Jump to content



   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Can You Have celiac disease But Be Ok Eating Wheat?


  • Please log in to reply
8 replies to this topic

#1 Zoide

Zoide

    New Community Member

  • Members
  • Pip
  • 3 posts

Posted 24 January 2009 - 04:50 PM

This sounds crazy, but yesterday my gastroenterologist said that I might be able to eat wheat even though I have celiac disease! His reason is that my allergy tests came out negative for wheat...

Now, as far as I understand, you can be allergic to wheat but not have celiac disease. That much makes sense, as someone may react to chemicals in wheat other than gluten, but he/she may have no problems with the gluten itself. However, I don't think it works the other way around. If you can't eat gluten, then you can't eat anything that has gluten in it (and wheat very clearly contains gluten).

The doctor's explanation was something along the lines of: "Yes, but the gluten itself isn't what harms your intestine. It's after your immune system reacts to what you ate that it acts on the gluten and then makes it harmful to your body. In this case it's possible that your body doesn't react to wheat, so the gluten in that wheat won't do you harm. Meanwhile, it could be that you do react to barley, rye, etc. so that when you eat those your body does make the gluten in them harmful."

Isn't this complete nonsense? I would love my doctor to be right, but unless I'm missing something big I see no logic to what he's saying.

Can anyone chime in please?

Thanks!
  • 0

Celiac.com Sponsor:

#2 Zoide

Zoide

    New Community Member

  • Members
  • Pip
  • 3 posts

Posted 24 January 2009 - 04:54 PM

For the record, I definitely have celiac disease (I see there are some threads discussing celiac disease vs gluten intolerance, etc.). I've been diagnosed via blood tests and biopsy. I also developed osteoporosis (at age 18!) and later anemia, as well as ulcers in my mouth and throat. And diarrhea, of course. I've also been diagnosed with ADHD in the past (in case you are one of those who believe in an ADHD-celiac disease correlation).

The part about the allergy test refers to those doctors that prick your arm in 20 places with tiny needles containing allergens, and watch for red spots. The doctor also put some patches on my back containing actual pieces of allergens (meat, wheat, etc.) that I kept there for something like 3 days.

He said I was sensitive to beans, mites (like bed mites), yeast, and a little bit to peanuts. But he said that there definitely was no reaction at all to wheat.
  • 0

#3 happygirl

happygirl

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 4,942 posts

Posted 24 January 2009 - 04:56 PM

Celiac and wheat allergies are two entirely separate entities. Since you have biopsy proven Celiac, you have proof that gluten (wheat/rye/barley/oats) cause you harm.

I may find a new GI.
  • 0

#4 Amyleigh0007

Amyleigh0007

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 556 posts

Posted 24 January 2009 - 04:59 PM

WHAT?!?! Your doctor is nuts. Find a new one. Quick, go now!
  • 0
Amy

1989: I am diagnosed with IBS.
3/08: 8-year-old son diagnosed with Celiac (blood test and biopsy) and allergies to corn, egg whites, soy, peanuts, walnuts, wheat, and clam.
6/08: My Celiac test is negative.
7/08: I go completely gluten free despite negative test and NO MORE IBS SYMPTOMS!!
7/09: My Enterolab gluten sensitivity gene testing results indicate I have one Celiac gene and one gluten sensitivity gene.
8/09: I am diagnosed with Celiac based on gene testing results and positive response to diet.

#5 cat3883

cat3883

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 106 posts

Posted 24 January 2009 - 04:59 PM

Did he get his medical license out of a Cracker Jack box? You need to find a real doctor.
  • 0

#6 curiousgeorge

curiousgeorge

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 124 posts

Posted 24 January 2009 - 05:02 PM

Oh my, did the GI do the allergy tests? The thing that concerns me is there is no such thing as a little allergic to peanuts. YOu need to check that out too.
  • 0

#7 lizard00

lizard00

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,528 posts

Posted 24 January 2009 - 05:11 PM

Definitely find a new doc! As happygirl said, a wheat allergy and celiac are two completely different things. You can have one or both, but being allergic to wheat doesn't make you have celiac and being celiac doesn't make you allergic.

The sad thing is, when I read this, it didn't completely surprise me. I am fortunate to have a GI doc who keeps up to date with celiac and understands the various problems it can cause, not just gastrointestinal in nature. BUT, he told me that while he was in med school, they only touched on celiac during the pediatric rotation. And when he was working on specializing in GI medicine, they STILL only touched on celiac during the ped rotation. He said they just really don't spend any time on it, even though it is nowhere near as rare as they once thought it was.

Moral of the story: Find a doctor who didn't finish med school thinking it was all the information they'd ever need.
  • 0
Be yourself, everyone else is taken.
Oscar Wilde

Gluten free November 2007
IgA Deficient, Neg Bloodwork, Double DQ2 Positive
Dietary and Genetic Diagnosis June 2, 2008
Soy free Jan 09

#8 mastiffmommy

mastiffmommy

    Community Member

  • Advanced Members
  • PipPipPip
  • 31 posts

Posted 24 January 2009 - 05:55 PM

I am am negative for a wheat allergy but definitly gluten intolerant. My health has changed dramatically after cutting it out. Gluten is gluten and it is in wheat - until they genetically modify it out or something lol. Good luck! (and look for another Dr. - I've been through ALOT and the search is worth it to get a good one.)
  • 0

#9 Zoide

Zoide

    New Community Member

  • Members
  • Pip
  • 3 posts

Posted 24 January 2009 - 06:09 PM

Wow! Thanks guys, I really appreciate all the feedback. As I suspected, I'll need to switch to a doctor who actually knows about celiac disease. I think lizard00 is probably right. There can be very good gastroenterologists (I think mine is decent for non-celiac problems) who know nothing about celiac disease. Then again, a specialist who knows little to nothing about something so important in their field is hardly what you would call "good"... Especially when he's ignorant yet he affirms BS so strongly!

Thanks all, I'll be switching docs now...
  • 0


0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: