Can You Have celiac disease But Be Ok Eating Wheat?
Posted 24 January 2009 - 04:50 PM
Now, as far as I understand, you can be allergic to wheat but not have celiac disease. That much makes sense, as someone may react to chemicals in wheat other than gluten, but he/she may have no problems with the gluten itself. However, I don't think it works the other way around. If you can't eat gluten, then you can't eat anything that has gluten in it (and wheat very clearly contains gluten).
The doctor's explanation was something along the lines of: "Yes, but the gluten itself isn't what harms your intestine. It's after your immune system reacts to what you ate that it acts on the gluten and then makes it harmful to your body. In this case it's possible that your body doesn't react to wheat, so the gluten in that wheat won't do you harm. Meanwhile, it could be that you do react to barley, rye, etc. so that when you eat those your body does make the gluten in them harmful."
Isn't this complete nonsense? I would love my doctor to be right, but unless I'm missing something big I see no logic to what he's saying.
Can anyone chime in please?
Posted 24 January 2009 - 04:54 PM
The part about the allergy test refers to those doctors that prick your arm in 20 places with tiny needles containing allergens, and watch for red spots. The doctor also put some patches on my back containing actual pieces of allergens (meat, wheat, etc.) that I kept there for something like 3 days.
He said I was sensitive to beans, mites (like bed mites), yeast, and a little bit to peanuts. But he said that there definitely was no reaction at all to wheat.
Posted 24 January 2009 - 04:56 PM
I may find a new GI.
Posted 24 January 2009 - 04:59 PM
1989: I am diagnosed with IBS.
3/08: 8-year-old son diagnosed with Celiac (blood test and biopsy) and allergies to corn, egg whites, soy, peanuts, walnuts, wheat, and clam.
6/08: My Celiac test is negative.
7/08: I go completely gluten free despite negative test and NO MORE IBS SYMPTOMS!!
7/09: My Enterolab gluten sensitivity gene testing results indicate I have one Celiac gene and one gluten sensitivity gene.
8/09: I am diagnosed with Celiac based on gene testing results and positive response to diet.
Posted 24 January 2009 - 04:59 PM
Posted 24 January 2009 - 05:02 PM
Posted 24 January 2009 - 05:11 PM
The sad thing is, when I read this, it didn't completely surprise me. I am fortunate to have a GI doc who keeps up to date with celiac and understands the various problems it can cause, not just gastrointestinal in nature. BUT, he told me that while he was in med school, they only touched on celiac during the pediatric rotation. And when he was working on specializing in GI medicine, they STILL only touched on celiac during the ped rotation. He said they just really don't spend any time on it, even though it is nowhere near as rare as they once thought it was.
Moral of the story: Find a doctor who didn't finish med school thinking it was all the information they'd ever need.
Gluten free November 2007
IgA Deficient, Neg Bloodwork, Double DQ2 Positive
Dietary and Genetic Diagnosis June 2, 2008
Soy free Jan 09
Posted 24 January 2009 - 05:55 PM
Posted 24 January 2009 - 06:09 PM
Thanks all, I'll be switching docs now...
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