Very achy!

Well, those are my questions for the moment! I'm grateful for any insight any seasoned readers might offer! Best, Geri

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Hi Geri,

The Gliadin AB tests are not totally specific to celiac disease. This means that although the high IgA reading could point to celiac disease, it doesn't necessarily. You should stay on a normal diet though, since the biopsy is the next step. Do not let the doctor tell you that going gluten free before the biopsy will not mess up your test results, it WILL mess up the results. So if a biopsy is going to be scheduled stay on gluten until after the biopsy is done.

That said, I would like to welcome you to this board. There is a lot of support here, and we are always glad to welcome new members.

As for the little bit of gluten free you have tried, it often takes weeks and sometimes months to start feeling real relief from symptoms, so a few days does not really give you a good idea of how you will respond to the diet.

God bless,

Mariann :)

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Hi Mariann, Thank you for the reply and the kind welcome! I'm just getting my hands around how big a topic this is and how much I have to learn. Aren't we lucky to live in a time when so much info is available! Best, Geri

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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